Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,084 members • 39,882 posts

All posts for May 2024

Sleeping beauty had the right idea.

4 hours solid sleep last night 7-11pm. Note to self, stay up later and go for a walk. Had breakfast and took pills at 3.30am and the feeling cold sensation...

4 hours solid sleep last night 7-11pm. Note to self, stay up later and go for a...

TiaPasha

•4 months ago

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how long ?

Hiand thank you for all your support. can I ask ..how long ..and I guess this is person centered ..but asking anyway.. how long have peeps with GCA had to stay...

Hiand thank you for all your support. can I ask ..how long ..and I guess this is...

Alliekat65

•4 months ago

11 Replies

dark shadows in inside corners of eyes

what could cause these dark shadows in my granny's eyes, it's on both sides, it appears every few months and can last for months sometime. She gets b12...

what could cause these dark shadows in my granny's eyes, it's on both sides, it ...

MissyMe2

•4 months ago

10 Replies

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Top tips for the wife of someone recently diagnosed with PMR?

Thank you everyone for all of the insight - I feel a bit of a fraud as I don’t have PMR myself. Previously fit and healthy husband floored with it and...

Thank you everyone for all of the insight - I feel a bit of a fraud as I don’t h...

MrsPMR

•4 months ago

17 Replies

BRAN - to take or not to take - A useful mnemonic to help weigh up whether to take a new medication or treatment

Sometimes it's hard to know what to do for the best, especially if you're already on lots of meds for multiple conditions. I read a little snippet in a...

Sometimes it's hard to know what to do for the best, especially if you're alread...

tangocharlie

•4 months ago

9 Replies

PRED INCREASE

Well you guys said it..I was reduced to 20mg in a matter of 2.5 months from 45mg and ..unfortunately my sight has started to get worse so....I'm back upto...

Well you guys said it..I was reduced to 20mg in a matter of 2.5 months from 45m...

Alliekat65

•4 months ago

4 Replies

Stupid Apple Watch

I was able to put my Apple Watch on yesterday as swelling was less in the wrist. I was very surprised to find I did not need to put my code in to get it...

I was able to put my Apple Watch on yesterday as swelling was less in the wrist....

TiaPasha

•4 months ago

36 Replies

I/we did it! An update on my one-mile walk

I posted about a month ago about how I was going to a little bit of a walk to accompany a best mate who is battling Ovarian cancer and walking Hadrian's Wall...

I posted about a month ago about how I was going to a little bit of a walk to ac...

tangocharlie

•4 months ago

66 Replies

Qualifying for Tocilizumab

Hello, I have had a relapse of GCA and have been put on a reduction plan. Was on 40mg pred now reducing by 10mg every two weeks. I had an emergency...

Hello, I have had a relapse of GCA and have been put on a reduction plan. Was o...

Golfers1

•4 months ago

16 Replies

Reduction of Prednisolone

I have seronagative rheumatoid arthritis and I have been on Prednisolone for 16 years. My dose has been mostly 5-10mg. I have now started Adalimumab, mostly...

I have seronagative rheumatoid arthritis and I have been on Prednisolone for 16 ...

Bopants

•4 months ago

48 Replies

Is it hereditary?

Both sets of my Grandparents and my father came from Scandinavia, my Gran was Swedish so when I read I ticked a few boxes I of course thought why? Would be...

Both sets of my Grandparents and my father came from Scandinavia, my Gran was Sw...

TiaPasha

•4 months ago

11 Replies

reduction uncertainty

I reduced to 8ml on 5th March and am reducing to 7ml today after my doctor’s appointment yesterday. My uncertainty is whether to follow his suggestion to just...

I reduced to 8ml on 5th March and am reducing to 7ml today after my doctor’s app...

Sibelius5

•4 months ago

6 Replies

First post.

Warning, long post. 2 am and I have cleaned the kitchen now I can move, even folded the t towels neatly in their box. I could do more but don’t want to wake...

Warning, long post. 2 am and I have cleaned the kitchen now I can move, even fo...

TiaPasha

•4 months ago

9 Replies

Off pred

Well I've now finally come off prednisolone after 3.5 years and I found you very helpful and supportive. Unfortunately I've had to join the afib support group...

Well I've now finally come off prednisolone after 3.5 years and I found you very...

Exhiker

•4 months ago

20 Replies

Is new pain a flare-up of PMR?

I tapered all the way down from 15mg to 1mg of Pred and came off completely in November last year. I've been feeling great for 6 mths and my rheumatology...

I tapered all the way down from 15mg to 1mg of Pred and came off completely in N...

Trish10

•4 months ago

11 Replies

GCA. Pulsatile tinnitus

May I ask what any of you good people know about pulsatile tinnitus. Do you consider my GP should see me, or at least write to me or speak to me on...

May I ask what any of you good people know about pulsatile tinnitus. Do you co...

CavalierKC3

•4 months ago

8 Replies

pmr again

I had a Covid shot on Sunday and the next morning I could hardly get out of bed. My back in the pelvic region was so painful. It eased up a bit during the day....

I had a Covid shot on Sunday and the next morning I could hardly get out of bed....

Crowsfeet

•4 months ago

25 Replies

Minor surgery and pred

Has anyone had minor surgery with general anesthetic while on less than 5 pred? I was told that 5 was the magic number they were interested but am wondering...

Has anyone had minor surgery with general anesthetic while on less than 5 pred? ...

Thirkelly

•4 months ago

20 Replies

Pred reduction , feeling down

Hi, Been up and down a bit, was on 8, but upped to 9, as I was going on holiday for a week, was on 9 for three weeks. Felt better, but still very tired. I...

Hi, Been up and down a bit, was on 8, but upped to 9, as I was going on holiday...

Carathedog

•4 months ago

4 Replies

Recently diagnosed with PMR

I was diagnosed on 4th April with PMR and started 15mg of pred on 11th. After 3 weeks I went down to 12.5mg. My main symptoms were aching arms which I still...

I was diagnosed on 4th April with PMR and started 15mg of pred on 11th. After 3 ...

GazzaF

•4 months ago

9 Replies

Sciatica and numbness in leg.

Ok so now definitely diagnosed with sciatica. Have seen physio for first session and had treatment plus acupuncture. He says that numbness in the calf...

Ok so now definitely diagnosed with sciatica. Have seen physio for first sessi...

gillsky8

•4 months ago

20 Replies

‘Heavy legs’

In my 6th year of PMR and at 7.5mg after a few flares and hiccups. I had a cataract op five weeks ago. All ok but after three weeks felt pretty rough and...

In my 6th year of PMR and at 7.5mg after a few flares and hiccups. I had a catar...

Bachfugue

•4 months ago

50 Replies

Unusual (?) leg pain

Three years in, back up to 7mg pred having got down to 5.5mg. For past two months am having pain in quads (where PMR tends to manifest) which is a bit unusual....

Three years in, back up to 7mg pred having got down to 5.5mg. For past two month...

maxismall

•4 months ago

16 Replies

Broken wrist update

Today confirmed no need for surgery (whew). Last week plaster cast replaced with fibreglass one, which was (painfully) molded to keep a piece of bone from...

Today confirmed no need for surgery (whew). Last week plaster cast replaced wit...

HeronNS

•4 months ago

22 Replies

Covid vax?

I’ve been invited for a COVID vax booster due to PMR/ Prednisolone. Anyone want to comment?

I’ve been invited for a COVID vax booster due to PMR/ Prednisolone. Anyone want ...

Oshmar

•4 months ago

86 Replies

Musings on stress relievers – I know what might help to alleviate stress, but why don’t I do them?

Spoiler alert: This post is REALLY long! Stress seems to be a biggie for most of us in this day and age. Part of the human condition in general it would...

Spoiler alert: This post is REALLY long! Stress seems to be a biggie for most o...

ubaoz

•4 months ago

92 Replies

Coated Pred

Hi Everyone, I’ve been quietly getting on with my Pred Reduction (DL Plan) and pleased to report that I’m now on 3.5mg. I began splitting dosage a while...

Hi Everyone, I’ve been quietly getting on with my Pred Reduction (DL Plan) and...

Hopingsail

•4 months ago

12 Replies

should I be having regular bloods to check on various functions

Hello. A thought recently. I am no longer under rheumatology which my GP knows as they had the same letter I did “can do no more for me as I won’t take...

Hello. A thought recently. I am no longer under rheumatology which my GP knows a...

Buttonshutton

•4 months ago

16 Replies

statins

Not a PMR question but I’m hoping someone here can help. Sorry it’s a long post. I have been off pred for a couple of months and all is well, fingers...

Not a PMR question but I’m hoping someone here can help. Sorry it’s a long pos...

Sweetpeasoprano

•4 months ago

40 Replies

Dreams or nighmares

Hi all, has anyone suffered a similar situation I am going through? In the last probably 4 weeks I'm having amazing dreams and nightmares, practically every...

Hi all, has anyone suffered a similar situation I am going through? In the last ...

Strider68

•4 months ago

36 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2024

Sleeping beauty had the right idea.

how long ?

dark shadows in inside corners of eyes

Top tips for the wife of someone recently diagnosed with PMR?

BRAN - to take or not to take - A useful mnemonic to help weigh up whether to take a new medication or treatment

PRED INCREASE

Stupid Apple Watch

I/we did it! An update on my one-mile walk

Qualifying for Tocilizumab

Reduction of Prednisolone

Is it hereditary?

reduction uncertainty

First post.

Off pred

Is new pain a flare-up of PMR?

GCA. Pulsatile tinnitus

pmr again

Minor surgery and pred

Pred reduction , feeling down

Recently diagnosed with PMR

Sciatica and numbness in leg.

‘Heavy legs’

Unusual (?) leg pain

Broken wrist update

Covid vax?

Musings on stress relievers – I know what might help to alleviate stress, but why don’t I do them?

Coated Pred

should I be having regular bloods to check on various functions

statins

Dreams or nighmares

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