Still not sure?: So you may have read... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

11,088 members5,619 posts

Still not sure?

Frozen18 profile image
1 Reply

So you may have read my previous post. My Dr queried crest which after bloods another dr told me everything came back normal but probably Raynauds. The pictures I’ve added are to see what others think of my skin I’m not sure if you can see how shiny/wrinkly etc they are do any of you have similar with anything else apart from Raynauds?

Written by
Frozen18 profile image
Frozen18
To view profiles and participate in discussions please or .
1 Reply
Sanmateogirl107 profile image
Sanmateogirl107

OK YOU HAVE CREST GO SEE IMMUNE SPECIALIST AND GET BLOOD TEST FOR RARE DISEASE THROUGH IMMUNE DOCTOR, RHEUMATOLOGIST NOW. RAYNAUD'S MOVE TO A WARMER CLIMATE. WEAR GLOVES TO PROTECT HANDS AND THICK SOCKS TO PROTECT FEET. I HAVE ERYTHROMELALGIA WORSE. ASK ABOUT GABAPENTIN. ASK ABOUT PAIN MEDS, ASK LOTS OF QUESTIONS PT, FOR ONE IS GOOD START. BE YOUR OWN ADVOCATE. YOU WILL FIND OUT WATER IS PAINFUL WEAR GLOVES DURING DISHES, KEEP A WEEKLY JOURNAL PARAFFIN WAX. BIOFREEZE. STAY OUT OF THE FROZEN FOOD ISLE WITH OUT GLOVES. IF YOU HAVE TO GET ICE CREAM TAKE IT HOME USE A TOWEL TO OPEN THE TOP THAT WAY YOU DO NOT BURN YOUR HANDS. DROP OBJECTS I DO IT ALL THE TIME. OK GOOD LUCK. I CAME UP POSITIVE FOR CREST AND LUPUS. I REFUSE TO QUIT STUBBORN.

LOVE JULIE OH TRY ART THERAPY

Not what you're looking for?

You may also like...

Is diagnosis important?

Hi, I have only just realised that I have raynauds after going to the Drs with...
KristinaD profile image

Why am I suffering when it's hot????

I was diagnosed with raynauds 6 years ago and was told it was primary only, only use to get it in...
Emma020884 profile image

Should I see my GP ?

I was diagnosed with Raynauds just over a year ago .I saw the rhuematologist once he took one look...
TJme profile image

Going somewhere very cold

I just joined and have never spoken to or met another sufferer of Raynauds. I get Raynauds quite...
FlexSW19 profile image

Digital ulcer ?

Hello lovely people :) I have only had Raynauds since September last year, but my Raynauds come...
JazPont profile image

Moderation team

AnnabelSRUK profile image
AnnabelSRUKAdministrator
Chicunique27 profile image
Chicunique27Administrator
SRUKadmin profile image
SRUKadminPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.