Constant strong taste of salt

[Gingerbeets]

Hi

Is anyone experiencing a really bad, constant salty taste in their mouth? My googling is suggesting Sjögrens might be a possibility but I don’t really have a particularly dry mouth (or eyes) just a disgusting ongoing taste of salt.

Thanks!

[MissusTee]

I have sjogrens and my mouth is dry and my tongue cracked, and I've never had a salty taste!

[Intimeslikethese]

When I was in my teens, with the onset of puberty, I would have the strong salt taste emerge two weeks prior to my menstrual. Even though I thought it was a hormonal reaction, I could control it by lowering my salt intake. (I hope this oversharing of info helps in someway.) It actually seemed to be coming from my saliva glands at the back from both sides at my jawbones.

[foxglove]

Yes I do, even water tastes salty! Had this for years just sort of got used to it I guess!

[Gingerbeets in reply to foxglove]

Yes I think getting used to stuff is definitely part of this journey!

[pmmargo in reply to foxglove]

Did you find out what it is? I seem have it too.

[Hidden]

I have Sjögren’s without an apparently dry mouth and my eye dryness is well controlled.

In my case the oral medicine consultant thinks that the salty or sometimes sour taste is caused by something called Dysguesia which is apparently neuropathic. I have small fibre neuropathy everywhere - especially painful around my lips and gums. I think it means my sense of taste is skewed by faulty signals rather than by dryness.

But anyway Sjögren’s isn’t just dryness of eyes and mouth - it can present as neuropathy long before the sicca - or even imitate RA or MS as mine has done. That said, I’m soon to have an ultrasound of my parotids due to pain and blocked large salivary glands - all typical Sjögren’s.

[Gingerbeets in reply to Hidden]

Thanks that really helpful to know

[pmmargo in reply to Hidden]

Neuropathy causing saltiness sensation. I have neuropathy in my toes. So perhaps it is neurological and has spread (I guess to the taste centers in the brain?)???? Hope you are well and I appreciate hearing what you know about this. Thanks

[Hidden in reply to pmmargo]

As I don’t have specialists who know much at all about Sjögren’s I’ve had to assume it’s a mixture of altered sensation from neuropathy and altered chemistry of my saliva - both due to Sjögren’s. My parotids were fine and I’ll be seeing a Sjögren’s expert (president of the British Society of Rheumatology) privately on Monday so will hopefully learn more from her then.

[pmmargo]

I have it too...I have Parkinsons. My neurologist sis not know if it was related or a drug side effect. Hopefully not a tumor. Did you find out what it is?

[Daegi]

Hi I’ve had a really salty taste too for 10 weeks now and it’s driving me crazy. It’s relentless and I’m preoccupied with it now to the extent it’s affecting my mood. I’ve seen the dentist and he can find nothing wrong, been to the hygienist in case it was something he missed and got a scale and polish with no relief. I’ve seen the doctor who is at a loss as he had done bloods which all came back normal including B12 and glucose. I’ve tried Corsadyl mouthwash, Colgate mouthwash and changed my toothpaste to Biotene toothpaste and trued that’s mouthwash too. Only relief I get is if I suck a mint or chew chewing gum but my mouth is becoming sore with constantly doing that. The salty taste is severe, even water and tea taste horrible. Also tried antihistamines and salt and hot water rinses, I’m at a loss.