Rushing to visit my husband who is very ill in hospital this morning I think I may have missed taking my 15 mg dose of Prednisolone. The tablets are still in my dosette box.Should itake them niw 12 hours too late or miss them out and take normal dose tomorrow morning.
My dose has been up and diwn because my dentist asked me to increase my dose to 30 mg for 3 days when I had wisdom tooth out....woulbe grateful for any advice? Am feeling bit panicky ...
Thanks Sue
Certainly don’t leave them until tomorrow…. Whether you take the full dose now, or just 10mg is up to you, but you do need some.
Having your husband who is ill [and I hope he soon improves] puts you under stress, and many do need actually need a small increase to get through… and you seem to have quite a chequered history with your illness.
Even though you have a dosette box, might also be worth setting an alarm on your phone - just to make sure it doesn’t happen again - you have a lot in your plate at the moment..
All the best to you and your husband… 🌸
Thank you, will take them now, especially as I took 30 ng for dentis last week ...1
Ask Alexa to set the alarm you can’t miss that.
We do Alexa for pill announcements 
I even have announcements on my smartwatch...
Not me guv!
I agree with DL's suggestions. And would add to the alarm on the phone - get in the habit of keeping the dosette box in your handbag because I can hear the alarm, switch it off and STILL not take the tablets!!!!
Hope your husband is OK.
Thank you PMRpro , that is a simple but very logical suggestion . Had I done that today the Prednisolone tablets would have been with me and at some point much earlier than 7.30 this evening I would have realised I needed to take them.
Unfortunately my husband is very ill - there are no more options but palliative care. As a family we have perhaps been in denial, imagining that though he is in hospital it would carry on like this till he was well enough to come home to be nursed. Things have rapidly deteriorated..Heart disease has got worse, amputation of 3 toes has not cured the vascular problem and now kidneys are affected. We had to choose, with the docs, what happens next..
He has opted for nursing home care but I know he really wanted tk come home but everyone, family and hospital advise it would be impossible for me to cope even with maximum support .
I feel increasingly torn in two because despite the fact he is saying Care Home it is fir my sake and to protect me.
After the last week of highly concentrated discussions and meetings with staff I feel I just want to shout, "STOP, bring him home to me.I can cope with these next few weeks"
So many years of sharing good things , I feel we should be together to share the next few weeks.
I will need to remember to take my Pred ....
Will he have hospice care in the nursing home? In other words, care that will keep him as comfortable and cognisant as may be and in a calm environment? And where you can visit and stay as long as you need? Is there an alternative where this care could be given at home? It might mean professionals coming into the home to help you, but professionals who are trained in caring for end of life patients. If we think of what we would want for ourselves it sometimes makes problems easier to answer (although at other times not!). Whatever happens, I wish for you both a peaceful time. 💗
Having been there only two and half years ago, I know what you are going through. And because I didn't have the option - I say to you, it may sound harsh but take what you are being offered with gratitude.
My husband was ill in much the same way during Covid and I was alone until the last 10 days. He had deteriorated suddenly a week before our daughters arrived for the first visit post-Covid, they are both in the NHS, travel was impossible and anyway, if he had caught Covid, that would have been the end far sooner. He had been able to get to the bathroom and back alone until the weekend before they arrived, although he was always a fall risk and I had had to call the ambulance a few times. If he was in hospital, I wasn't allowed to visit in his room, he had to be brought out in a chair and he struggled. After a week of palliative care in a unit 50 miles away he was much improved and we had several good weeks at home but then it was like falling off a cliff. And within hours of the girls arriving he was in another world. Luckily one is a nurse and experienced in end-of-life care and the other works in the ED. They were with him 24/7 for the last 9 days - I couldn't have done it alone and without them being there he would have not been well cared for without a team of live-in carers which wasn't an option. Our palliative unit in the local hospital opened literally weeks later - if only it had been sooner.
The nursing home has that level of care, and you can be with him, being, as another friend currently in the same situation puts it, his wife and not his carer, She was an oncology palliative care nurse and she is already getting the support to sort medications and so on - they make the decisions on that, not her.
And you may need more pred - don't worry if you do. Don't try to fight things you don't have to. It nearly broke me.
Thank you so much for sharing your experience. That has been enlightening and has been so helpful and comforting.I have been at the hospital all afternoon with my son and daughter in law whose birthday it was today. We have had a mini birthday party round his bedside abd fed him morsels of birthday cake. They are reducing his oxygen so he is wearing the oxygen tubes nonchalantly slung over the top of his head like expensive sunglasses .
Surreal as it sounds the 4 of us have had a fun after noon.
And DID you enjoy it? Take pleasure in those moments - there is nothing wrong or surreal about it.
Here where I live, Hospice or the Palliative Unit is for short stays to get the patient able to either remain at home with support or be in a care home where the same palliative care support is provided and the care home staff provide the nursing care when required.
My husband was at home, and that's because on the day he received his diagnosis of terminal cancer he refused to stay in hospital, and said ‘I'm going home’.
Fortunately the local hospice agreed to take him under their wing... and [almost impossible to believe pre Covid , let alone today] everything was sorted that day.
The first week at home he was under NHS, and their carers, but after that the hospice staff took over.. and the care was exemplary. They have a vastly different approach - and I know we were in an almost crisis situation.. but is there any chance of looking down that route?
Thank you Dorset Lady . I think it being looked into but would nof be very near and require me driving 12 miles there and back whereas if there is room at the recommended nursing home here I could walk there twice a day
Okay… well where he is, sounds better for you…and that’s just as important.. 🌸.
essujay, your husband's decision to choose nursing home care at this time in both your lives can be seen as another act of love. It spares you the physical demands and frees you to spend as much time as you can with him as husband and wife . Others can deal with practical aspects of his care, but they can't replace you. I wish you both well.
Thinking of you.💐
so sorry you are dealing with such sadness...keep your steroids with you and perhaps have some extra steroids with you in case you need them...you are facing a really difficult time, be ready to zap if the PMR decides to play rough. wishing you much strength.
so sad you are having to deal with these problems. There is no right decision for you all. Just the best one at the time. We kept thinking John would get better. In hindsight Hospice we’re !! , and we were so distressed after three years of John in and out of hospital two different cancers, sepsis three times and necrotising pancreatitis. I still worry if we made the right decision but hold on to the sixty years we were together. I can still remember when I first saw him in his suit with matching tie and socks, pointed shoes and definitely a Billy Fury hair style. Me in a skirt with big net underskirt. Loved him then and love him now.
Sending hugs J x👵🏻
I can totally empathise with your situation. I was in it 18 months ago. My poor hubby had terminal cancer. I had been nursing him at home with the help of Hospice at Home from our local hospice. Things got really bad and I wasn't coping well.
He fell out of bed just after the night carer had been and was in a dreadful state. I had no choice but to call an ambulance.
After a few horrendous days in hospital (on the medical assessment ward) he got a bed at the hospice. It was only supposed to be for a few days to get him symptoms under control before coming home as he wanted.
However it became clear that I wouldn't be able to cope and so he stayed at the Hospice. They were talking about a Nursing Home and like you I felt so guilty. However, that didn't happen as after rallying for a couple of days his symptoms got far worse and he deteriorated rapidly. He died there surrounded by all of us and being cared for by the hospice staff. I find it difficult to talk about and the tears are welling whilst I write this. I felt so guilty that he couldn't come home but I knew I wouldn't cope.
What I want to say to you is that those 4 weeks he had in the hospice were great for us. We had time to sit and chat, have visitors, take the pets in, watch TV and listen to music. My stress levels went down a bit as I saw how well he was being looked after. None of it was easy but I am glad I listened to the Hospice doctors and didn't try to cope myself. At least my hubby had a pain free death and, as requested by him, was sedated for his last hours so he didn't have to experience the symptoms any longer.
So I get where you are. Our NHS is not set up to care for people in their own homes. I was lucky to have a hospice place but in retrospect I think a nursing home could have been better than going into hospital.
Please don't lay all the guilt on yourself. Guilt and grief are not a good combination. Do what is best for your hubby to give him a good death. My heart feels your pain xxx
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FORGOT TO TAKE PRED. 😱
