Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,470 members • 38,420 posts

All posts for May 2024

covid plan

hello all. Further to my message yesterday about cold v flare, I have just tested positive for COVID so I am after advice. Rest, obviously but I am planning to...

hello all. Further to my message yesterday about cold v flare, I have just teste...

marionofnorwich

•10 days ago

21 Replies

Should I take a bisphosphonate? A scientific analysis and discussion of why ...

There has been quite a lot of dicussion about this recently and I thought I would give you this link to read the background. But this quote certainly gives a...

There has been quite a lot of dicussion about this recently and I thought I woul...

PMRpro

Ambassador•10 days ago

57 Replies

blood sugar

I was on 25mg pred about to drop to 30 when vision became blurred put up to 30 after blood test showed I needed towas told to do blood sugar level and its 9.2...

I was on 25mg pred about to drop to 30 when vision became blurred put up to 30 a...

Alliekat65

•10 days ago

8 Replies

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Low carbs

Im 2 years in on my PMR journey with a really bad flare last July. Which took me back to the beginning. After reading on here about eating a low carb diet. I...

Im 2 years in on my PMR journey with a really bad flare last July. Which took m...

LilyRose19

•10 days ago

14 Replies

Nutrition advice for pred users

I came across this https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9080102/ Nutritional recommendations for patients undergoing prolonged glucocorticoid...

I came across this https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9080102/ Nutri...

agingfeminist

•10 days ago

20 Replies

Pred side effects…memory

I have been on Prednisone for 5/years for PMR and GCA . I have had a pretty good run with no major side effects until this last flare 20 mg and my mind is not...

I have been on Prednisone for 5/years for PMR and GCA . I have had a pretty good...

Darcy2000

•10 days ago

5 Replies

Androlic acid

8 yrs ago I was diagnosed with breast cancer , I had lumpectomy , chemo , radio therapy . ongoing hormonal blockers for another 4 yrs, my oncologist wants me...

8 yrs ago I was diagnosed with breast cancer , I had lumpectomy , chemo , radio ...

SjDexDolly

•11 days ago

10 Replies

Dexa Scan Results

"This patient has low bone mass." No surprise really. I know what to expect or do I? I am tapering from 10mg yet again and down to 7mg Quite a few...

"This patient has low bone mass." No surprise really. I know what to expect ...

Hidden

•11 days ago

14 Replies

First Rheumy Visit, Lymphocyte/Neutrophil

Luckily, my rheumatologist was one I saw while in the hospital. She listened, explained, and answered questions. She is treating me for GSA even though my...

Luckily, my rheumatologist was one I saw while in the hospital. She listened, e...

Moaningxcat

•11 days ago

13 Replies

How long to stay on lower dose when tapering

Been on pred for over 7 yrs, got down to 4 mgs Dec 2022, then haf gca symtons rheumy increase to 49 again, had several issues in 2023, back, gluteal tears,...

Been on pred for over 7 yrs, got down to 4 mgs Dec 2022, then haf gca symtons rh...

arvine

•11 days ago

8 Replies

How long to stay on lower dose when tapering

Been on pred for over 7 yrs, got down to 4 mgs Dec 2022, then haf gca symtons rheumy increase to 49 again, had several issues in 2023, back, gluteal tears,...

Been on pred for over 7 yrs, got down to 4 mgs Dec 2022, then haf gca symtons rh...

arvine

•11 days ago

5 Replies

trigger fingers

I have been dealing with pmr for 8-9 years. Started at 15 mg. Been up and down from that for the last few years. I reached 7 mg this month. Started getting a...

I have been dealing with pmr for 8-9 years. Started at 15 mg. Been up and down f...

Linny3

•11 days ago

9 Replies

Dexa scan refusal

Hi, this is my first post after being diagnosed with PMR November 2023. The information from everyone on this forum has been invaluable, thank you. I started...

Hi, this is my first post after being diagnosed with PMR November 2023. The inf...

Yorkgirl2

•11 days ago

88 Replies

flare and a cold - what do I do?

hello all. In year 4 of PMR which started April 2020 , had just got down to 3mg in April 2022 and then got COVID. I didn’t know about sick day rules (or this...

hello all. In year 4 of PMR which started April 2020 , had just got down to 3mg ...

marionofnorwich

•11 days ago

7 Replies

Prednisolone and Dsyphagia

Hi Has any had any swallowing issues while reducing from prednisolone. That seems to be my latest annoying problem. It seems to be getting worse.

Hi Has any had any swallowing issues while reducing from prednisolone. That seem...

Raewynne

•11 days ago

5 Replies

Can’t remember!!!

My lovely gurus! Just had my Covid vax and can’t remember if we raise our Pred dose for a few days to avoid a flare. Showing my age now! 😜 I’m on 4.5mg....

My lovely gurus! Just had my Covid vax and can’t remember if we raise our Pred d...

Smokygirl

•11 days ago

6 Replies

High dose Pred side effects

Hi I’m afraid I need some advice again please. Having been diagnosed with PMR over 2 years ago, I was down to 4mg Pred although looking back I was in a lot of...

Hi I’m afraid I need some advice again please. Having been diagnosed with PMR o...

Apple6

•11 days ago

20 Replies

Why is the pain and stiffness much worse in the morning

I find that pain and stiffness lasts all morning but seems to improve if i have a rest after lunch. This does seem to have got worse since I reduced a paltry...

I find that pain and stiffness lasts all morning but seems to improve if i have ...

RachelJDH

•11 days ago

8 Replies

A series of flares

I was first diagnosed with PMR at the end of 2018 after a very stressful journey to Australia, and since then I have managed to reduce to 3.5 mg of prednisone....

I was first diagnosed with PMR at the end of 2018 after a very stressful journey...

parsifalwiz

•11 days ago

7 Replies

Not another flare I hope?

Good morning friends.Feeling a bit paranoid regarding these symptoms I am having and not sure what to do.Night before last,a sharp pain ,in central neck( back)...

Good morning friends.Feeling a bit paranoid regarding these symptoms I am having...

Angelsmummy

•11 days ago

6 Replies

on holiday and a hard lesson learned with this disease.

since reducing effectively to 4mg (from 15mg in Oct 23) and getting on with life albeit at a much steadier pace, my Dr has recommended 1mg reduction every 8...

since reducing effectively to 4mg (from 15mg in Oct 23) and getting on with life...

MalloryMoss

•11 days ago

5 Replies

New to PMR

I have recently been diagnosed with PMR, symptoms cleared up dramatically on 20mg prednisolone, slowing reducing and now on 12.5mg. I am having some muscle...

I have recently been diagnosed with PMR, symptoms cleared up dramatically on 20m...

PurplePiggies

•12 days ago

4 Replies

Methotrexate

Hi everyone, How daft am I. I really thought I’d almost kicked my PMR into the long grass, after tapering down to 1.5 mg after 6 years. Pride and fall come...

Hi everyone, How daft am I. I really thought I’d almost kicked my PMR into the ...

Golden20

•12 days ago

5 Replies

Tapering with PMR, Osteoporosis, Gall Bladder (new) and upcoming Cataract Surgery (second eye)

I feel like crap. I don't feel I should be tapering anything at this point. Was just in hospital for 3 days end of April. Gall bladder is shot. I've done...

I feel like crap. I don't feel I should be tapering anything at this point. Was ...

Missus835

•12 days ago

28 Replies

Understanding immune issues

Could we recommend the Radio 4 series, "The Immune Mind by Monty Lyman" that ran at 11.45am all this week as it is very helpful in seeking to understand where...

Could we recommend the Radio 4 series, "The Immune Mind by Monty Lyman" that ran...

Kailacobweb

•12 days ago

1 Reply

Flare treatment

Have had a ‘good’ run from 30 to 7mg but been feeling rotten of late. It’s like my steroids, HRT snd Levothyroxine have all suddenly stopped working and my...

Have had a ‘good’ run from 30 to 7mg but been feeling rotten of late. It’s like...

Body_bonkers

•12 days ago

17 Replies

Lots of pain

Thanks again to those who responded to me re pain all over wondering if it was a flare. Finally sorted out. I have a pinched nerve in my lower spine and...

Thanks again to those who responded to me re pain all over wondering if it was a...

crafty_grannie

•12 days ago

8 Replies

Low Red Blood Cell count and GFR kidney count blamed on PMR. Is this true?

I have just had some blood test results. There are several results which need looking at but someone has added "Normal for this patient". When I have asked...

I have just had some blood test results. There are several results which need l...

Motida

•12 days ago

4 Replies

GCA and prednisolone reduction while taking Leflunomide

Hi everyone, I thought I'd give you an update (while apologising for not being around recently). GCA diagnosed last December (PMR previously diagnosed 2020)....

Hi everyone, I thought I'd give you an update (while apologising for not being a...

DogAgilityObsessed

•12 days ago

6 Replies

STUCK IN A PRED RUT

I first posted in 2018.. Since then I have managed to reduce from 20mg with pain and flares to 7mg. I am having nose bleeds and the ENT Consultant has told...

I first posted in 2018.. Since then I have managed to reduce from 20mg with pai...

Pmrmolly2018

•12 days ago

35 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2024

covid plan

Should I take a bisphosphonate? A scientific analysis and discussion of why ...

blood sugar

Low carbs

Nutrition advice for pred users

Pred side effects…memory

Androlic acid

Dexa Scan Results

First Rheumy Visit, Lymphocyte/Neutrophil

How long to stay on lower dose when tapering

How long to stay on lower dose when tapering

trigger fingers

Dexa scan refusal

flare and a cold - what do I do?

Prednisolone and Dsyphagia

Can’t remember!!!

High dose Pred side effects

Why is the pain and stiffness much worse in the morning

A series of flares

Not another flare I hope?

on holiday and a hard lesson learned with this disease.

New to PMR

Methotrexate

Tapering with PMR, Osteoporosis, Gall Bladder (new) and upcoming Cataract Surgery (second eye)

Understanding immune issues

Flare treatment

Lots of pain

Low Red Blood Cell count and GFR kidney count blamed on PMR. Is this true?

GCA and prednisolone reduction while taking Leflunomide

STUCK IN A PRED RUT

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