Bad stomach pain😖

[KfromOz]

Hello...been diagnosed with Systemic Scleroderma in 2017. Have been experiencing the most extreme and debilitating stomach pain. Am off to Dr end of week but was wondering if anyone had experienced similar......

[Hidden]

My son has Mixed Connective Tissue disease and used to get really bad stomach pains. We changed his diet and pains have disappeared and MCTD now in remission and he is off all medication. He follows the autoimmune protocol diet (lots of info online if you google it). Your stomach pain could be diet related. If it has been thoroughly investigated for other causes, I would recommend looking at your diet.

[KfromOz in reply to Hidden]

Thanks LizzyCee. Definitely started looking at my diet, and trying to balance that fine line....I also suffer from ongoing weight loss, at this stage a kilo a month so I do sometimes eat what goes against advice. Such early days with this disease so I gratefully receive all advice offered. Thankyou😊

[SelfLuv]

I have recently started getting pain in left upper side of my abdomen and it is so painful when it comes on. I am pretty sure is from the gastroparesis but I don't see my gastro until the end of July. If I really try hard to eat small portions, like a cup size, its not so bad. I have also read that gastroparesis can cause pancreatitis, but I'm waiting to talk to the gastro doc before I freak myself out.

[KfromOz in reply to SelfLuv]

Thanks for your reply Selfluv. Saw doc who is sending me for an ultrasound. I know it's my digestive system and bowels and think it maybe bacterial growth in stomach. So new to this and read so much about SSC that I feel I know better than doc. And don't see Rheumy till December. Having read your reply and others similar it sounds like I need a gastro doc.

Again thank you for your reply, this forum helps with knowing others are out there that are going through similar issues. Best of luck with your next appt. Try not to freak out, positive vibes to you.😊