Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,086 members • 39,890 posts

All posts for March 2024

Phased return

Just finished my 2nd phased return now back at work. Had a meeting with my boss and hr yesterday and have been told if my error rate does not improve in 2...

Just finished my 2nd phased return now back at work. Had a meeting with my boss ...

Helliwelli12

•7 months ago

31 Replies

I'm listening to my body, more and more!

Wednesday is the highlight of my week. I attend painting classes from 8:30 a.m. until about 2:00 p.m. It is my favorite thing to do. I've been feeling really...

Wednesday is the highlight of my week. I attend painting classes from 8:30 a.m. ...

Grammy80

•7 months ago

18 Replies

10 Years

Hello fellow sufferers Ten years ago exactly I was eventually diagnosed with PMR. The journey from then to here is like most of us, up and down. I started...

Hello fellow sufferers Ten years ago exactly I was eventually diagnosed with PM...

Southmead

•7 months ago

30 Replies

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Rheumatology appointment update

Hi All, Hope you're all well/well as expected. Just thought I would update on my situation as I saw Dr Cheung again today for a follow up. Those who have...

Hi All, Hope you're all well/well as expected. Just thought I would update on m...

Paulx222

•7 months ago

16 Replies

It'll be fine

I had my six month checkups and sometimes had to be numbed for a crown repair etc. There was never a problem. An extraction goes pretty quickly. It'll be over...

I had my six month checkups and sometimes had to be numbed for a crown repair et...

Logic

•7 months ago

4 Replies

Post PMR treatment

Even though I completed prednisone for PMR in June 2022 & my blood work has been good. I am still on an anti inflammatory diet (basically a gluten & dairy...

Even though I completed prednisone for PMR in June 2022 & my blood work has been...

smoothiemaker

•7 months ago

2 Replies

cortisone shot while on prednisone

Now slow tapering from 3.5 to 3 of prednisone and my left hip is starting to have discomfort. (Actually a noted issue for me over the last 5years) X-rays show...

Now slow tapering from 3.5 to 3 of prednisone and my left hip is starting to hav...

Spartans1

•7 months ago

28 Replies

Flare or just the coughing?

Hello. I was diagnosed with pmr in October 23 and put on 15mg pred. Have been slowly reducing once all under control and have been following a plan from here....

Hello. I was diagnosed with pmr in October 23 and put on 15mg pred. Have been s...

Timek

•7 months ago

11 Replies

Tapering with a high ESR Reading?

My GP rang me yesterday because my ESR reading was 48 in a range of 1-30. He suggested I should increase the Pred. Because my cataract operation was...

My GP rang me yesterday because my ESR reading was 48 in a range of 1-30. He su...

Motida

•7 months ago

18 Replies

Polymyalgia or fibromyalgia?

I had a bad chest infection and adthma flare that took two sets of steroids and antibiotics and high dose steroid inhaler to resolve. Within a week of coming...

I had a bad chest infection and adthma flare that took two sets of steroids and...

bde987

•7 months ago

6 Replies

Tapering Pred from 2mg....to 1.5 or 1mg~?

To complete the picture, I do take an injection of Actemra weekly. My GCA started in 2019 and getting this low is a first. My dosage was increased last fall...

To complete the picture, I do take an injection of Actemra weekly. My GCA start...

Grammy80

•7 months ago

36 Replies

To take or not to take daily dose of Prednisone before or after blood work (ESR and CRP), that is the question!

I'm going for blood work tomorrow morning, to check inflammatory markers, though not blood sugars as they have always been normal, so I can have breakfast...

I'm going for blood work tomorrow morning, to check inflammatory markers, though...

Dochaz

•7 months ago

9 Replies

Is it absolutely necessary to take omeprazole before Prednisolone?

I am on my second round of Prednisolone and have been told by the doctor that I must take omeprazole as well even though I’ve got osteoporosis. I have always...

I am on my second round of Prednisolone and have been told by the doctor that I ...

Timelost

•7 months ago

18 Replies

Baker’s Cyst, Medial Meniscus tears

Quick recap - was diagnosed with PMR in May 2021 after 5 months of symptoms. Was put on 40 mg of Prednisone daily to start because of the GP’s worry it could...

Quick recap - was diagnosed with PMR in May 2021 after 5 months of symptoms. Was...

LucilleG

•7 months ago

11 Replies

Methotrexate

Has anyone had success with methotrexate?

Maggieart

•7 months ago

6 Replies

Patients with higher apolipoprotein A-I levels at greater risk for giant cell arteritis

https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis

https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipopr...

perceptual63

•7 months ago

2 Replies

Results of brain scan…

Had brain scan last week, doctor just rang, asked how I felt, told him still on 5 mg, surprisingly said if it gives you a quality of life that’s good. Mumbled...

Had brain scan last week, doctor just rang, asked how I felt, told him still on ...

Longtimer

•7 months ago

95 Replies

Can I stop taking Ibandronic Acid?

I have been on Ibandronic Acid for 2 years after 3 years of Alendronic Acid, making it a total of 5 years this year. The last time I spoke to my doctor she...

I have been on Ibandronic Acid for 2 years after 3 years of Alendronic Acid, mak...

Mamamia21

•7 months ago

14 Replies

Baker7000

I am on ped I get fatigue bad is there anything you can take for it.

Baker7000

•7 months ago

4 Replies

Dental work- loosing a tooth

Hello! What a wonderful forum. I thank everyone for their knowledge & experience & I’m so appreciative! I wanted to check on having a tooth pulled and being...

Hello! What a wonderful forum. I thank everyone for their knowledge & experienc...

Snowyplover

•7 months ago

16 Replies

PMR/GCA / RA -Tfr from Pred to Methoxorate

Hi all. You may have noted I posted last week. After 4.5 years I was doing so well. PMR and GCA all good and I was down to 2.5mg per day. Just as I thought I...

Hi all. You may have noted I posted last week. After 4.5 years I was doing so we...

cmToddy

•7 months ago

8 Replies

Nerve pain in left leg.

Further to my last post, Dr. is sending me for a Dexa Scan and an MRI Scan to try and get to the bottom of this. Fingers crossed as it is not getting any...

Further to my last post, Dr. is sending me for a Dexa Scan and an MRI Scan to tr...

Marcy47

•7 months ago

11 Replies

Pred after MRI

An update on previous post I have managed to taper to 5.5mg from 9mg in 7 weeks so that l can have an MRI. I felt OK on 8mg but when l hit 7mg the symptoms...

An update on previous post I have managed to taper to 5.5mg from 9mg in 7 weeks...

Freelabour

•7 months ago

4 Replies

Nearly there…

Morning all I am determined to come off the dreaded pred. and now down to 1mg, hurrah! Although I hurt sometimes, it is not as it was and I can live with it....

Morning all I am determined to come off the dreaded pred. and now down to 1mg, ...

JAC1947

•7 months ago

26 Replies

strange reaction to my Prednisone after all these years. Highly agitated!!!

hello everyone thank you for helping me recently with the issues I’m having with pain in my ankles and in my feet I have settled on taking 5 mg of prednisone...

hello everyone thank you for helping me recently with the issues I’m having wit...

bluegirl7

•7 months ago

14 Replies

Just saw my first rheumatologist yesterday, very confused by diagnosis?

Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiffness, swelling or symptoms in the small joints (hands, feet etc) & it still be...

Can you have negative rheumatoid factor, negative CCP antibodies, no pain, stiff...

LarMarge6

•7 months ago

8 Replies

another cervical stenosis update!

going onwards from my last post re my husbands stenosis, we finally got a copy of the neurosurgeons letter to our GP at the weekend. It’s filled me with...

going onwards from my last post re my husbands stenosis, we finally got a copy o...

Doraflora

•7 months ago

33 Replies

Back again

Hi guys back again. In 2017 diagnosed with PMR and put on 20mg pred it worked. Over the last 6 years up and down with various levels of pred. Have seen...

Hi guys back again. In 2017 diagnosed with PMR and put on 20mg pred it worked. O...

SRIXON

•7 months ago

12 Replies

Tapering is hard work - patience, patience, patience

Since my diagnosis in Aug-23 this group has been helpful in so many ways and I wanted to share the next stage in my recovery. One sage advised listening to...

Since my diagnosis in Aug-23 this group has been helpful in so many ways and I w...

SpaghettiWestern99

•7 months ago

11 Replies

headache on top of head

I can’t remember posting this before?!? Bit of brain fog.. am 85 but no excuse. ?! I’m haveing problems with headaches on top of my head. Couple of times...

I can’t remember posting this before?!? Bit of brain fog.. am 85 but no excuse. ...

Bedwell

•7 months ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for March 2024

Phased return

I'm listening to my body, more and more!

10 Years

Rheumatology appointment update

It'll be fine

Post PMR treatment

cortisone shot while on prednisone

Flare or just the coughing?

Tapering with a high ESR Reading?

Polymyalgia or fibromyalgia?

Tapering Pred from 2mg....to 1.5 or 1mg~?

To take or not to take daily dose of Prednisone before or after blood work (ESR and CRP), that is the question!

Is it absolutely necessary to take omeprazole before Prednisolone?

Baker’s Cyst, Medial Meniscus tears

Methotrexate

Patients with higher apolipoprotein A-I levels at greater risk for giant cell arteritis

Results of brain scan…

Can I stop taking Ibandronic Acid?

Baker7000

Dental work- loosing a tooth

PMR/GCA / RA -Tfr from Pred to Methoxorate

Nerve pain in left leg.

Pred after MRI

Nearly there…

strange reaction to my Prednisone after all these years. Highly agitated!!!

Just saw my first rheumatologist yesterday, very confused by diagnosis?

another cervical stenosis update!

Back again

Tapering is hard work - patience, patience, patience

headache on top of head

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