Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,086 members • 39,890 posts

All posts for November 2023

Long haul travel

I have to travel from the UK to New Zealand to visit my brother who has a terminal illness. I am travelling in a short time frame, just a week to go out and...

I have to travel from the UK to New Zealand to visit my brother who has a termin...

paintpots

•11 months ago

41 Replies

Food poisoning

Some advice please,I have food poisoning,sickness and diarrhoea,although the sickness seems to have cleared up! There is no way I can eat anything,I have some...

Some advice please,I have food poisoning,sickness and diarrhoea,although the sic...

Seamab

•11 months ago

4 Replies

Vasculitis/Tocilizumab

I have posted before regarding the fact that after a year on steroids and having many side effects I was told to reduce them by 1mg a month. My rheumatologist...

I have posted before regarding the fact that after a year on steroids and having...

Daniella7

•11 months ago

17 Replies

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dentist

Not sure if I am posting in the right place …..I am nearly off steroids but due to have a root canal treatment should i take steroids before? Thank you for...

Not sure if I am posting in the right place …..I am nearly off steroids but due ...

shella

•11 months ago

9 Replies

By how should I increase my prednisone?

Hi All,I have had PMR since 2011 when diagnosed. I had got down to 5mg of pred and was on this dosage for many years until I had a massive flare at the...

Hi All,I have had PMR since 2011 when diagnosed. I had got down to 5mg of pred...

Buenavista

•11 months ago

7 Replies

Recommendations for a rheumatologist in Merseyside area please.

I was 65 in August, about six to eight weeks ago I started having really painful hips, fatigued, night sweats, eye and temple pains. I have mild lupus...

I was 65 in August, about six to eight weeks ago I started having really painful...

Pennypip

•11 months ago

9 Replies

SECOND TIME AROUND

Hello Everyone This is my second time around with PMR. I was on a forum before and it was so helpful to me I am hoping this forum will help me too.

Hello Everyone This is my second time around with PMR. I was on a forum before...

Jampel

•11 months ago

6 Replies

Benefits,

A very simple question,if anyone can verify this, my neighbour who has G C A has in formed me I should be getting some kind of benefits, she is, IAM confused...

A very simple question,if anyone can verify this, my neighbour who has G C A has...

Harrywogan

•11 months ago

45 Replies

Prophylactic Prednisone

I am wondering if any recovered PMR sufferers now use prednisone prophylactically (or even neurotically)? For example, is there anyone out there who continues...

I am wondering if any recovered PMR sufferers now use prednisone prophylacticall...

soreoldbiker

•11 months ago

16 Replies

Low Mood on Pred

I restarted 10mg of pred 4 weeks ago. It works wonders physically but I have noticed that I now seem to have what I call low mood. I am pretty sure this...

I restarted 10mg of pred 4 weeks ago. It works wonders physically but I have not...

SudsSuds

•11 months ago

18 Replies

GCA Symptoms

Sorry for this third post in a week! For those of you with GCA where was the headache? I am so hoping I’m worrying for nothing but headache coming on at...

Sorry for this third post in a week! For those of you with GCA where was the he...

DogAgilityObsessed

•11 months ago

48 Replies

vitamin c infusions

hi everyone, Another question for you very helpful people Probably like everyone, we are all getting tips and advice from our friends to deal with PMR....

hi everyone, Another question for you very helpful people Probably like ever...

MegfromOz

•11 months ago

4 Replies

Pneumonia vaccines in the US and recommendations.

https://www.cdc.gov/vaccines/vpd/pneumo/public/index.html

Karenjaninaz

•11 months ago

2 Replies

Worried

hi, I have joined this group for some advice please. I was 65 in August and a few weeks later started with painful hips, eye aches and occasional sharp...

hi, I have joined this group for some advice please. I was 65 in August and a f...

Pennypip

•11 months ago

21 Replies

Return of PMR

My PMR has returned. To my hands and wrists. I was surprised to learn that PMR can attack the hands, wrists, and knees as well as, but not as often as, the...

My PMR has returned. To my hands and wrists. I was surprised to learn that PMR c...

skipspmr

•11 months ago

19 Replies

Problems Tapering at 2.5 to 2.00

I have done really well on the slow 7 week taper but over the last month I have had gradual stiffness and sometimes loss of use in my arms and hands. Some days...

I have done really well on the slow 7 week taper but over the last month I have ...

Rymer

•11 months ago

6 Replies

MY SMALL SUCCESS GIVES ME HOPE

I’m on my second journey on pred (down to 4.5). My husband is slowly getting some mobility back after a stroke in January. Over the last couple of years, I...

I’m on my second journey on pred (down to 4.5). My husband is slowly getting som...

Artandpoetry

•11 months ago

24 Replies

PMR and coated Prednisolone tablets

Hallo Has anyone been able to have prescribed for them prednisolone tablets that are labelled as "enteric coated" or "gastro resistant" ? these can be taken...

Hallo Has anyone been able to have prescribed for them prednisolone tablets tha...

Freshairfiend

•11 months ago

18 Replies

Eye Tremors and loss of balance. Why?

My son, 31 developed eye tremors and gradual loss of balance over the past 12 months.Doctors and neurologists are mystified despite intensive investigation....

My son, 31 developed eye tremors and gradual loss of balance over the past 12 m...

Sam041155

•11 months ago

6 Replies

Relapse of GCA

On Friday I posted that after only a few months off steroids I was again suffering from GCA. The GP gave me 60mg steroids and after only three days I am...

On Friday I posted that after only a few months off steroids I was again sufferi...

Jampad

•11 months ago

6 Replies

What happens when Adrenal Gland starts working

I am back down to, and hovering, at 6.5mg Prednisolone, over the past few days have developed a nasty niggling pain deep in the left side of my neck and...

I am back down to, and hovering, at 6.5mg Prednisolone, over the past few days h...

Golf-1

•11 months ago

33 Replies

paxclovid

hi. I tested positive on Sat night and rang 111 . They told me to take Paxclovid for 5 days but not to take any steroids during that time. Now slightly...

hi. I tested positive on Sat night and rang 111 . They told me to take Paxclovi...

grannyouch

•11 months ago

62 Replies

Temporal Artiritis - Mums current status

With no improvement in her condition, and another week before she sees any specialists, the road is still pretty shakey. She has one day in 3 without pain, and...

With no improvement in her condition, and another week before she sees any speci...

DianaAdshead

•11 months ago

12 Replies

Pneumonia vaccination

Hi all. I have recently returned to Spain for the foreseeable future and managed to get my covid vaccination shortly after my arrival a few weeks ago. I had my...

Hi all. I have recently returned to Spain for the foreseeable future and managed...

Elispeth

•11 months ago

44 Replies

RSV and Flare

hi everyone, I seem to be in the wars a bit at the moment and need some advice: - diagnosed PMR and RA April 23 - dosage of 30mg pred and 20 mg methotrexate...

hi everyone, I seem to be in the wars a bit at the moment and need some advice: ...

MegfromOz

•11 months ago

9 Replies

Kripalu Yoga sprinkle spices for Inflamation!

Earlier, I was reading some posts regarding various spices, and I thought I'd share this. In my 'rowdier' days and living in Maine in 2011, I traveled to the...

Earlier, I was reading some posts regarding various spices, and I thought I'd sh...

Grammy80

•11 months ago

25 Replies

is dark chocolate good for us?

I do not have a sweet tooth and for many years have preferred dark chocolate. My favourite is Lindt 90% cocoa, but more often I end up with a different brand...

I do not have a sweet tooth and for many years have preferred dark chocolate. M...

musicalJ

•11 months ago

61 Replies

Tapering / Flare Question

I know there are so many resources here about tapering, so I’m sorry to have a redundant question… but, I’d appreciate comments. I’ve been 16 months on pred,...

I know there are so many resources here about tapering, so I’m sorry to have a r...

canadacando

•11 months ago

4 Replies

How long do you wait to up prednisone with GCA pain

I upped my prednisone from 12 to 15 this morning but the pain in my temple area is getting worse. I just upped it again by 5 mg so I am at 20 now. Should I up...

I upped my prednisone from 12 to 15 this morning but the pain in my temple area ...

Plains

•11 months ago

12 Replies

weight gain

I have been on preds since early July and despite my best efforts have put on a few pounds….not excessive but it’s a slippery slope!!! I’ve cut back on...

I have been on preds since early July and despite my best efforts have put on a ...

Nanatoo

•11 months ago

32 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for November 2023

Long haul travel

Food poisoning

Vasculitis/Tocilizumab

dentist

By how should I increase my prednisone?

Recommendations for a rheumatologist in Merseyside area please.

SECOND TIME AROUND

Benefits,

Prophylactic Prednisone

Low Mood on Pred

GCA Symptoms

vitamin c infusions

Pneumonia vaccines in the US and recommendations.

Worried

Return of PMR

Problems Tapering at 2.5 to 2.00

MY SMALL SUCCESS GIVES ME HOPE

PMR and coated Prednisolone tablets

Eye Tremors and loss of balance. Why?

Relapse of GCA

What happens when Adrenal Gland starts working

paxclovid

Temporal Artiritis - Mums current status

Pneumonia vaccination

RSV and Flare

Kripalu Yoga sprinkle spices for Inflamation!

is dark chocolate good for us?

Tapering / Flare Question

How long do you wait to up prednisone with GCA pain

weight gain

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