Still not sure?: So you may have read... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Still not sure?

Frozen18 profile image
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So you may have read my previous post. My Dr queried crest which after bloods another dr told me everything came back normal but probably Raynauds. The pictures I’ve added are to see what others think of my skin I’m not sure if you can see how shiny/wrinkly etc they are do any of you have similar with anything else apart from Raynauds?

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Frozen18
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Sanmateogirl107 profile image
Sanmateogirl107

OK YOU HAVE CREST GO SEE IMMUNE SPECIALIST AND GET BLOOD TEST FOR RARE DISEASE THROUGH IMMUNE DOCTOR, RHEUMATOLOGIST NOW. RAYNAUD'S MOVE TO A WARMER CLIMATE. WEAR GLOVES TO PROTECT HANDS AND THICK SOCKS TO PROTECT FEET. I HAVE ERYTHROMELALGIA WORSE. ASK ABOUT GABAPENTIN. ASK ABOUT PAIN MEDS, ASK LOTS OF QUESTIONS PT, FOR ONE IS GOOD START. BE YOUR OWN ADVOCATE. YOU WILL FIND OUT WATER IS PAINFUL WEAR GLOVES DURING DISHES, KEEP A WEEKLY JOURNAL PARAFFIN WAX. BIOFREEZE. STAY OUT OF THE FROZEN FOOD ISLE WITH OUT GLOVES. IF YOU HAVE TO GET ICE CREAM TAKE IT HOME USE A TOWEL TO OPEN THE TOP THAT WAY YOU DO NOT BURN YOUR HANDS. DROP OBJECTS I DO IT ALL THE TIME. OK GOOD LUCK. I CAME UP POSITIVE FOR CREST AND LUPUS. I REFUSE TO QUIT STUBBORN.

LOVE JULIE OH TRY ART THERAPY

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