Has any one had toe ulcers

[160376]

Hi before seeing a Rheumatologist privately I was fobed off by my doctors I am 64 had Raynauds for two years in my feet so just told by doctor to wear warm socks and sent away, I had a toe ulcer that took me two and a half months to heal, I never went to the doctors because they are not interested I read that having really bad circulation in your feet you can get toe ulcers I have been told I have a autoantibody PMScl-75 Scleroderma/ Myositis and awaiting test, has any one els had toe ulcers with there Raynauds

[GlasgowHen]

That looks really sore. Unfortunately I get toe ulcers too and they are very painful. Have they offered you iloprost infusions? I have them frequently and helps to heal the ulcers. Hope you have had the ulcer checked as sometimes you need antibiotics too

[160376 in reply to GlasgowHen]

No I did not go to doctors as they are useless I had to look after it myself but this is before I found out I have the autoantibodies for scleroderma/ Myositis I have been going back and forward to doctors for two years worried about my feet going blue black I was told just wear socks or what do you want me to do about it so I did not go back but now I am having test from the rheumatologist at the hospital but I will make sure if I get another one I will go to doctors because I know now what it is and what can happen

[Hidden in reply to 160376]

I have this and like you I got fed up with docs and don’t go till now when I feel really ill I am going to go and stand my ground thanks to support on here. We must all complain as well as they continue to treat people dismissively and it’s appalling. Go to docs and get checked and if they dismiss you ask to see another doc until you get some help.good luck and best wishes

[Glynis]

Yes I have had ulcers on my toes unfortunately I ended up having the 2nd toe on both feet amputated due to the ulcers going gangrene back in 2013...I had another ulcer on the 4th toe in 2016 but thankfully after being looked after by vascular surgeon, Sclorederma specialist and podiatry, A 10 day course of Iloprost and iv antibiotics they managed to save the toe although I still get pain especially in cold weather....I attend the podiatry clinic every 4 to 6 weeks....It maybe worth you seeing a podiatrist...

Hope you get sorted.Good luck and Best wishes

[scalaclassic]

It seems we have to take our health issues into our own hands and not accept doctors dismissing our genuine complaints. I'm from warmer climes and only started noticing Reynauds in Canada which resulted in my hands changing colour and feeling cold. We then moved to France and there was a noticable change in my feet with loads of pain and ulcers which improved in Summer. I now live in Scotland and my Reynauds has become a huge problem with ulcers, colour changes and pain. Every time I make an appointment to see a doctor, I see a different one so after seeing two doctors who suggested I wear two pairs of socks, I eventually found a doctor who said I was the worst case of Reynauds he'd seen, prescribed 10mg Nefidipine 3 times a day which worked wonderfully but due to a shortage of the medication, I'm now on 10mg slow release twice a day which isn't working well at all and my ulcers and pain have returned. He has also referred me to a Rheumatologist which I'm most grateful for. Hopefully I'll get the help I need when I'm advised about an appointment with the Rheumatologist. Wishing you all the best and don't take no for an answer.

[Sanmateogirl107]

WHY DIDN'T YOUR DOCTOR SAY IMMUNE SPECIALIST, PAIN CONTROL. THAT HAS TO BE PAINFUL. GO GET A SECOND OPINION, 3RD OPINION BE YOUR OWN ADVOCATE DO NOT TAKE A DOCTOR WHO SAYS THERE IS NOTHING WRONG EXCUSE ME YOUR IN PAIN. HELLO! WARMER CLIMATE ALSO. I AM SORRY YOUR GOING THROUGH THIS. I HAD AN ULCER ON MY FINGER TOOK 2 MONTHS TO HEAL. ETHEROMYALGIA. WORSE THAN RAYNAUD'S AND PAINFUL. STARTED TO READ EVERYTHING AN ANYTHING. GET YOUR FAMILY INVOLVED IN YOUR DOCTOR APTS FOR SUPPORT, SUPPORT GROUPS ASK YOUR DOCTOR OR LOOK ON LINE. I HOPE YOU FEEL BETTER. HUGS FOR A GOOD DAY JULIE