Finger pain: So I’ve had raynauds all... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Finger pain

Gillw1978 profile image
10 Replies

So I’ve had raynauds all my life it’s gotten worse the older I get how ever last 3 days I’ve had excruciating pain in my index finger about 6 times during the day it comes in waves and has left my finger really tender any advise on what I can do

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Gillw1978 profile image
Gillw1978
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10 Replies
-missymoo profile image
-missymoo

Hi there Gillw1978

I have the exact same. I have secondary Raynauds for 11-13 years progressively worsening with excruciating index finger pain, shooting electric shock type pains and finger, if it’s knocked is ridiculously painful. I would definitely advise seeing your doctor about this worsening Raynauds you’re experiencing.

Gillw1978 profile image
Gillw1978 in reply to-missymoo

Thank you for your reply do you take any medication for your raynauds

-missymoo profile image
-missymoo in reply toGillw1978

Hi

Yes, I take 50mg losartan which isn’t really doing anything, may consider iloprost infusion. I also have systemic sclerosis. Don’t take no for an answer, it’s taken me 12 years to be finally diagnosed and start proper treatments. You definitely need bloods taken. X

pino99 profile image
pino99

Hi,

You need to get to the doctors quickly. It sounds exactly like my right index finger started four years ago. It was dismissed by doctors and I ended up with an isquemic finger and had a third of it amputated. You need either sildenafil (ideally) or illoprost. Ideally get to your consultant, as your gp will probably not have a clue and will not be able to prescribe the right treatment anyway.

Good luck.

Gillw1978 profile image
Gillw1978 in reply topino99

Thank you for your reply I don’t have a consultant just a doc who’s pretty useless

kel55 profile image
kel55 in reply toGillw1978

guess you still got an old fashioned doctor, find another! Raynauds is the spasming (vasoconstriction) of the arteries, viagra is a cheap alternative. Ask to see a specialist. Discuss the need for a universal Calcium Chanel Blocker (helps to stop the vascular constriction) and a nitrate to keep things open

Gillw1978 profile image
Gillw1978 in reply tokel55

Thank you think I’m gonna have to look for another doctor as if I want an appointment might be able to get one in April if I’m lucky lol

Dorothee profile image
Dorothee in reply tokel55

Yes that,s what I tried to say to the other lady. I was given the calcium blocker too.

They just do not want me to name it

tanya1981 profile image
tanya1981

So sorry that you’re in so much pain, Gill! Please look after yourself - don’t let the doctors underestimate your suffering- this needs immediate attention- especially so if your finger becomes blue/purple. Is there anything in particular that made the Reynauds increasingly worse over the years for you? Do you suffer from sn underlying autoimmune condiction as well?

Gillw1978 profile image
Gillw1978 in reply totanya1981

I have an under active thyroid but don’t think that’s connected I just put it down to getting older lol luckily at the min my fingers just go white haven’t had blue or purple yet.

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