Vasculitis and physical exercise: Hi, I was... - Vasculitis UK

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Vasculitis and physical exercise

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Hi,

I was diagnosed with Vasculitis (Wegener's granulomatosis) before 30 days. I was reading that some medications that I take can make me gain weight. Is it safe to exercise if you have Vasculitis? I'm currently taking 50 mg of Prednisone and 150 mg of Endoxan.

11 Replies
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LynneJ
LynneJVasculitis UK

Weight gain is common with Pred. I would think as long as you are able it would be good to exercise and keep as fit as you can.

I don't have WG. I have MPA so maybe someone with WG will tell you if there is something you should watch out for.

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Hidden in reply to LynneJ

Thank you very much for you answer.

I've had WG for 8 years now and live a very active life with no issues. I would like to think that as long as you're feeling we'll enough to, exercise is a great thing. My biggest issue with Pred was actually the increase in appetite! I felt like eating ALL THE TIME!

Try to give in to those gratings wih healthy snacks instead.

I started back at the gym as soon as I felt healthy enough again...building up very slowly as to not "shock" your body into anything after being ill for so long

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Hidden in reply to Annie-F

I still don't see any changes in my appetite. Thanks for your answer.

When i was first diagnosed It was on 60 gms of prednisone and IV Cyclophosphamide fortnightly when I asked by consultant if I could exercise he said do as much as you are able. Which I took to mean not to be silly and plan to walk the Coast to Coast. I walked for minimum of 40 mins each ( except when it rained and a few days after my treatment when I normal stayed in bed or on the lounge). Sometime when I felt tired I did to 20 min walks. I addition to 30 minutes of light exercise from the Rosie book of chair exercise. I later started back at the gym. I was very careful when I was at the gym. I wiped all the exercise machines with and antiseptic wipe. Gyms are good places to pass on infection so be very careful while on Cyclophosphamide ( Exdon). I later started swimming again wearing flopflips to the pool area and in the changing room to ensure I did not pick up fugal infection. Did it stop me from putting on weight? I am afraid the answer is no. It needs to be combined with sensible eating of what we normal think of as healthy food. There is a short write-up on diet on vasculitis.org.uk/living-wi....

Good luck.

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Hidden in reply to Jann

I will also start taking long walks and then I will see about the gym. Thanks for your answer.

John_Mills
John_MillsAdministrator

Slowly and surely... when you feel well enough after the initial treatments and medication.. build up slowly as Jann has suggested... there will be a period where you may put weight on because of the prednisolone... and feeling less active because of the Vasculitis... but if you build up slowly again... there is a young man lives near us...was diagnosed a year ago last Christmas.. he was very ill at the beginning...he was a keen cyclist...after about 3 months after diagnosis he began cycling again and tried to do as much as he did before WG and made himself ill... but he then started to cyle a little each day then a little more each week... now he can cycle almost as far as he did before nad has rejoined the cyling club....

all the best

Susan

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Hidden in reply to John_Mills

I think that I'm ready for some light exercises. Thanks for you answer.

Hi Altus, I've had WG for over 4 years now and like Annie-F I lead a very active lifestyle with no issues. When I was first diagnosed I was on 40mg of Pred daily, Cyclophosphamide every 3 weeks and began exercising as soon as my joints freed up. I started sensibly by using my cross trainer for 30-40 minutes a day (easy setting) and within a few months I was back on my bike and cycling a couple of hundred miles a week, albeit at a reduced speed. Everyone is different so listen to your body and don’t overdo it, eat sensibly and be positive :-)

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Hidden in reply to johnyenglish

I'm very glad to hear that. When I was in hospital (before they figured out whats wrong with me) I thought that I will never be able to lead an active life. Thanks for you answer.

I sa diagnose about a year ago, it was hard to find and to track the progress because I'm anca -, but cardio pulmonary symptoms. I start doing some exercise and then chest pain. I'm trying anew tocilizumab treatment that has worked in USA and Japan.

Any thoughts?

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