Weakly positive

[160376]

Can some one explain what a weakly positive means I have a weakly positive for Scleroderma/ Myositis although my muscle biopsy came back normal I have Raynauds secondary, reflux short of breath have trouble swallowing some foods,I hurt all over I have just got rid of a toe ulcer,I am waiting to have test done next month from the Rheumatologist thank you

[Nurmohammed]

Hi I have all same problems I’m having so much difficult can’t walk little activity make me breathless always go to emergency hospital outpatient emergency they don’t know what is scleroderma effect on your body they keep me on my wheelchairs over 4 hours I was asked I need beds they can’t after I asked please if you can’t seen in my condition which I can’t wait longer for after another hour dr. See me which is helpless because of scleroderma Gote Kidny problem also other medication so can’t help just oxygen which can’t get hep or going more so I’m still struggling with Brithnlassnas can’t get help from royal free Hampshire Gp west-of time emergency west-off time because of scleroderma don’t have any treatment something have to get with it as I’m suffering with this scleroderma nearly 13 years or more doctor think I’m depressed!!! But we’ll good knows. I lost my kidney also had kidney Daylaysis 8 years kidney disorder did not put me on transplant listing because off scleroderma sclerosis’s! My sister asked for her kidney to Doner to me they still make issues last they put on our risk as we agreed and gone for kidney transplant I’m on transplant last 8 year so it’s not going right ! Still Keep Complint to gp also call emergency Gp send for chest X-ray after emergency permed request too still no treatment so sorry my history been shared to you and other people also al records on Nhs!!! So thanks to share your questions which is content with my...👍

[Sanmateogirl107]

immune specialist why has your doctor not sent you there. pain specialist, hand pt, as well, support group, counseling might help you. have the doctor do ct of your lungs with contrast if your not alergic to see what is going on i jusy had mine done waiting for results. raynaud's is a cold weather syndrome move to a warmer climate. wear gloves, stay warm especially your core. wear gloves in the store frozen food isle. paraffin wax is great for hands. biofreeze. ask about dietician. hope this helps sounds like fibro also, for food put it in the blender or eat pasta, soft chicken and rice, bananas, yogurt, bone broth, boost, premier protein etc. have digestive tests done. love julie