Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,885 posts

All posts for May 2024

High dose Pred side effects

Hi I’m afraid I need some advice again please. Having been diagnosed with PMR over 2 years ago, I was down to 4mg Pred although looking back I was in a lot of...

Hi I’m afraid I need some advice again please. Having been diagnosed with PMR o...

Apple6

•5 months ago

20 Replies

Why is the pain and stiffness much worse in the morning

I find that pain and stiffness lasts all morning but seems to improve if i have a rest after lunch. This does seem to have got worse since I reduced a paltry...

I find that pain and stiffness lasts all morning but seems to improve if i have ...

RachelJDH

•5 months ago

8 Replies

A series of flares

I was first diagnosed with PMR at the end of 2018 after a very stressful journey to Australia, and since then I have managed to reduce to 3.5 mg of prednisone....

I was first diagnosed with PMR at the end of 2018 after a very stressful journey...

parsifalwiz

•5 months ago

7 Replies

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Not another flare I hope?

Good morning friends.Feeling a bit paranoid regarding these symptoms I am having and not sure what to do.Night before last,a sharp pain ,in central neck( back)...

Good morning friends.Feeling a bit paranoid regarding these symptoms I am having...

Angelsmummy

•5 months ago

6 Replies

on holiday and a hard lesson learned with this disease.

since reducing effectively to 4mg (from 15mg in Oct 23) and getting on with life albeit at a much steadier pace, my Dr has recommended 1mg reduction every 8...

since reducing effectively to 4mg (from 15mg in Oct 23) and getting on with life...

MalloryMoss

•5 months ago

5 Replies

New to PMR

I have recently been diagnosed with PMR, symptoms cleared up dramatically on 20mg prednisolone, slowing reducing and now on 12.5mg. I am having some muscle...

I have recently been diagnosed with PMR, symptoms cleared up dramatically on 20m...

PurplePiggies

•5 months ago

4 Replies

Methotrexate

Hi everyone, How daft am I. I really thought I’d almost kicked my PMR into the long grass, after tapering down to 1.5 mg after 6 years. Pride and fall come...

Hi everyone, How daft am I. I really thought I’d almost kicked my PMR into the ...

Golden20

•5 months ago

5 Replies

Tapering with PMR, Osteoporosis, Gall Bladder (new) and upcoming Cataract Surgery (second eye)

I feel like crap. I don't feel I should be tapering anything at this point. Was just in hospital for 3 days end of April. Gall bladder is shot. I've done...

I feel like crap. I don't feel I should be tapering anything at this point. Was ...

Missus835

•5 months ago

28 Replies

Understanding immune issues

Could we recommend the Radio 4 series, "The Immune Mind by Monty Lyman" that ran at 11.45am all this week as it is very helpful in seeking to understand where...

Could we recommend the Radio 4 series, "The Immune Mind by Monty Lyman" that ran...

Kailacobweb

•5 months ago

1 Reply

Flare treatment

Have had a ‘good’ run from 30 to 7mg but been feeling rotten of late. It’s like my steroids, HRT snd Levothyroxine have all suddenly stopped working and my...

Have had a ‘good’ run from 30 to 7mg but been feeling rotten of late. It’s like...

Body_bonkers

•5 months ago

17 Replies

Lots of pain

Thanks again to those who responded to me re pain all over wondering if it was a flare. Finally sorted out. I have a pinched nerve in my lower spine and...

Thanks again to those who responded to me re pain all over wondering if it was a...

crafty_grannie

•5 months ago

8 Replies

Low Red Blood Cell count and GFR kidney count blamed on PMR. Is this true?

I have just had some blood test results. There are several results which need looking at but someone has added "Normal for this patient". When I have asked...

I have just had some blood test results. There are several results which need l...

Motida

•5 months ago

4 Replies

GCA and prednisolone reduction while taking Leflunomide

Hi everyone, I thought I'd give you an update (while apologising for not being around recently). GCA diagnosed last December (PMR previously diagnosed 2020)....

Hi everyone, I thought I'd give you an update (while apologising for not being a...

DogAgilityObsessed

•5 months ago

6 Replies

STUCK IN A PRED RUT

I first posted in 2018.. Since then I have managed to reduce from 20mg with pain and flares to 7mg. I am having nose bleeds and the ENT Consultant has told...

I first posted in 2018.. Since then I have managed to reduce from 20mg with pai...

Pmrmolly2018

•5 months ago

35 Replies

FLARE OR LOW CORTOSOLE

Hi all, please I need advice I really value the sound advice given on this site.I started tapering prednesolone in March from 40mg, everything was going OK...

Hi all, please I need advice I really value the sound advice given on this site....

Den73

•5 months ago

13 Replies

GCA inflammatory marker up again

I was diagnosed with GCA. 6mnths ago,seem to be continuesly taking 2steps forward and two Steps back.I have been on 12.5 for 2wks and my bloods are...

I was diagnosed with GCA. 6mnths ago,seem to be continuesly taking 2steps forwar...

Bluemoon2023

•5 months ago

6 Replies

Advice please re steroid dose following fall, facial lacerations, broken nose etc…

Hi all, yesterday I stupidly trotted across a road, my leg gave way and I ended up sliding across on my face, hitting my cheek/nose on the kerb. Been to A&E,...

Hi all, yesterday I stupidly trotted across a road, my leg gave way and I ended ...

Tribie

•5 months ago

41 Replies

Neck Crepitus: Is this onset of GCA?

I'm tapering down since my original diagnosis back in January when I was on 15mg of Prednisolone and am now down to 8Mg going down 1mg every 4 weeks at...

I'm tapering down since my original diagnosis back in January when I was on 15mg...

Lickle

•5 months ago

15 Replies

Maybe not PMR update 5 years on

Good morning after 5 years next month on steroids with a PMR diagnosis I am headed down a different treatment path. I spoke to a musculoskeletal specialist in...

Good morning after 5 years next month on steroids with a PMR diagnosis I am head...

Pawscat11

•5 months ago

23 Replies

putting myself together part2

Going slow and staying low. Just dropped to 2mg, from 3. So far, no PMR pains, but tired and lacklustre. I’ve been going to the gym since Jan, and my physical...

Going slow and staying low. Just dropped to 2mg, from 3. So far, no PMR pains, b...

Alazarin

•5 months ago

6 Replies

Flare caused by stress and overexertion

hello all, I was diagnosed with PMR in April 2020 and spent 3 years on steroids. Using lots of advice from this site I have been off steroids and pain free...

hello all, I was diagnosed with PMR in April 2020 and spent 3 years on steroids...

larkthebark

•5 months ago

17 Replies

Flare?

Further to my post of 11 days ago after my visit to Chiropractor I can only report that pain has got worse. It is now in shoulders,neck,tops of arms,buttocks...

Further to my post of 11 days ago after my visit to Chiropractor I can only repo...

Bleakley1

•5 months ago

12 Replies

itch left upper back

a while back someone posted the name of a condition relating to autoimmune illnesses where you have itching on your upper back, left hand side, no rash. It...

a while back someone posted the name of a condition relating to autoimmune illne...

Twopies

•5 months ago

23 Replies

Hydrocortisone Tablets

I posted in March about my position. I had painful hands and needed MTX for RA. My specialist advised me to come off Pred by the end of April. I was on 2mg...

I posted in March about my position. I had painful hands and needed MTX for RA. ...

cmToddy

•5 months ago

11 Replies

Hydrocortisone Tablets

I posted in March about my position. I had painful hands and needed MTX for RA. My specialist advised me to come off Pred by the end of April. I was on 2mg...

I posted in March about my position. I had painful hands and needed MTX for RA. ...

cmToddy

•5 months ago

Be the first to reply

thank you

thank you everyone for all the help you gave me recently, my husband is improving but will never be better like before, but any improvement is better than how...

thank you everyone for all the help you gave me recently, my husband is improvin...

2013mayo

•5 months ago

4 Replies

methotrexate advice

I’ve been on steroids for six months since being diagnosed with PMR. I’ve had a lot of difficulties with them and have been referred to rheumatology. The...

I’ve been on steroids for six months since being diagnosed with PMR. I’ve had a ...

Freshairfiend

•5 months ago

14 Replies

Adrenal Problems I Think.

Hi everyone. I am in my 2nd round of PMR and have been on Pred since last July. Doc has got me reducing by 1mg a month and now down to 2mg. The trouble is, I...

Hi everyone. I am in my 2nd round of PMR and have been on Pred since last July. ...

Attic

•5 months ago

17 Replies

Tingling

In the last two weeks, I have noticed a high-frequency, low-intensity tingling in my skin on waking. It is not painful and I become less aware of it during...

In the last two weeks, I have noticed a high-frequency, low-intensity tingling i...

jayemmemm

•5 months ago

12 Replies

To TCZ or not to TCZ??

Hi everybody,just need a bit of advice/reassurance from the forum if I may? Rheumy is having a n ENRAD meeting next week to discuss my case and if I can have...

Hi everybody,just need a bit of advice/reassurance from the forum if I may? Rheu...

Angelsmummy

•5 months ago

29 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2024

High dose Pred side effects

Why is the pain and stiffness much worse in the morning

A series of flares

Not another flare I hope?

on holiday and a hard lesson learned with this disease.

New to PMR

Methotrexate

Tapering with PMR, Osteoporosis, Gall Bladder (new) and upcoming Cataract Surgery (second eye)

Understanding immune issues

Flare treatment

Lots of pain

Low Red Blood Cell count and GFR kidney count blamed on PMR. Is this true?

GCA and prednisolone reduction while taking Leflunomide

STUCK IN A PRED RUT

FLARE OR LOW CORTOSOLE

GCA inflammatory marker up again

Advice please re steroid dose following fall, facial lacerations, broken nose etc…

Neck Crepitus: Is this onset of GCA?

Maybe not PMR update 5 years on

putting myself together part2

Flare caused by stress and overexertion

Flare?

itch left upper back

Hydrocortisone Tablets

Hydrocortisone Tablets

thank you

methotrexate advice

Adrenal Problems I Think.

Tingling

To TCZ or not to TCZ??

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