Thank you and praying: I've been blessed to find... - PMRGCAuk

PMRGCAuk

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Thank you and praying

Alliekat65 profile image
7 Replies

I've been blessed to find this sitethere are no judgment on questions some of you have had millions of times.

tomorrow my pred is due a decrease and after reading the comments I am slightly stressed. I did try and contact GP but I missed the "time to call " so will try again today

but again THANK YOU ..

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Alliekat65 profile image
Alliekat65
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7 Replies
Sophiestree profile image
Sophiestree

hi. Do you mean you don't feel lowering your dose is the right time for you. How much as you taking at the moment?

Alliekat65 profile image
Alliekat65 in reply toSophiestree

I just worry as peeps on here seem think it's a lot..still waiting for GP to call back..but as it was hospital stated the drop.guess they must be right.arent they ?

PMRpro profile image
PMRproAmbassador in reply toAlliekat65

WHAT is a lot? The dose or the amount you are being told to drop at one time?

Alliekat65 profile image
Alliekat65 in reply toPMRpro

the amount to drop ..

PMRpro profile image
PMRproAmbassador

Go about it SLOWLY. Drop for one day and go back to the old dose the next few days, then try the new dose again. You will find more detailed instructions under Tapering in the FAQs with a coule of different options. That way you challenge your body with the new dose just one day at a time and your body gets used to it in a more gentle manner, I found it was happy again after 3 or 4 encounters. And if it is too uncomfortable even like that - how much are you dropping at a time? Can you make it smaller?

Alliekat65 profile image
Alliekat65 in reply toPMRpro

this us wat the opthalmology dr said to do then my next drop next month is just 5mg a day it does seem alot BUT forb5 days I was on 60g which she dropped to 45g with no side effects...so guess she doing same..

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

In one of previous posts -re reducing from 45mg to 30mg -this was my reply

At higher doses for GCA, Pred can be reduce in bigger steps - but 45mg to 30mg is too much... 33% definitely not good.

I'd go up to 40mg for a few days, then down to 35mg... and stay there for a 3-4 weeks and then only 5mg a time, until you reach 25mg, then by 2.5mg..

What are you on now?

If the “time to call” is difficult does your surgery have eConsult?

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