My last appointment with the rheumatologist at the local hospital left me, my husband, and my GP very confused, and worried. Despite clinical signs of improvement, I was feeling worse each day, and able to do less and less, so GP was finally convinced and referred me to Addenbrookes. In the last ten days I have seen them twice ....... and finally feel that my questions are being answered, and I am being treated as a thinking human being whose questions need answering, and that i need logical(?) reasons for my symptoms.
The difference in morale, let alone everything else, makes such a difference!
So, please, if anyone is hesitating, worried about their consultant, etc, keep pushing until you find someone who really does listen. It has taken a lot of pushing, a lot of angst, and we're still not really there as there seems to be no way to transfer the scans I've already had to another hospital. But it is definitely better than sticking around and being perpetually worried and upset.