Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for December 2023

My profile

Have GCA . My mother had it and two of my siblings have/had PMR- a genetic link. The steroids 55 mg to start now down to 40 mg rewiring my brain mainly...

Have GCA . My mother had it and two of my siblings have/had PMR- a genetic link....

BillCapita

•4 months ago

7 Replies

Treating muscle pain post zoledronic acid infusion

I had my first zoledronic acid infusion just over 24 hours ago. I was recommended to take some paracetamol before bed, which I did. I had some migraine...

I had my first zoledronic acid infusion just over 24 hours ago. I was recommende...

Angel_doll

•4 months ago

8 Replies

How important is the timing when the dose is 0.5mg?

hello and happy new year! I’m successfully down to 0.5mg Prednisolone daily and take it when I wake in the early hours (2-3.30am) How important is this...

hello and happy new year! I’m successfully down to 0.5mg Prednisolone daily and...

PipandDots

•4 months ago

7 Replies

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dealing with Norovirus

Friends visited us yesterday however they had had grandchildren and son and daughter in law staying with them. Son had been up the night before they visited...

Friends visited us yesterday however they had had grandchildren and son and daug...

bonio

•4 months ago

9 Replies

Steroids and blood-sugar...

I posted recently about the "Prednisolone jitters" and quite a lot of people seem to have responded with similar experiences. I think I might have some...

I posted recently about the "Prednisolone jitters" and quite a lot of people see...

Hidden

•4 months ago

20 Replies

Update and Happy New Year

Dear PMR Friends, I have been off PRED since June. Since then I have reduced my weight by 20lbs and my AIC is at 5.9 from 6. That is the good news!! Happy New...

Dear PMR Friends, I have been off PRED since June. Since then I have reduced my ...

Mewy

•4 months ago

19 Replies

5am -6 am nightly stomach ache

I have had PMR for 3 years now on 2 mg PRED. Only light morning stiffness in hips and glutes sometimes. To relive nightly stomach ache need to get out of bed...

I have had PMR for 3 years now on 2 mg PRED. Only light morning stiffness in hip...

Versaman

•4 months ago

6 Replies

Good wishes to everyone for a healthy new year

good morning everyone I’ve not been on here for some time, but just wanted to wish you all the very best for 2024. Let’s hope it’s a healthy and happy one....

good morning everyone I’ve not been on here for some time, but just wanted to ...

Doraflora

•4 months ago

Be the first to reply

thank you

just want to say thank you to everyone for getting me through a difficult time, I’ve had a terrible cold/ chest infection and was having to face a difficult...

just want to say thank you to everyone for getting me through a difficult time, ...

2013mayo

•4 months ago

9 Replies

All night pain

How do I prevent all night pain? I wake up every hour and a half in terrible pain.

How do I prevent all night pain? I wake up every hour and a half in terrible pai...

Maggieart

•4 months ago

24 Replies

Stopped Prednisone Completely

Diagnosed in the fall of 2022 with PMR. Put on 13mg daily, the relief from the discomfort of PMR was immediate; overnight to be specific. The next month,...

Diagnosed in the fall of 2022 with PMR. Put on 13mg daily, the relief from the ...

Mansplainer101

•4 months ago

4 Replies

Finally getting emails from PMRAuk again

Well, I finally remembered to go in and check my profile and settings and since everything seemed OK I just changed me email address to a different one and...

Well, I finally remembered to go in and check my profile and settings and since ...

Dydee

•4 months ago

4 Replies

tapering

When tapering from 15mg to 13.5 (10%) how long should should I stay on the new dose before reducing by another 10%

When tapering from 15mg to 13.5 (10%) how long should should I stay on the new d...

Nanatoo

•4 months ago

3 Replies

Question on tapering

Everytime I start reducing my pred I develop a Cold sore on my lip, does an yone else have this problem?

Everytime I start reducing my pred I develop a Cold sore on my lip, does an y...

Kiwisufferer2019

•4 months ago

3 Replies

GCA Concerns, Cold and Eyes

I hope everyone had as wonderful a Christmas as I did, despite our health battles. I flew to Arkansas where 2 of my adult kids and 4 of my grandkids live. 2...

I hope everyone had as wonderful a Christmas as I did, despite our health battle...

Lenore58

•4 months ago

3 Replies

Flare after Antibiotics?

So six months ago I posted on here about a flare after having the covid vaccination. I chose not to have another one . Things eventually settled down and I was...

So six months ago I posted on here about a flare after having the covid vaccinat...

simps999

•4 months ago

4 Replies

Gradual change needed when changing to night time preds?

my empty enteric coated capsules have arrived already, so I can try taking my preds in the capsules at night. . But do I do a sudden change or gradual? I...

my empty enteric coated capsules have arrived already, so I can try taking my p...

Freshairfiend

•4 months ago

6 Replies

"Prednisolone Jitters"...is it A Thing...?

I am fairly new to Prednisolone, barely one week in. It has helped enormously but it has also had some odd and unexpected effects. I often wake in the middle...

I am fairly new to Prednisolone, barely one week in. It has helped enormously bu...

Hidden

•4 months ago

35 Replies

Christmas Covid present…

My husband tested positive for Covid Christmas Day evening after feeling ill for a couple of days. I tested negative and felt ok. We avoided each other and...

My husband tested positive for Covid Christmas Day evening after feeling ill for...

Bluey-1

•4 months ago

18 Replies

covid

I had covid two weeks ago. Thankyou by the way for those who answered my post when I didn’t realise I had covid, I had pains which I thought were the pmr...

I had covid two weeks ago. Thankyou by the way for those who answered my post wh...

Yellow-dog

•4 months ago

5 Replies

Flare , cold and skiing !

Hope everyone had a lovely Christmas 🎄. Just looking for some advice - i have started with a terrible cold today, and also think i am flaring up as my...

Hope everyone had a lovely Christmas 🎄. Just looking for some advice - i have s...

Cysty1

•4 months ago

7 Replies

Missed ablets

I am down to 4 mg of pred but yesterday I forgot to take it. I took it first thing after breakfast this morning. If this happens again, should I take an extra...

I am down to 4 mg of pred but yesterday I forgot to take it. I took it first thi...

Glassbox

•4 months ago

3 Replies

Late but sincere~~

May the New Year bring you health and happiness~~more good health than issues and more joy than anticipated. All of you are a gift 365 days a year!! xoxo...

May the New Year bring you health and happiness~~more good health than issues an...

Grammy80

•4 months ago

20 Replies

Covid

In early December I could only roll out of bed and not lift my arms in the morning. I would be waking up four or give times a night because of pain in one or...

In early December I could only roll out of bed and not lift my arms in the morni...

Birdlife

•4 months ago

14 Replies

hot flushes

I’ve struggled with these for about twenty years and they have diminished over time. However, since going on preds, just over five weeks ago, they have got...

I’ve struggled with these for about twenty years and they have diminished over t...

Freshairfiend

•4 months ago

24 Replies

switch to hydrocortisone

I’ve been to see the endocrinologist today on the recommendation of the rheumatologist. I had a borderline synacthan test , on the basis of which today he has...

I’ve been to see the endocrinologist today on the recommendation of the rheumato...

AnniesRyder5

•4 months ago

10 Replies

Exhausted

Hi, I’m currently in the process of decreasing my pred. from 7 to 6.5, I was on 7 for about two months , as I had a holiday to Thailand early November, all...

Hi, I’m currently in the process of decreasing my pred. from 7 to 6.5, I was o...

Carathedog

•4 months ago

12 Replies

Warmest greetings and a Big Thankyou for your daily help!

Just needed to end the year with a big thankyou to all you lovely people. As I come near the end of my 3rd year on this forum (and down to 1.75mg pred) I...

Just needed to end the year with a big thankyou to all you lovely people. As ...

KerryIreland

•4 months ago

5 Replies

Prednisolone and breathlessness

Hi everyone i hope you all had a lovely and hopefully pain free Christmas.M y 86 year old mums GCA journey so far has had a few challenges along the way since...

Hi everyone i hope you all had a lovely and hopefully pain free Christmas.M y 86...

Buchanan16

•4 months ago

7 Replies

blocked ear and steroid reduction

Had an appointment with the rheumatologist a few weeks back said that arm and shoulders ache . Said to continue steroid reduction and its wear and tear in the...

Had an appointment with the rheumatologist a few weeks back said that arm and sh...

Flrchrs

•4 months ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2023

My profile

Treating muscle pain post zoledronic acid infusion

How important is the timing when the dose is 0.5mg?

dealing with Norovirus

Steroids and blood-sugar...

Update and Happy New Year

5am -6 am nightly stomach ache

Good wishes to everyone for a healthy new year

thank you

All night pain

Stopped Prednisone Completely

Finally getting emails from PMRAuk again

tapering

Question on tapering

GCA Concerns, Cold and Eyes

Flare after Antibiotics?

Gradual change needed when changing to night time preds?

"Prednisolone Jitters"...is it A Thing...?

Christmas Covid present…

covid

Flare , cold and skiing !

Missed ablets

Late but sincere~~

Covid

hot flushes

switch to hydrocortisone

Exhausted

Warmest greetings and a Big Thankyou for your daily help!

Prednisolone and breathlessness

blocked ear and steroid reduction

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