Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,234 posts

All posts for July 2024

GCA flair?

Hello, I have been dealing with GCA for over a year. For the last few months things have been great and I was able to reduce my prednisone, very slowly to 4...

Hello, I have been dealing with GCA for over a year. For the last few months thi...

Plains

•4 months ago

4 Replies

physical difference Am and afternoon

I am on a 10 mg tapering dose of Pred with 20mgs weekly of Methaltrexate,. Mornings are hell … hands back bum all feel very painful I take my Pred as soon as...

I am on a 10 mg tapering dose of Pred with 20mgs weekly of Methaltrexate,. Morn...

Darcy2000

•4 months ago

8 Replies

Please share experience or advice re Risedronic acid and zoledronic acid use for low T score/ osteoporosis in GCA/PMR.

I have recently had a follow up Dexa scan. The last one was 2 years ago. I have GCA and PMR. At 20 mg pred and reducing after a recent flare of GCA. The scan...

I have recently had a follow up Dexa scan. The last one was 2 years ago. I have...

Golfers1

•4 months ago

18 Replies

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Tapering after flare...

Hello everyone. I had to go up to 5mg from 2.5 after a perfect storm of jab, flu , extreme fatigue and buzzing head...this was suggested by Rheumy helpline who...

Hello everyone. I had to go up to 5mg from 2.5 after a perfect storm of jab, flu...

Temoral

•4 months ago

7 Replies

What IS "Manageable" Pain?

I have been wanting to ask this particular question for well over a year I suppose, and I'm not quite sure why I haven't, but the post that I read this...

I have been wanting to ask this particular question for well over a year I supp...

enduros

•4 months ago

56 Replies

Slightly complicated query

Hello PMR Brains I am currently three and a half weeks post op from an unplanned hip replacement. Prior to this unfortunate tripping over a wall, I was on...

Hello PMR Brains I am currently three and a half weeks post op from an unplanne...

marionofnorwich

•4 months ago

15 Replies

Update do i have PMR/GCA

Just a update after being refused a second appinion i spoke to the rhumy department for a answer as to why,was told the dr i was supposed to see recomended i...

Just a update after being refused a second appinion i spoke to the rhumy departm...

pink123floyd

•4 months ago

7 Replies

prednisone reduction advice.

DL. Could you send me a link to the reduction guide. I have managed to reduce gradually from 15mg to 10mg with no ill effects. I’m a little unsure how long I...

DL. Could you send me a link to the reduction guide. I have managed to reduce gr...

Tamla1964

•4 months ago

6 Replies

prednisone reduction advice.

DL. Could you send me a link to the reduction guide. I have managed to reduce gradually from 15mg to 10mg with no ill effects. I’m a little unsure how long I...

DL. Could you send me a link to the reduction guide. I have managed to reduce gr...

Tamla1964

•4 months ago

3 Replies

Help with diagnosis

Good morning, sorry for the long post. Has anyone else been in the same situation / can advise of their story. I had bloods taken in April my Esr was 41,...

Good morning, sorry for the long post. Has anyone else been in the same situat...

Cjbe

•4 months ago

19 Replies

Four months into GCA and now suspected trigeminal neuralgia - updated to dental

Update: now confirmed dental (after being told definitely not). On Amoxilcillin for 10 days for an infection. Relieved although I could have done without the...

Update: now confirmed dental (after being told definitely not). On Amoxilcillin ...

Wildlifephotographer

•4 months ago

18 Replies

MTX addition. Too early?

New to group. Thanks in advance to all trying to educate. Diagnosed withPMR with GCA components. 18 weeks on Prednisone. Starting at 15mg weaned to 10 mg...

New to group. Thanks in advance to all trying to educate. Diagnosed withPMR wit...

THClover

•4 months ago

16 Replies

collagen supplement

Having PMR since 2021 my Hair has now given up and become a wavy mess. I am on 6.5 of Prednisolone and have had a few flares. I wanted to know has anyone tried...

Having PMR since 2021 my Hair has now given up and become a wavy mess. I am on 6...

jsk10

•4 months ago

32 Replies

PMR/GCA monitoring and bone supplements

Hi recently diagnosed with PMR and just started course of steroids in the last week. Doctor has now sent me the tapering programme for following year. As I...

Hi recently diagnosed with PMR and just started course of steroids in the last w...

Sunshine8888

•4 months ago

13 Replies

So Far So Good Except !!

I seem to have settled into the DL slow taper regeme quite well, next week will be week 5 of taper 4.5 - 4.0 so I will be on 4mg Pred each day - providing I do...

I seem to have settled into the DL slow taper regeme quite well, next week will ...

Golf-1

•4 months ago

24 Replies

question

I started tapering prednisone 10 one day 5 the next for 4 weeks starting 25/6 and since Thursday all of my symptoms are back well my pleural effusion is...

I started tapering prednisone 10 one day 5 the next for 4 weeks starting 25/6 a...

Numptybrain

•4 months ago

12 Replies

Difficulty in getting bone scan results

Hi there I had a bone scan in October last year and after months of chasing finally got a call from my GP surgery on 7 June to inform me they had my results,...

Hi there I had a bone scan in October last year and after months of chasing fi...

Lottieandlola

•4 months ago

12 Replies

Tingling hands, arm and leg occurrence at 5 mg slow tapering, in my 3rd year since PMR diagnosis.

Has anyone had this experience please?I'm familiar with tingling in my left hand since carpal tunnel surgery some years ago, so when this started in my right...

Has anyone had this experience please?I'm familiar with tingling in my left hand...

waltztherapy

•4 months ago

29 Replies

Re hospital bed

I've fibro . Polymyalgia rheuma and just suffering with GCA in hospital on 1000mg of steroids throw IV . For 3 days. I'm just wondering if any one gets any...

I've fibro . Polymyalgia rheuma and just suffering with GCA in hospital on 1000m...

Mouse61

•4 months ago

12 Replies

acupuncture- to have or have not

following on my post about my hubby contemplating having acupuncture for his cervical stenosis. He was talking to someone today (a neighbour) who is a...

following on my post about my hubby contemplating having acupuncture for his cer...

Doraflora

•4 months ago

27 Replies

Respect and Kindness

I just feel it might be a good time to remind ourselves of a few considerations when communicating on our forum. I've been on this forum for over five years...

I just feel it might be a good time to remind ourselves of a few considerations ...

Kendrew

•4 months ago

58 Replies

Local Consultant who understands PMR

I think I've seen it mentioned that there is a list somewhere of Rheumatologists who really understand PMR. Can someone point me in the right direction...

I think I've seen it mentioned that there is a list somewhere of Rheumatologists...

Countrykitten

•4 months ago

10 Replies

cannabis oil

hi all, I know there has been some discussion in the past regarding the use of cannabis oil: helpful for us?? unfortunately I can t find it back. Any...

hi all, I know there has been some discussion in the past regarding the use of...

Kaaswinkel72

•4 months ago

6 Replies

Do I have PMR or not: that is the question?

Hello All My first post. I have update my profile with the history since first diagnosed in August 2021, I will try to avoid to much repetition. In essence...

Hello All My first post. I have update my profile with the history since first ...

Cube625

•4 months ago

30 Replies

GCA-Weakness

I’m having weakness in my legs when I get up from sitting for awhile. When I’m walking for a little bit weakness goes away. Anybody experienced this?

I’m having weakness in my legs when I get up from sitting for awhile. When I’m w...

LRevell

•4 months ago

7 Replies

Recurring symptoms, bit panicky

I've already posted once when I was first diagnosed with GCA and got loads of good advice, info, reassurance. So grateful. The problem now is that after 12...

I've already posted once when I was first diagnosed with GCA and got loads of go...

Blondgrassblowing

•4 months ago

19 Replies

Advice

Can anyone advise if it is best to persevere without prednisolone when still in pain or should we take a small dose to try to keep the inflammation under...

Can anyone advise if it is best to persevere without prednisolone when still in ...

Shandylowe

•4 months ago

12 Replies

Neutrophils

Hi everyone new here. I've just got my bloods back from gp and I have low white cell count (neutrophils) this leaves me open to infection as I'm sure your all...

Hi everyone new here. I've just got my bloods back from gp and I have low white ...

Headpain24

•4 months ago

4 Replies

Link to Dr Mackie's recent talk

Can't find the link given recently. Please could you give it again?

Steal

•4 months ago

1 Reply

ferritin levels high - abdominal scan booked.

hello concerned about my gp referring me for abdominal and pelvic ultrasound because of my ferritin levels. May 185 June 205 July 191 My Google...

hello concerned about my gp referring me for abdominal and pelvic ultrasound be...

NewPMR53

•4 months ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2024

GCA flair?

physical difference Am and afternoon

Please share experience or advice re Risedronic acid and zoledronic acid use for low T score/ osteoporosis in GCA/PMR.

Tapering after flare...

What IS "Manageable" Pain?

Slightly complicated query

Update do i have PMR/GCA

prednisone reduction advice.

prednisone reduction advice.

Help with diagnosis

Four months into GCA and now suspected trigeminal neuralgia - updated to dental

MTX addition. Too early?

collagen supplement

PMR/GCA monitoring and bone supplements

So Far So Good Except !!

question

Difficulty in getting bone scan results

Tingling hands, arm and leg occurrence at 5 mg slow tapering, in my 3rd year since PMR diagnosis.

Re hospital bed

acupuncture- to have or have not

Respect and Kindness

Local Consultant who understands PMR

cannabis oil

Do I have PMR or not: that is the question?

GCA-Weakness

Recurring symptoms, bit panicky

Advice

Neutrophils

Link to Dr Mackie's recent talk

ferritin levels high - abdominal scan booked.

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