So Far So Good Except !!

[Golf-1]

I seem to have settled into the DL slow taper regeme quite well, next week will be week 5 of taper 4.5 - 4.0 so I will be on 4mg Pred each day - providing I do not get too excited tomorrow watching England v Switzerland !!!!

The only thing that is not good is the pain in my right hand, I have mentioned this before as it is something I have had pretty much since diagnosed with PMR, April 2022.

The pain is getting worse to the point of being unbearable and restricting thigs I can do, does it follow that as we reduce Pred to lower levels, muscular pain will get proportionately worse? and has anybody any idea if this type of pain will go away if and when PMR goes away?

[DorsetLady PMRGCAuk volunteer]

Many seem to develop carpel tunnel syndrome [CTS] alongside PMR - so perhaps get that checked… at higher doses it was probably masked.

There are loads of posts on CTS - so perhaps do a search on subject.

.. and please don’t get too excited tomorrow - my tapering plans haven’t necessarily factored that in..

although having seen the results and chat [although not the games ] not sure exciting is the word.. stressful yes! But enjoy anyway…

I’ll be watching the rugby rather than football…

[Charlie1boy in reply to DorsetLady]

So will I. Ever hopeful!

[DorsetLady PMRGCAuk volunteer in reply to Charlie1boy]

Indeed… 😊

[PMRpro Ambassador in reply to DorsetLady]

Rugby?

[DorsetLady PMRGCAuk volunteer in reply to PMRpro]

All our teams are on tour in the southern hemisphere for a few weeks …, but non on terrestrial tv of course..

[PMRpro Ambassador in reply to DorsetLady]

Ah so. No chance here either I suspect - Silverstone F1 weekend. So I will leave and wander further north! In the rain ...

[DorsetLady PMRGCAuk volunteer in reply to PMRpro]

Tipping it down here as well - harrumph.

[PMRpro Ambassador in reply to DorsetLady]

Been OK here on north Yorkshire coast today.

[Bachfugue in reply to PMRpro]

Good to hear you’re back !

[PMRpro Ambassador in reply to Bachfugue]

On to the next stage today ...

[Missus835 in reply to PMRpro]

All the best Pro on your return to UK.🌷

[Pixix in reply to DorsetLady]

So sick & fedup by this! We are two big rugby fans, & we’re really excited…until we found we couldn’t watch it! We only have the TV on about two hours each day, & have so much recorded material, so no incentive to pay for more! Grrrrrgh! Envy…..

[DorsetLady PMRGCAuk volunteer in reply to Pixix]

Mind you - nails bitten this morning…..🤨

[Golf-1]

I will be watching all of those things above, but how about my hand ??, it might stop me holding a pint !!!!!!!!!

[PMRpro Ambassador in reply to Golf-1]

You have 2 - hands that is ...

[DorsetLady PMRGCAuk volunteer in reply to Golf-1]

I doubt it very much…never yet met a man who can manage to hold a pint! 🍺

[PMRpro Ambassador in reply to DorsetLady]

Ouch!!!

[Golf-1]

There are some things a man can do however much pain he is in, and I can still hold a glass in both hands, these days it is more likely to be a wine glass rather than a beer glass, or one in each😉😉

I beleive it is called multy tasking

[DorsetLady PMRGCAuk volunteer in reply to Golf-1]

That’s a first then 😊

[Golf-1 in reply to DorsetLady]

Ok I give in, I do only hold one glass at a time. 🥴 but will this pain ever go away? or do I need to have something stronger in the glass?

[DorsetLady PMRGCAuk volunteer in reply to Golf-1]

Maybe have a look at this re CTS -also includes some exercises that may help … but as I said it’s very often connected with PMR and at higher doses the pain may have been masked. Many wear a wrist supports- but you probably do need to see GP and be referred. Bcol has issues so have linked a recent post - you might want to look at his profile

nhs.uk/conditions/carpal-tu...

healthunlocked.com/pmrgcauk...

[Bcol in reply to Golf-1]

Started writing this before DL's latest post popped up. I've posted a few times on my CTS. Initially I found going back up to 10.0mg sorted the problem ( during Covid so see earlier posts) and it didn't return until I got back down to 2.0mg or 3.0 mg. After Covid decided the best thing was surgery so saw doc and was reffered upwards, specialists decided no other tests were needed and I'm on the list for surgery on both hands/wrists. Supports/splints help and I'm finding that I'm wearing them during the day now as well as night time. I have severe muscle wastage on left hand. It's inflammation, like PMR so normal pain relief, OTC or prescribed has no effect. Big increase in Pred would probably help but wine/gin/rum your choice!!! You probably need to get to docs and get a proper diagnosis and work from there.

[DorsetLady PMRGCAuk volunteer in reply to Bcol]

TY

[Mfaepink1973]

Definitely sounds like carpal tunnel inflammation and the only real cure is an operation usually under local anaesthetic. GP will probably send you for a nerve test to confirm. Best to get it dealt with asap as the surgeon told me it stops any further damage but doesn’t undo muscle damage already done. I’ve had both wrists done and it’s a fairly minor op with quick recovery. The sooner you get it done the sooner you’ll be able to hold that pint!