Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,884 posts

All posts for April 2024

has anyone experience of hypnotherapy (learning to self hypnotise) for PMR pain?

the best relief I have for PMR pain is always distraction!! and increasing the pred dose for a flare always has such consequences on my mind and body that I...

the best relief I have for PMR pain is always distraction!! and increasing the p...

howtotaperdown

•6 months ago

4 Replies

Major surgery and a Vasovagal event

I’ve been taking 5mg pred for a while. Reduced to 4.5 and after a few weeks began to feel unwell. I told my doctor who said go back on to 5mg. I then went into...

I’ve been taking 5mg pred for a while. Reduced to 4.5 and after a few weeks bega...

Sumojo

•6 months ago

15 Replies

Slight aches. Enough pred?

I started my PMR journey in about Oct 22. I was very quickly taken down to 10mg pred (after a bit of a sidestep to 7.5mg &9mg). However, I still ache slightly...

I started my PMR journey in about Oct 22. I was very quickly taken down to 10mg ...

WhatNoCarbs

•6 months ago

23 Replies

Want to take advantage of all our features? Just log in!

Should I decrease my dose ?

I was diagnosed on Jan 6th this year with PMR. Started on 20mg and immediate relief. After 2 wks GP reduced to 15mg. Since mid Jan I have gone from 15 to 14...

I was diagnosed on Jan 6th this year with PMR. Started on 20mg and immediate rel...

Rubha

•6 months ago

14 Replies

Update

I’m now down to 15mg and my stomach is still swollen but cause seems to be Serositis. My pleural effusion are 200/300mls left side and zero right side with now...

I’m now down to 15mg and my stomach is still swollen but cause seems to be Seros...

Numptybrain

•6 months ago

10 Replies

Is it ok to mix gastric-resistant and uncoated Pred tablets?

I’m in the process of reducing the dose of pred from 15mg down to 12.5 over 4 weeks and have been given 2.5mg gastric-resistant tablets in addition to the...

I’m in the process of reducing the dose of pred from 15mg down to 12.5 over 4 we...

Preposterous

•6 months ago

7 Replies

finally diagnosed with Ankylosing Spondylitis not PMR

having spent nearly two years on Pred thinking I had PMR . All credit to my rheumatologist who has been very thorough. It is amazing how symptoms can mimic...

having spent nearly two years on Pred thinking I had PMR . All credit to my rheu...

Reedmaker

•6 months ago

4 Replies

I'm back!

I had polymyalgia 6 years ago but have been free of it for just over a year.Unfortunately , we have had quite a bit of stress in the family and the tell tell...

I had polymyalgia 6 years ago but have been free of it for just over a year.Unfo...

Devonspinner

•6 months ago

4 Replies

To raise pred or not?

Following a medication review earlier this year when I was on 7mgs my GP told me I had to reduce by 1 mg a month and that any aches and pains I had now were...

Following a medication review earlier this year when I was on 7mgs my GP told me...

Decsgran

•6 months ago

13 Replies

If I suspect a gca flare up, should I be seen quickly in A & E?

If I suspect a flare up of gca, should I be seen quickly in A & E?

Hidden

•6 months ago

24 Replies

Had the ablation.

Monday I had the procedure under general anesthesia-safely and successfully. The did give IV cortef at the start of the procedure. Since they needed to...

Monday I had the procedure under general anesthesia-safely and successfully. The...

Karenjaninaz

•6 months ago

7 Replies

If you can't run a marathon walk a mile

QUICK UPDATE I am touched and humbled by all your lovely reples, encouragement (and if ciursedonations). I watched the London marathon this morning (Sun...

QUICK UPDATE I am touched and humbled by all your lovely reples, encouragement (...

tangocharlie

•6 months ago

21 Replies

Dead Slow Nearly Stop Taper

Hi Everyone I have been reading a lot on here about everyone's PMR journeys and find all the advice and help invaluable for my journey. You are all so...

Hi Everyone I have been reading a lot on here about everyone's PMR journeys and...

SufferingPMR

•6 months ago

4 Replies

Nearing the end.......maybe.

I've spent the last 17 weeks extremely slowly reducing my prednisone dose from .5 mg to zero. I'm so close after 8 years, but am always mindful of PMRpro's...

I've spent the last 17 weeks extremely slowly reducing my prednisone dose from ....

Raven1955

•6 months ago

3 Replies

cataract surgery and prednisolone dose

This morning I had my eyes tested. This time last year I was told I had the beginnings of a cataract in my left eye, due to prednisolone. Today I was told...

This morning I had my eyes tested. This time last year I was told I had the begi...

musicalJ

•6 months ago

25 Replies

Tapering question

Does a person, while reducing their pred dose, disregard minor symptoms? I have gone fom 15 mgs to 12mgs and have some discomfort.

Does a person, while reducing their pred dose, disregard minor symptoms? I have ...

FreeWolf

•6 months ago

14 Replies

Adrenal confusion 🥲

I have managed to reduce pred dose to 1mg per day. I haven’t really experienced too much in the way of tiredness or the reported slumps. A couple of months...

I have managed to reduce pred dose to 1mg per day. I haven’t really experienced...

Ana-16

•6 months ago

25 Replies

Missed my dose . What should I have done

Hi everyone, I am on 2mg of prednisolone. Lat week, I forgot to take my dose. I felt fine and didn’t realise until the next morning. I took 4mg that day to be...

Hi everyone, I am on 2mg of prednisolone. Lat week, I forgot to take my dose. I ...

Chia123

•6 months ago

4 Replies

PRED AGAIN

not posted for a while i came off pred at the doctors advise 1 mg a month eh ho back on 7mg a day to function again was like starting over .again doctor wanted...

not posted for a while i came off pred at the doctors advise 1 mg a month eh ho ...

deeperpurple

•6 months ago

4 Replies

Pred again

Hi I have been diagnosed with PMR again and put back on prednisone I really did not want to go back on the steroids I had a awful time 2 years ago when I was...

Hi I have been diagnosed with PMR again and put back on prednisone I really did...

24paula

•6 months ago

8 Replies

Adrenal problems - can they include sickness and diarrhoea?

I'm sure there are some FAQs on this, but apologies, I can't find them. I am on 3mg, having reduced slowly, and not about to reduce further. For the last few...

I'm sure there are some FAQs on this, but apologies, I can't find them. I am on...

Sharitone

•6 months ago

18 Replies

Hello

Hello everyone I am newly diagnosed with PMR and trying to get used to the idea that I have it Would welcome any tips on managing Prednisone side effects 😁

Hello everyone I am newly diagnosed with PMR and trying to get used to the idea ...

Sussexsindydoll

•6 months ago

14 Replies

random cortisol result?

hello all, I had a random cortisol test at 8am a couple of days ago, I’m down to 4.5mg at the moment. The result has come back as 292nmol/L. There isn’t any...

hello all, I had a random cortisol test at 8am a couple of days ago, I’m down to...

Cfmad298601

•6 months ago

2 Replies

Tapering too quickly

I realise I’ve been tapering too quickly. I followed all the excellent advice tapering at higher levels and had very little trouble. Why then, you may ask, did...

I realise I’ve been tapering too quickly. I followed all the excellent advice ta...

Lclmlbls

•6 months ago

10 Replies

timings of dosing when switching to enteric coated pred

I have been coping with stomach problems because the pred has been badly irritating my stomach so my doctor has prescribed coated pred. At the moment, I take...

I have been coping with stomach problems because the pred has been badly irritat...

Hidcote

•6 months ago

4 Replies

Much Better

Despite no inflammatory markers my GP believed I did indeed have PMR. I have never felt so well after 3 weeks on 15 mgs of prednisone. I'm beginning my...

Despite no inflammatory markers my GP believed I did indeed have PMR. I have ne...

FreeWolf

•6 months ago

7 Replies

Heart issues and pred

Brief summary - diagnosed with PMR around September 2020. Been on pred since then, mostly somewhere between 5 and 10mg, apart for a brief period off pred in...

Brief summary - diagnosed with PMR around September 2020. Been on pred since the...

SudsSuds

•6 months ago

6 Replies

Report on “Aching arm and cold hand”

I saw the doctor today and after lots of questions she ruled out a heart problem because I’m always better after walking. It could be a trapped nerve at the...

I saw the doctor today and after lots of questions she ruled out a heart problem...

KerryIreland

•6 months ago

2 Replies

Timings of medications, help please.

Can anyone help me with the timings for the following medications which I need to take each day apart from the Risedronate once a week, please? I have spoken...

Can anyone help me with the timings for the following medications which I need t...

Katkin1

•6 months ago

11 Replies

Has anyone suffered with eye problems after two years of treatment for GCA.?

Well unfortunately I seem to be back to square one. After successfully reducing to 4mgs of pred I reduced to 3 as per my rheumatologist plan and have had eye...

Well unfortunately I seem to be back to square one. After successfully reducing...

Golfers1

•6 months ago

15 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for April 2024

has anyone experience of hypnotherapy (learning to self hypnotise) for PMR pain?

Major surgery and a Vasovagal event

Slight aches. Enough pred?

Should I decrease my dose ?

Update

Is it ok to mix gastric-resistant and uncoated Pred tablets?

finally diagnosed with Ankylosing Spondylitis not PMR

I'm back!

To raise pred or not?

If I suspect a gca flare up, should I be seen quickly in A & E?

Had the ablation.

If you can't run a marathon walk a mile

Dead Slow Nearly Stop Taper

Nearing the end.......maybe.

cataract surgery and prednisolone dose

Tapering question

Adrenal confusion 🥲

Missed my dose . What should I have done

PRED AGAIN

Pred again

Adrenal problems - can they include sickness and diarrhoea?

Hello

random cortisol result?

Tapering too quickly

timings of dosing when switching to enteric coated pred

Much Better

Heart issues and pred

Report on “Aching arm and cold hand”

Timings of medications, help please.

Has anyone suffered with eye problems after two years of treatment for GCA.?

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive