Covid and PMR

[Hopeful424]

I have PMR and contracted Covid. Have any of you had Covid and taken Paxlovid? Were there side effects?

[DorsetLady PMRGCAuk volunteer]

Loads have been there before you, but have you actually been offered Paxlovid - not everyone is given it. Latest info -

nhs.uk/conditions/covid-19/...

[Hopeful424 in reply to DorsetLady]

Yes, my rheumatologist called it in for me. But, I was told by my cardiologist to hold off on Eliquis while taking Paxlovid. That's a little scary!

[DorsetLady PMRGCAuk volunteer in reply to Hopeful424]

Looking them up -the Paxlovid can increase the concentration of Apixaban/Eliquis -and marked as severe.

I don't have coronary issues, but my late hubby did, so I think I would have suggested he didn’t take the paxlovid -and continued the Eliquis…

Suppose it depends on how bad your Covid is…and how serious your coronary issues.

Can you get advice from local pharmacist or NHS 111.

Edit -re PMRpro’s comment -ignore the reference to NHS 111…

[PMRpro Ambassador in reply to DorsetLady]

Fairly sure Hopeful424 is in the USA.

My cardiologists would have a fit at the concept of 5 days without anticoags!! In the UK it is only the hghest risk patients who are given Paxlovid at all.

[DorsetLady PMRGCAuk volunteer in reply to PMRpro]

Okay thanks -reiterates the need to enter country of residence in profile😊

[PMRpro Ambassador in reply to DorsetLady]

It does indeed!!

[Hopeful424 in reply to PMRpro]

Yep, in the USA. Praying I do not rebound!

[Downtime]

I asked for it and got it. Upset my stomach a bit but nothing much.

[Hope_full]

I had Covid last July and was given Paxlovid. FYI, my wife (does not have PMR, had Covid a year ago and also took Paxlovid). I had no side effects that I can remember, except…the same as my wife, I developed rebound Covid just like my wife when she took it, a few days after the paxlovid.

[winfong in reply to Hope_full]

Exact same here. The second go-around, though, was much easier than the first

[liz6620 in reply to Hope_full]

I too had Covid late last May and was assessed via 111 and given Paxlovid. I remember developing a very unpleasant strong metallic taste in my mouth (of which I had been warned anyway) but Covid appeared to lessen speedily, though like you Hope_full in a few days I developed rebound Covid. I got the worst dry cough I have ever experienced and partial loss of my voice for at least 3 weeks, plus testing Covid positive for what seemed an unusually extended time too. My voice did recover eventually but it felt and sounded "strained" for several weeks.

[Hopeful424]

Thanks for all this feedback. I had to stop Paxlovid because it raised my blood pressure significantly. I will probably rebound also. Nasty stuff all around.