Keep reading others suffering in same as me so connect with people’s problems...

[Nurmohammed]

Hi I have all same problems I’m having so much difficult can’t walk little activity make me breathless always go to emergency hospital outpatient emergency they don’t know what is scleroderma effect on your body they keep me on my wheelchairs over 4 hours I was asked I need beds they can’t after I asked please if you can’t seen in my condition which I can’t wait longer for after another hour dr. See me which is helpless because of scleroderma Gote Kidny problem also other medication so can’t help just oxygen which can’t get hep or going more so I’m still struggling with Brithnlassnas can’t get help from royal free Hampshire Gp west-of time emergency west-off time because of scleroderma don’t have any treatment something have to get with it as I’m suffering with this scleroderma nearly 13 years or more doctor think I’m depressed!!! But we’ll good knows. I lost my kidney also had kidney Daylaysis 8 years kidney disorder did not put me on transplant listing because off scleroderma sclerosis’s! My sister asked for her kidney to Doner to me they still make issues last they put on our risk as we agreed and gone for kidney transplant I’m on transplant last 8 year so it’s not going right ! Still Keep Complint to gp also call emergency Gp send for chest X-ray after emergency permed request too still no treatment so sorry my history been shared to you and other people also al records on Nhs!!! So thanks to share your questions which is content with my...👍

[Sanmateogirl107]

YOU CAN BUY MEDICAL BEDS ON LINE (MEDICAL BEDS FOR SALE) 1,050 I GOT MINE FOR 800.00. GO SEE A IMMUNE DOCTOR DO CT OF YOUR LUNGS , PELVIS, CHEST NOW TO SEE IF THERE IS DAMAGE AND HOW THEY CAN TREAT YOU. PT, DIETICIAN., COUNSELING, DO YOU HAVE A HOBBY GET INTO IT. IT CAN HELPS WITH PAIN TO TURN DOWN THE DIAL, ALSO ASK ABOUT CARE GIVERS IN YOUR AREA WHAT IS AVAILABLE. ALSO GET SUPPORT GROUPS INFO, SUPPORT IS EVERYTHING. CARE GIVERS ARE WONDERFUL FOR SHOWERING, FOOD SHOOPPING, DOCTOR APTS, FIXING MEALS AND MORE. IT REALLY HELPS. ASK ABOUT DISABILITY ALSO STEP UP BE YOUR OWN ADVOCATE AND IF NEED BE GET A LAWYER TO HELP YOU. GOOD LUCK. I AM WITH YOU. JULIE