I'm new to this forum and wanted to say hello. I don't know anyone with either Raynaud's or Scleroderma, and feel pretty isolated sometimes. I'm a single mom with two kids who are incredibly supportive. Although he either won't admit it, or doesn't know it, my former husband couldn't manage living with someone who had to cope with the issues involved with these diseases, and left.
My personal progression started with Lupus (SLE) 11 years ago, followed by auto immune thyroiditis, then Celiac, then Raynaud's, and finally in November - Systemic Scleroderma. Lately, I've been having trouble with the "bending parts" - knees, knuckles, etc. I've got the "red dots" and other peculiar things that crop up. I teach my two children, work part time and am taking classes to become an estate agent. I am hoping that I will be able to make enough money to support my children and have the flexibility to take it easy when things flare up. I feel like I have to hurry because it seems every year it gets more and more difficult physically. If anyone has any suggestions on how to manage everything without losing it, I'd really welcome it. There are some days where I feel like I just can't make it.
I hope the best for everyone here.