Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,885 posts

All posts for November 2023

GCA and hair loss

Have been on pred now since end of July 2023 - originally 60mg now tapered to 20mg. (stay on 20mg for 2 weeks). Feel fine on that dose. Will taper to 18 mg in...

Have been on pred now since end of July 2023 - originally 60mg now tapered to 20...

Groda

•11 months ago

22 Replies

Visual disturbance

Went to the cinema yesterday and had this type of visual disturbance (left eye only) about half way through the film. It lasted about 15 mn and then...

Went to the cinema yesterday and had this type of visual disturbance (left eye o...

Dochaz

•11 months ago

80 Replies

LVV. GCA part 2

Thank you to everyone who has read and replied with information and tips on helping me come to terms with this condition.I did forget to mention one side...

Thank you to everyone who has read and replied with information and tips on help...

Oxfordboy2

•11 months ago

15 Replies

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PMR/Hiatus hernia and PPIs

I’m not sure what to do now. I was diagnosed in February with PMR and prescribed Omeprazole and 15mg pred (now down to 10mg). Hiatus hernia was discovered...

I’m not sure what to do now. I was diagnosed in February with PMR and prescribed...

Lclmlbls

•11 months ago

37 Replies

diagnosed with PMR

quick introduction , am early 50’s contacted GP after 9months or so of increasing all over pain and stiffness especially in the morning , extreme fatigue, I...

quick introduction , am early 50’s contacted GP after 9months or so of increasin...

Emilydarby

•11 months ago

33 Replies

unintended weight loss

hello, I have tapered from 30mg to 2mg over 26 months where I am stuck because my cortisol levels are stubbornly low ( 58 -80) I have now got a very itchy...

hello, I have tapered from 30mg to 2mg over 26 months where I am stuck because ...

Crochetgardener

•11 months ago

8 Replies

Is it RA?

Hi, Really worried, got horrific shoulder pain and stiffness almost overnight.....been in real pain and got in touch with my GP. He sent me for X-rays and...

Hi, Really worried, got horrific shoulder pain and stiffness almost overnight......

Paulx222

•11 months ago

41 Replies

Methylprednisolone Intramuscular injection

Good afternoon wise people , 8 days ago I had this injection at my Rheumatology appointment . Dr thinks I may have inflammatory arthritis /RA so gave me...

Good afternoon wise people , 8 days ago I had this injection at my Rheumatolo...

5goFlotilla

•11 months ago

8 Replies

DSNS Taper Question

Hi all, At a recent visit to my Rheumy, he told me I'm ready to taper once again. At the time, I was at 7 MG PRED per day. I had been sick with Bronchitis...

Hi all, At a recent visit to my Rheumy, he told me I'm ready to taper once agai...

montebello

•11 months ago

32 Replies

GCA. LVV

Hi Everyone,This is my first post,apologies if it’s a little long.I am a 74 year old male in UK.My journey started in March 2020 when my GP diagnosed GGA with...

Hi Everyone,This is my first post,apologies if it’s a little long.I am a 74 year...

Oxfordboy2

•11 months ago

32 Replies

PMR Symptoms or Pred Withdrawal

I’m currently tapering from 10mg to 9mg. I’m pain free, mobile and active (which I know for many isn’t the case). My initial PMR onset and diagnosis was only...

I’m currently tapering from 10mg to 9mg. I’m pain free, mobile and active (which...

SpaghettiWestern99

•11 months ago

16 Replies

Relapse of GCA

I was diagnosed with GCA in 2019. It took me four years to be able to stop taking steroids because I kept on having flare ups. I was so happy. However, only...

I was diagnosed with GCA in 2019. It took me four years to be able to stop takin...

Jampad

•11 months ago

13 Replies

Tapering

I was diagnosed with PMR in January 2019....I think I had had it for at least 9 months prior to that. I was started on pred.25mgms. Ive done fairly well and...

I was diagnosed with PMR in January 2019....I think I had had it for at least 9 ...

MargaritaRose

•11 months ago

7 Replies

Advice re covid jab

I had Covid in early September. Not sure when to go for booster. I think I should wait for a few months. Any thoughts ?

I had Covid in early September. Not sure when to go for booster. I think I shoul...

Ana-16

•11 months ago

20 Replies

Stress Fracture

Has any one else had stress fractures in the foot from prednisolone.I got a sharp pain in the side of my foot about a week ago..I went to the Dr today...

Has any one else had stress fractures in the foot from prednisolone.I got a shar...

Raewynne

•11 months ago

11 Replies

Slow heart rate

I have been diagnosed with bradycardia. One electrophysiologist wants me to have a pacemaker and another (for a second opinion) says I don't need one. I...

I have been diagnosed with bradycardia. One electrophysiologist wants me to hav...

RaisinBran

•11 months ago

16 Replies

Sisters Sciatica Pain and Prednisone

My 89 year old sister had her second appt with a chiropractor and appears to feel better after her session with him. When I reached out to her this am, she...

My 89 year old sister had her second appt with a chiropractor and appears to fee...

RaisinBran

•11 months ago

15 Replies

bad flare. How to reduce again?

Have GCA/PMR since 2020. Got down to 5 mgs but this last year huge stress moving house and city plus other stresses. Got terrible head pains back. Went on...

Have GCA/PMR since 2020. Got down to 5 mgs but this last year huge stress moving...

CathyMeg

•11 months ago

13 Replies

Opinions please - do I need to worry?

Sitting here feeling a bit concerned. I have been on pred since August 2020 and currently on 4mg. Apparently have adrenal insufficiency according to my...

Sitting here feeling a bit concerned. I have been on pred since August 2020 and ...

marionofnorwich

•11 months ago

35 Replies

An update

it’s been a while since I posted but I read the questions, comments and answers every day. I am in awe of the patience, knowledge and understanding of the main...

it’s been a while since I posted but I read the questions, comments and answers ...

Ana-16

•11 months ago

16 Replies

Gastric side effect of PMR medications

Hello, I am relatively newly diagnosed with PMR, in July 2023, and just starting my tapering journey. I started on 20mg Prednisolone (now just reached...

Hello, I am relatively newly diagnosed with PMR, in July 2023, and just start...

Suobe

•11 months ago

11 Replies

Statins/PMR

I was put on statins 4 weeks ago due to high cholesterol readings at GP surgery. A week ago, I started experiencing muscle pain across shoulders, front and...

I was put on statins 4 weeks ago due to high cholesterol readings at GP surgery....

Sufferinginsilence

•11 months ago

44 Replies

Any advice would be helpful,

Down to 2mg of pred,and staying there for 8weeks, have sore leg or hip not sure in my PMR journey never had any problems with hips or legs, I don't think IAM...

Down to 2mg of pred,and staying there for 8weeks, have sore leg or hip not sure ...

Harrywogan

•11 months ago

13 Replies

Covid vaccine during tapering down PMR?

Thanks so much for the valuable responses, which I am studying ongoing,to my previous posts. I was dubious about the Covid vaccine possibly bringing back my...

Thanks so much for the valuable responses, which I am studying ongoing,to my pre...

kangaroojohn

•11 months ago

2 Replies

Slippery Elm & Steroids

I have used Slippery Elm in the past for gastritis and found it superior to Omeprazole. My concern is about medications being absorbed properly if taken at...

I have used Slippery Elm in the past for gastritis and found it superior to Omep...

PhilFreeToAsk

•11 months ago

23 Replies

Rheumatologist diagnosis

Hi My Rheumy says my PMR is atypical with a normal CRP . My ESR is 39 . Which she believes is normal and it’s due to my weight - 14 stone . Wants to refer...

Hi My Rheumy says my PMR is atypical with a normal CRP . My ESR is 39 . Which...

TedTheMaineCoon

•11 months ago

27 Replies

Pred tapering question

Hello, silly question, I am on week 2 of DL’s very good 5 week tapering plan. Going from 7mg to 6.5mg. (I think I experience withdrawal symptoms, as in...

Hello, silly question, I am on week 2 of DL’s very good 5 week tapering plan. G...

Saffron23

•11 months ago

8 Replies

past my sell by date part 3

I sort of struck lucky with a new gp who ordered a raft of tests “Sort of” because whereas I couldn’t understand some results I have been booked in for a US...

I sort of struck lucky with a new gp who ordered a raft of tests “Sort of” bec...

AnniesRyder5

•11 months ago

11 Replies

Muscle Strain long recovery time ?

Over a week ago I tried to move our Wheelie Bin a few feet - and since have twinges and spasms of pain in my right side , hip and back , I have had Polymyalgia...

Over a week ago I tried to move our Wheelie Bin a few feet - and since have twin...

RoomsonFire

•11 months ago

14 Replies

neck discomfort

Hi everyone, Being a PMR sufferer for a number of years I find it difficult to sleep sometimes with the discomfort in neck and shoulders. Have tried two...

Hi everyone, Being a PMR sufferer for a number of years I find it difficult to...

Bleakley1

•11 months ago

10 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2023

GCA and hair loss

Visual disturbance

LVV. GCA part 2

PMR/Hiatus hernia and PPIs

diagnosed with PMR

unintended weight loss

Is it RA?

Methylprednisolone Intramuscular injection

DSNS Taper Question

GCA. LVV

PMR Symptoms or Pred Withdrawal

Relapse of GCA

Tapering

Advice re covid jab

Stress Fracture

Slow heart rate

Sisters Sciatica Pain and Prednisone

bad flare. How to reduce again?

Opinions please - do I need to worry?

An update

Gastric side effect of PMR medications

Statins/PMR

Any advice would be helpful,

Covid vaccine during tapering down PMR?

Slippery Elm & Steroids

Rheumatologist diagnosis

Pred tapering question

past my sell by date part 3

Muscle Strain long recovery time ?

neck discomfort

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