Stem cell treatment

[Kc_1411]

I know I’ve asked before but looking for information on stem cell treatment ? Any clinics looking for recommendations please

Any help would be much appreciated

[positivedaybyday]

Hi KC,

I had stem cell treatment last year. It was gruelling but 14 months on I'm starting to get my life back. I have acute cutaneous systemic sclerosis ( scleroderma). Are you under a good Rheumatologist specialising in your condition?

To be offered Stem cell treatment you have to be at a stage where everything else is not controlling the disease & it must not have affected your ograns too badly. You have to go through a series of tests which you need to pass to start.

What area do you live? I would be open to meet & chat if you want more information. I live in the North, near Manchester.

Speak to your consultant who will explain if this is an option for you. I'm a guinea pig in this area with a small number of other people bit I had to take the chance or I don't think I would be here now! The stem cell treatment has been very successful in MS.

Good luck! Xx

[Kc_1411 in reply to positivedaybyday]

Thanks for your reply my husband is under Christopher Denton in royal free we live in London. He didn’t recommend it as there’s 1/5 death rate but people seem to be fine?

Thanks for offering to meet up.

I have found a hospital in India that seem to be ok, there’s a lady who had treatment there.

I have no organ problems as of yet.

I’ve had scleroderma for 15years have 3 children so want to be around for them

[positivedaybyday in reply to Kc_1411]

That's strange. I was told it was 10% chance of dying. Perhaps it depends on the individual. I was 64 at the tme & had been very fit all my life until this condition hit in early 2017 but it was SO aggressive. There are many people who praise Prof Denton. I have read lots of reports on the Internet post stem cell treatment ( mainly from the USA ) but it makes quite frightening reading) Good luck & let me know how you get on. Keep positive as this is your most powerful weapon. Xxx

[Kc_1411 in reply to positivedaybyday]

How old are you? My husband is 29 and diagnosed at 11. Thank u I’m just trying to research as much as possible they say it’s best done at early diagnosis but fingers crossed it will help even if not needed atm x

[positivedaybyday in reply to Kc_1411]

I was 64 when I had the stem cell treatment. I'm now 65. My diagnosis only happened 2 years ago & was in its early stages though advanced so quickly. I started to feel ill early 2017 but by Nov 17, I was in a really bad way. I was referred to Sheffield Jan 18 where I had the tests & passed. They harvested my cells in March 18 & I started the treatment May 18. It all happened so fast. So sorry to hear your husband is so young. It's a terrible condition & to get this at such a young age is so so terrible. Please come back to me for any more information. As I said I was told I had a 10% chance of dying but I turned it to a positive in that I had a 90% chance of living. I couldn't go on as I was. To be fair I would of taken a 50% chance. I wish you all the luck in the world. Xx