Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for December 2023

I was fine till doctor claimed I’m in remission

I need your advice again. I have been doing great on only Actemra for the last 2 years. 8 months ago rheumatologist cut my dose in half. I was still doing...

I need your advice again. I have been doing great on only Actemra for the last 2...

nallufl24

•5 months ago

9 Replies

GCA flares and eyesight

Thank you to everybody on this site – I have found it very helpful. I was diagnosed with GCA in September. I have to say my GP and Bath Hospital were excellent...

Thank you to everybody on this site – I have found it very helpful. I was diagno...

Gladys911

•5 months ago

8 Replies

"Flare"

My first post here ... went ~ 6 weeks with symptoms before my diagnosis of PMR on November 6. Started on 40mg prednisone (after an 80mg shot!), and I...

My first post here ... went ~ 6 weeks with symptoms before my diagnosis of PMR o...

Trinka13

•5 months ago

5 Replies

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Fibromyalgia or PMR

Hi, advice please! I had a PMR diagnosis so put on prednisone then rheumatologist diagnosis of not PMR but fibromyalgia so tapered off prednisone. Finished...

Hi, advice please! I had a PMR diagnosis so put on prednisone then rheumatologi...

Monkey321

•5 months ago

45 Replies

Update on skin lesions

Hi everyone, just thought I would give update on the serious skin lesions I developed that were unlike the normal prednisone related ones. Sheffield Jane...

Hi everyone, just thought I would give update on the serious skin lesions I deve...

Kt1943

•5 months ago

10 Replies

Actemra and aches and pains!

I was put on Actemra about 3 months ago and have dropped as prescribed i.e. 1mg per month. I have had GCA for 14 years and was stuck on 14mgs of prednisolone...

I was put on Actemra about 3 months ago and have dropped as prescribed i.e. 1mg ...

Stkeyna

•5 months ago

11 Replies

Help please. Currently been given advice to go from 2mg Pred up to 40mg! Very worried. Advice please.

Hello, Last February my mother 84 was diagnosed with PMR.Her starting dose was 15mg. Gradually tapering successfully... And now after 9 months she's had a set...

Hello, Last February my mother 84 was diagnosed with PMR.Her starting dose was 1...

Poppy_the_cat

•5 months ago

10 Replies

Possible GCA/LVV test update

My hospital app has been updated with masses of test results from the past couple of weeks. Apart from the increasing, but not way OTT my CRP went up from 6...

My hospital app has been updated with masses of test results from the past coupl...

DogAgilityObsessed

•5 months ago

6 Replies

Just a catch up

Just to say it's a while since I posted but I'm still about Tried to reduce but doesn't work looks like I'm stuck on 4. I read most of the posts and find...

Just to say it's a while since I posted but I'm still about Tried to reduce but ...

kathyrob

•5 months ago

9 Replies

Where do I go now?

Hi I’m feeling emotionally and physically drained… I’ve been having a “flare” for about a month, I was at 9mg and eventually GP suggested going back to 10,...

Hi I’m feeling emotionally and physically drained… I’ve been having a “flare”...

Mercat

•5 months ago

37 Replies

Dexa Scan Results

Hi, can anyone translate these test results for me please? My GP has put me on Alendronic Acid one per week, 70mg and l am taking Vitamin K2, Vitamin D but...

Hi, can anyone translate these test results for me please? My GP has put me on A...

Legsandmore

•5 months ago

2 Replies

Flare or Adrenals waking up

I was diagnosed with PMR October 2022 and I am currently down to 4mg Prednisolone ( down from 4.5 on 3/11). Since Monday I have been waking up around 4mg with...

I was diagnosed with PMR October 2022 and I am currently down to 4mg Prednisolon...

Amerloque

•5 months ago

10 Replies

PMR and the effect on mental health.

I consider myself as coping as I am getting to the point of acceptance of this disease after being diagnosed 12 weeks ago as a 57-year-old male but why do I...

I consider myself as coping as I am getting to the point of acceptance of this d...

Markandevie

•5 months ago

31 Replies

DO I NEED A MEAL?

Hello All This is my second time around with PMR the first time was 6 1/2 years ago so I really can’t remember some things I am starting my medication...

Hello All This is my second time around with PMR the first time was 6 1/2 years...

Jampel

•5 months ago

16 Replies

Sore Tongue

Hi, Does anyone have problems with a sore tongue, I get this from time to time. ?? Steroid related

Hi, Does anyone have problems with a sore tongue, I get this from time to time....

Carathedog

•5 months ago

10 Replies

dreadful morning fatigue

sorry , I am still banging on about my terrible morning fatigue. I have posted many times , and just can’t give up searching for an answer to help me feel...

sorry , I am still banging on about my terrible morning fatigue. I have posted m...

Avadip12

•5 months ago

29 Replies

sickness and pred

I’ve been awfully sick this morning, probably related to anti biotics I’m taking for UTI. not sure when to take pred. Any advice?

I’ve been awfully sick this morning, probably related to anti biotics I’m taking...

Alazarin

•5 months ago

8 Replies

Vitamins and Supplements

I am in the throws of reading Chris van Tulleken's book Ultra-Processed People. It has been an eye opener. Not that one hasn't been aware of the harms of...

I am in the throws of reading Chris van Tulleken's book Ultra-Processed People. ...

Ridge

•5 months ago

35 Replies

Prednisolone and osteopenia

Hi I had a Dex scan a few weeks ago and my bone density showed I have osteopenia, I was given calcium and vitamin D tablets to take twice a day. So would it...

Hi I had a Dex scan a few weeks ago and my bone density showed I have osteopenia...

Petertaffy

•5 months ago

22 Replies

Half mg tablets

Just a short post. After a very long time cutting my one mg tablets in half I was telephoned by my surgery yesterday asking why I didn’t request half mg Pred?...

Just a short post. After a very long time cutting my one mg tablets in half I w...

Janet57

•5 months ago

89 Replies

Sleepless due to chest fluttering...adrenals?

Sleepless night with strange feelings in chest difficult to describe..worse lying on left side. Tried breathing exercises to relax etc. Adrenals fluttering...

Sleepless night with strange feelings in chest difficult to describe..worse lyin...

Temoral

•5 months ago

7 Replies

Flare Up

I wrote a couple of weeks ago how I had stopped taking steroids in June and thought that GCA had gone for good after four long years, only to start having...

I wrote a couple of weeks ago how I had stopped taking steroids in June and thou...

Jampad

•5 months ago

24 Replies

You look so well !

I'm doing my best, keeping my mouth zipped not to respond to my Rheumatologist . I enjoyed hearing about her recent trip to India meeting up with folk she had...

I'm doing my best, keeping my mouth zipped not to respond to my Rheumatologist ....

Ullswater

•5 months ago

17 Replies

sensitive teeth

Hi I am off Steriods completely since September but when I got to 3mg my teeth started to get sensitive when eating hot food. Seen dentist no issues. Anyone...

Hi I am off Steriods completely since September but when I got to 3mg my teeth ...

Marley12b

•5 months ago

27 Replies

vertigo and tapering prednisone

Good morning from Michigan, Yesterday morning I went to get out of bed and vertigo struck. I had vertigo last year at this same time. But this year before the...

Good morning from Michigan, Yesterday morning I went to get out of bed and vert...

singingloud

•5 months ago

8 Replies

adrenals perhaps?

Hi everyone - and many many thanks to everyone for being there and supporting us as we travel the PMR/GCA road. I have learnt so much. A bit of background -...

Hi everyone - and many many thanks to everyone for being there and supporting us...

ttabby22

•5 months ago

9 Replies

Red Marks caused by taking Steroids

Can any one give me advice please on what I can use to put on my skin to help reduce these red marks caused by taking Steroids, my arms itch and even without...

Can any one give me advice please on what I can use to put on my skin to help re...

Phed

•5 months ago

14 Replies

Christmas/Holiday Anxiety

*Update* Yesterday, I took a friend with me and went for a test drive to see how it affected me. I drove 2 hours, into an especially beautiful part of the...

*Update* Yesterday, I took a friend with me and went for a test drive to see ho...

JoysFollyNZ

•5 months ago

56 Replies

GCA and Vision update

As you all may recall, I was started in 60 mg. Prednisone in October. I am currently on 40 mg. I have now had 3 (weekly) injections of Actemra. I am still very...

As you all may recall, I was started in 60 mg. Prednisone in October. I am curre...

Lenore58

•5 months ago

15 Replies

Bloods done but still wondering

Bloods done ESR down to 2 just wondering if that means my inflamation is low,never feel tired or low just now, could Adrenals be working down at 3mg pred xx

Bloods done ESR down to 2 just wondering if that means my inflamation is low,nev...

Harrywogan

•5 months ago

7 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2023

I was fine till doctor claimed I’m in remission

GCA flares and eyesight

"Flare"

Fibromyalgia or PMR

Update on skin lesions

Actemra and aches and pains!

Help please. Currently been given advice to go from 2mg Pred up to 40mg! Very worried. Advice please.

Possible GCA/LVV test update

Just a catch up

Where do I go now?

Dexa Scan Results

Flare or Adrenals waking up

PMR and the effect on mental health.

DO I NEED A MEAL?

Sore Tongue

dreadful morning fatigue

sickness and pred

Vitamins and Supplements

Prednisolone and osteopenia

Half mg tablets

Sleepless due to chest fluttering...adrenals?

Flare Up

You look so well !

sensitive teeth

vertigo and tapering prednisone

adrenals perhaps?

Red Marks caused by taking Steroids

Christmas/Holiday Anxiety

GCA and Vision update

Bloods done but still wondering

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