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Scleroderma & Raynaud's UK (SRUK)

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Raynaud’s help please new to site they kept telling me I had gout , nope now doctor says Raynaud’s

Brendab7869 profile image
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So for years they said I had gout with normal Uric acid results now they finally say Raynaud’s

I feel like I have been walking on blisters on the bottom of my toes red spots I t’s very painful any suggestions on a cream none rx that would help with that ? I’m taking fish oil and just started taking niacin but now I read that niacin can make your blood pressure low also

Can’t take the blood pressure meds cause my blood pressure is low already

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Sanmateogirl107 profile image
Sanmateogirl107

BIOFREEZE HELPS ME. TALK TO YOUR DOCTOR ABOUT MEDS GET A SECOND, THIRD OPINION NOW! MOVE TO WARMER CLIMATE. IMMUNE SOCIALIST. PAIN DOCTOR ALSO AND SUPPORT GROUPS. GET THE SUPPORT OF YOUR FAMILY. TAKE THEM TO THE DOCTOR APT WITH YOU SO THEY UNDERSTAND WHAT YOUR GOING THROUGH AND CAN HELP YOU THROUGH THIS. JOURNALING EVERY DAY. DIETICIAN, MEDITATION, HOBBY GET BACK INTO IT TRY TO TURN DOWN THE DIAL TO PAIN EVEN PET THERAPY CAN HELP, ACUPUNCTURE, ART THERAPY, TAI CHI, YOG, HAND AND FOOT PT. HOPE THAT HELPS YOU HUGS FOR A BETTER TOMORROW. I HAVE ETHEROMYALGIA ITS WORSE THAN RAYNAUD'S AND SO PAINFUL I KNOW WHAT YOUR GOING THROUGH. AMLODIPINE 10MG EVERYDAY AND LOTS OF PAIN MEDS, ANTI-INFLAMMATORIES ETC. I VOMIT, LOSE MY TEETH, MY HAIR FALLS OUT, WENT FOR BARIUM TEST BOOM THERE IT WAS CREST. I WAS LIKE WHAT! I WAS SCARED. I STARTED TO EDUCATE MY SELF ON IT READ EVERYTHING. ASK QUESTIONS, LOTF OF THEM. JULIE

Brendab7869 profile image
Brendab7869 in reply to Sanmateogirl107

Thank you much I do go to yoga and try my best to stay warm and I have a dog but can’t take meds a physical therapist told me to use my tens unit at my ankles and wrist so gong to try that 😉

Brendab7869 profile image
Brendab7869 in reply to Brendab7869

And omg yours sounds horrible prayers for you 😢🙏

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