Im 2 years in on my PMR journey with a really bad flare last July. Which took me back to the beginning. After reading on here about eating a low carb diet. I got out my 800 fast keto book and started cooking from it. Where I don’t stick to 800 I do try to be no more than 1,200 calories. And no more than 60grms of carbs. This was 4 weeks ago. I’ve lost 15 pounds ! I don’t eat bread , potatoes, rice or biscuits. I can’t believe how much better I feel. Whilst PMR is still there I’m currently on 10.5mg pred. I can’t believe how much more energy I hv. I try not to snack but if I feel like I need a lift I eat mixed seeds or nuts. But to be honest I don’t feel hungry. Just wanted to share as I know we struggle with our weight due to the steroids . I hvnt been able to diet like this for years. I’m just not hungry. In the book there’s a recipe for flourless muffins I eat 2 of those for lunch instead of a sandwich. They’re really filling. And can be reheated. Hubby loves them too.
Also for those who’s hair has been affected with steroids I invested in a hair topper from a good wig salon. It’s amazing how much more confidence it gives you when your hair looks lovely. My hair has broken off all over. The topper is a game changer for me and it looks so natural. Every one comments on my hair not realising it’s not mine!
Hope this post can help some of you on your journey.