Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,844 members • 5,412 posts

All posts for April 2013

Restless Legs

Was kept awake again last night by my Restless Legs, my left one this time. Sometimes its just my feet that are restless; nothing seems to stop them. I don't...

Was kept awake again last night by my Restless Legs, my left one this time. Some...

Carol-C

•11 years ago

5 Replies

Itchy palms of hands and soles of feet

Can't imagine that this has any relevance to Raynauds and Scleroderma but last Monday the palms of my hands began to itch and also the soles of my feet were...

Can't imagine that this has any relevance to Raynauds and Scleroderma but last M...

nannysue1950

•11 years ago

13 Replies

i get hot hands and feet when i go to bed and cant get to sleep it also wakes me up in the night

fero

•11 years ago

2 Replies

Want to take advantage of all our features? Just log in!

New to forum and hello!

Hello everyone, I'm new to this forum and wanted to say hello. I don't know anyone with either Raynaud's or Scleroderma, and feel pretty isolated sometimes....

Hello everyone, I'm new to this forum and wanted to say hello. I don't know a...

kristinaf

•11 years ago

12 Replies

Distributing information leaflets at medical appointments

Hi everyone ! I had to attend my local hospital for my monthly blood test yesterday and I took along a few information packs, which the Raynauds and...

Hi everyone ! I had to attend my local hospital for my monthly blood test yest...

living-the-dream-ssc-ray

•11 years ago

5 Replies

Private or NHS diagnosis? Due to IVF.

Hi, Both me and my mum have always suspected we have mild Raynauds, but it has never bothered us enough to get diagnosed. I think I would only have primary...

Hi, Both me and my mum have always suspected we have mild Raynauds, but it ha...

suhayla

•11 years ago

12 Replies

Is exercise good for Raynauds or does it aggravate the problem?

Hi there i have just been diagnosed with Raynauds and wanted to know is it still ok for me to go to the gym and do my usual running and exercise? I have...

Hi there i have just been diagnosed with Raynauds and wanted to know is it still...

jogoody

•11 years ago

15 Replies

Hello. everyone I am trying to design my own adaptive wallet, purse organizer etc.

This will be designed with easy closure and id card area a little bigger and a zipper opening so we can just drop our bus pass or ID in there. Trying to come...

This will be designed with easy closure and id card area a little bigger and a ...

danacetz

•11 years ago

5 Replies

Fennel tea / ? Nettle tea ? Any one tried herbal teas for helping teh GI tract ?

I have CREST & recently the digestive part of it all has become rather active :(( not in a good way :(

I have CREST & recently the digestive part of it all has become rather active :(...

AliW

•11 years ago

3 Replies

New diagnosis.

Hello, I have just been diagnosed with scleroderma after suffering from raynauds for 17 years. What a relief to find a forum where you can share your problems....

Hello, I have just been diagnosed with scleroderma after suffering from raynauds...

newbe

•11 years ago

6 Replies

Does anyone have both localized and systemic scleroderma?

Anyone else have both sides of scleroderma? 4 years ago I was diagnosed with systemic scleroderma (both limited and diffuse). I had Raynauds and pulmonary...

Anyone else have both sides of scleroderma? 4 years ago I was diagnosed with ...

flickchick777

•11 years ago

4 Replies

Small Iumps near eyes..

hello everyone i would just like to know does any1 else on occasions when ur havn a flare up get little painful pea size lump or swelling right at the outside...

hello everyone i would just like to know does any1 else on occasions when ur hav...

fruitpastle

•11 years ago

2 Replies

Other health issue

Looks like most people here have multiple health issues, i my self also have kidney disease stage 4. I see a specialist for my kidney but do you think they...

Looks like most people here have multiple health issues, i my self also have kid...

buryboy

•11 years ago

1 Reply

GERD (Reflux)

With my Scleroderma, i get GERD, which is treated with 80mgs daily of oezomeprazole (Nexium). Occasionally - like today when i forgot to take a tablet - i have...

With my Scleroderma, i get GERD, which is treated with 80mgs daily of oezomepraz...

Hidden

•11 years ago

10 Replies

Having a meltdown!!! Give me a break pleaseeeeeee!!!

I'm having a bit of a meltdown!!! Feel like I'm constantly going to the GP with different symptoms that I'm now ignoring things hoping they go away...two of my...

I'm having a bit of a meltdown!!! Feel like I'm constantly going to the GP with ...

Kerry72

•11 years ago

25 Replies

UPDATE 15/04/2013 Diagnosed - official Raynauds sufferer, but can't thank my GP enough!

***UPDATED 15 APRIL 2013*** Thank you all for your comments. A quick update from Friday when I started taking the Nifedipine - amazing difference!...

***UPDATED 15 APRIL 2013*** Thank you all for your comments. A quic...

marshall-williams

•11 years ago

9 Replies

Just a few ideas that have helped me.

Hi! This is my first blog, but second attempt. I went to add a link and lost the lot! Anyhow, I'll give you a very brief history first. The symptoms of...

Hi! This is my first blog, but second attempt. I went to add a link and lost ...

Skwiglee

•11 years ago

8 Replies

More advice sorry

I have made an appointment next Thursday at my docs, what do I ask? Don't know if I'm just use to my hands and feet but apart from the way they look I don't...

I have made an appointment next Thursday at my docs, what do I ask? Don't know i...

buryboy

•11 years ago

2 Replies

Hi all , I am taking beta blockers for anxiety and high bp. I have been told that beta blockers not suitable for Raynaud's sufferers.

G.P said give it a try and it has not adversely affected circulation Is this because anxiety reduced? - My Raynaud's always worse when tense. Cheers

G.P said give it a try and it has not adversely affected circulation Is this bec...

foxglove

•11 years ago

6 Replies

ESA/ DLA entitlement when off work sick temporarily

I have been off work sick with scleroderma related foot ulcers, and hope to be back at work in about 5 weeks. I am now on half pay. I have checked, and I...

I have been off work sick with scleroderma related foot ulcers, and hope to be b...

JemimaDoll

•11 years ago

9 Replies

Stress

Well this week is turning out to be one of the most stressful on my lifetime. As a result I now have blue lips, wonder how long this will last!! Hoping to...

Well this week is turning out to be one of the most stressful on my lifetime. A...

frostyblack

•11 years ago

4 Replies

raynauds and sweating

i have just been diagnosed with raynauds and my gp has referred me to a specialist,i must say she wasnt very helpful anyway so waiting for my appointment, been...

i have just been diagnosed with raynauds and my gp has referred me to a speciali...

vic78

•11 years ago

7 Replies

gastroscopy- I hope not!!!

Went to see my GP yesterday about my feeling of fullness when eating (early satiety) its linked to scleroderma. Anyway he suggested I stop taking the naproxen-...

Went to see my GP yesterday about my feeling of fullness when eating (early sati...

Kerry72

•11 years ago

5 Replies

My first blog, I promised myself to save my complaining for here where it is safe and no one will chastise me for it!!!!!

I feel guilty and ashamed for complaining, It's hard to think how I can survive when I am always cold and lately get and average of 4 to 5 hours sleep if I am...

I feel guilty and ashamed for complaining, It's hard to think how I can survive ...

danacetz

•11 years ago

3 Replies

Swollen fingers what to do. Repeat mouth fungus problem

My fingers on my right hand are swollen and hurting and need to be kept cool and in the morning the right hand is like a claw, all bent in, and useless like a...

My fingers on my right hand are swollen and hurting and need to be kept cool and...

Plumcake

•11 years ago

8 Replies

Advice

I was diagnosed with raynuads as a teenager now in my late 30 but never seen anybody about it, should i be asking my doc. I have noticed my hands are very dry...

I was diagnosed with raynuads as a teenager now in my late 30 but never seen any...

buryboy

•11 years ago

11 Replies

Erythromelalgia Anyone?

Has anybody else been diagnosed with Erythromelalgia and if so how was it treated? I've been given low dose Venlafaxine which helps but the side effects are...

Has anybody else been diagnosed with Erythromelalgia and if so how was it treate...

AMDP

•11 years ago

14 Replies

Shakes

Is having shakes in the hands a sympton of raynaulds

Boxingmumma

•11 years ago

4 Replies

static shocks

have bad flare up of Raynauds in hands & feet especially right foot, toes are permanently black joints swollen & the pain is unbearable, but to top it off, I...

have bad flare up of Raynauds in hands & feet especially right foot, toes are pe...

Jeanette_Ish

•11 years ago

4 Replies

Just had baby by chance in maternity unit a doc diagnosed me wit raynaulds

My daughter just got diagnosed while in hospital havin a baby she went to her own GP last week showed him the pic of hands he said she has severe case of...

My daughter just got diagnosed while in hospital havin a baby she went to her ow...

Boxingmumma

•11 years ago

5 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for April 2013

Restless Legs

Itchy palms of hands and soles of feet

i get hot hands and feet when i go to bed and cant get to sleep it also wakes me up in the night

New to forum and hello!

Distributing information leaflets at medical appointments

Private or NHS diagnosis? Due to IVF.

Is exercise good for Raynauds or does it aggravate the problem?

Hello. everyone I am trying to design my own adaptive wallet, purse organizer etc.

Fennel tea / ? Nettle tea ? Any one tried herbal teas for helping teh GI tract ?

New diagnosis.

Does anyone have both localized and systemic scleroderma?

Small Iumps near eyes..

Other health issue

GERD (Reflux)

Having a meltdown!!! Give me a break pleaseeeeeee!!!

UPDATE 15/04/2013 Diagnosed - official Raynauds sufferer, but can't thank my GP enough!

Just a few ideas that have helped me.

More advice sorry

Hi all , I am taking beta blockers for anxiety and high bp. I have been told that beta blockers not suitable for Raynaud's sufferers.

ESA/ DLA entitlement when off work sick temporarily

Stress

raynauds and sweating

gastroscopy- I hope not!!!

My first blog, I promised myself to save my complaining for here where it is safe and no one will chastise me for it!!!!!

Swollen fingers what to do. Repeat mouth fungus problem

Advice

Erythromelalgia Anyone?

Shakes

static shocks

Just had baby by chance in maternity unit a doc diagnosed me wit raynaulds

Search posts

Pinned Posts

Latest poll

How do you pronounce Raynaud's? Listen to English Cambridge Dictionary: http://bit.ly/2DmGhmz Vote now. If other then reply below.

Topics

Archive

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for April 2013

Restless Legs

Itchy palms of hands and soles of feet

i get hot hands and feet when i go to bed and cant get to sleep it also wakes me up in the night

New to forum and hello!

Distributing information leaflets at medical appointments

Private or NHS diagnosis? Due to IVF.

Is exercise good for Raynauds or does it aggravate the problem?

Hello. everyone I am trying to design my own adaptive wallet, purse organizer etc.

Fennel tea / ? Nettle tea ? Any one tried herbal teas for helping teh GI tract ?

New diagnosis.

Does anyone have both localized and systemic scleroderma?

Small Iumps near eyes..

Other health issue

GERD (Reflux)

Having a meltdown!!! Give me a break pleaseeeeeee!!!

****UPDATE 15/04/2013**** Diagnosed - official Raynauds sufferer, but can't thank my GP enough!

Just a few ideas that have helped me.

More advice sorry

Hi all , I am taking beta blockers for anxiety and high bp. I have been told that beta blockers not suitable for Raynaud's sufferers.

ESA/ DLA entitlement when off work sick temporarily

Stress

raynauds and sweating

gastroscopy- I hope not!!!

My first blog, I promised myself to save my complaining for here where it is safe and no one will chastise me for it!!!!!

Swollen fingers what to do. Repeat mouth fungus problem

Advice

Erythromelalgia Anyone?

Shakes

static shocks

Just had baby by chance in maternity unit a doc diagnosed me wit raynaulds

Search posts

Pinned Posts

Latest poll

How do you pronounce Raynaud's? Listen to English Cambridge Dictionary: http://bit.ly/2DmGhmz Vote now. If other then reply below.

Topics

Archive

UPDATE 15/04/2013 Diagnosed - official Raynauds sufferer, but can't thank my GP enough!