Reynauds toes: Hello..i was diagnosed... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Reynauds toes

Rosieandsid profile image
5 Replies

Hello..i was diagnosed with primary reynauds two years ago. It seemed to kick off when my marriage very much suddenly ended in 2013? My feet are the worst affected and i cannot stand pressure of them now but my skin behibd and inbetween my toes is breaking down. Im hopefully seeing my gp on monday butvim very worried. Do you have any tips or advice? I have a bath every night to warm up and wear boots every day with two pairs of socks or uggs.

Thank you

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Rosieandsid profile image
Rosieandsid
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5 Replies
fairy56 profile image
fairy56

Hi rosieandsid, my marriage suddenly ended in 2011, and shortly after I was diagnosed with Systemic sclerosis and Raynauds. Are you taking any medication for the Raynauds? and have you been referred to a rheumatologist?

Rosieandsid profile image
Rosieandsid in reply tofairy56

Hello. Yes i was diagnosed by a rhemy and given nifedapine which helped but made me feel very unwell mentally and not been on anything ever since. Sudden shocks appear to have Kickstarted our illness!

Tollie profile image
Tollie

I was diagnosed with reynauds after my surgery my hands and feet are affected I use compression socks and gloves seems to help me and stay as warm as possible. I also have scleroderma it’s more severe and also no cure.

linda-l profile image
linda-l

Hi there! I have just found your post and realise it is six months old, but just in case you are not sorted out yet with your sudden onset of Rayaud's, I just wanted to assure you that stress is definitely a HUGE trigger for the disease. It has happened to me on several occasions and mine always becomes ulcerated. I have had a rough two years, with one shock after another, each causing a serious flare.

It's a horrible thing to live with and I do hope you are feeling better now

Rosieandsid profile image
Rosieandsid

Thank you all! I have been using rosehip oil on my awful shedding toes and lots better...currently being investigated for shograns too as my mouth is agony and my gums are disappearing. I think i nedd to go back to rheumy as my toes are giving me jip with the weather already! Have a good day!

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