Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for July 2023

Can I say I'm a veteran now?

Hi everyone, It's been a while since I last posted something. Maybe three months. During that time I managed to taper from 30 mg down to 6 with no symptoms. I...

Hi everyone, It's been a while since I last posted something. Maybe three month...

sferios

•10 months ago

11 Replies

advice please

I am down to below the 1mg. Wonderful! Have reduced to 0.5mgs one week ago from 0.75mgs, but last night woken up by bad paIn in my right arm where I had the...

I am down to below the 1mg. Wonderful! Have reduced to 0.5mgs one week ago fro...

Gossiplady

•10 months ago

5 Replies

Lansoprazole

I was diagnosed with PMR in december 2021 and a subsequent blood test told me that my bloods were up but only slightly. Consultant put me on a tapered course...

I was diagnosed with PMR in december 2021 and a subsequent blood test told me th...

Tony558

•10 months ago

6 Replies

Want to take advantage of all our features? Just log in!

Activ8 joint complete capsules

Has anyone tried these? Not for p.m.r so much but for joint health.They are only available on Dr P .O,Donnell website…not in shops or Amazon..not cheap! ?worth...

Has anyone tried these? Not for p.m.r so much but for joint health.They are only...

anutycrixp

•10 months ago

5 Replies

Negative HLA-B27

Quick recap, Dr originally diagnosed me with PMR, put me on 30 mg prednisone 14 weeks ago. After no great improvement he advised me to taper off so am now...

Quick recap, Dr originally diagnosed me with PMR, put me on 30 mg prednisone 14 ...

Monkey321

•10 months ago

7 Replies

Is it Adrenal Insufficiency

I am down to 4.5mg Prednisolone. It has been up and down but OK. Two weeks or longer on this dose before I even start trying for 4mg. Yesterday I took the...

I am down to 4.5mg Prednisolone. It has been up and down but OK. Two weeks or lo...

Ridge

•10 months ago

46 Replies

Not sure if its really PMR

Hi everyone, as per my previous post I've just been told that my symptoms suggest I have PMR. My GP has sought advice from Rheumatology and been advised to...

Hi everyone, as per my previous post I've just been told that my symptoms sugges...

Kma123

•10 months ago

14 Replies

Acid reflux

Anyone noticing difficulty swallowing along with acid reflux? I read that prednisone can cause this, causes the esophagus to not contract enough. I tried...

Anyone noticing difficulty swallowing along with acid reflux? I read that predn...

Paulagcl

•10 months ago

6 Replies

methotrexate pill vs injection?

im now starting the methox injection on Monday as the pills were horrendous for me I can’t live with those side affects, it feels like im poisoning my body! So...

im now starting the methox injection on Monday as the pills were horrendous for ...

Heidiypi1

•10 months ago

5 Replies

athritus

thats my problem now im stuck on 7.5 now get lots of pain and stifness in my arm s hands shoulder rummi seames to put it all down to Arther. Sorrie bad...

thats my problem now im stuck on 7.5 now get lots of pain and stifness in my arm...

Ronzy

•10 months ago

22 Replies

Relapse 3 years later?

Had PMR, treated sucessfully. Came off Pred completely October 2020. My ESR was 26 at that time and rheumatology ordered repeat bloods. Had the bloods. Never...

Had PMR, treated sucessfully. Came off Pred completely October 2020. My ESR was...

Purplelamp

•10 months ago

11 Replies

Hi21- gh CRP + Holiday

I commenced MTX in May of this year. I have been taking 6mg Pred since then. My CRP levels have been - 21 - 42 - 23 -28. I am about to go on a 2wk holiday...

I commenced MTX in May of this year. I have been taking 6mg Pred since then. M...

magpie990

•10 months ago

4 Replies

What is it?

Iam just wondering if it's just me.Sometimes I can't decipher if it's pmg or old age pain.I know taking pain meds doesn't help pmg so is that the way we...

Iam just wondering if it's just me.Sometimes I can't decipher if it's pmg or old...

Hunter134

•10 months ago

10 Replies

Stopped Tocilizumab, CRP rising, is it a GCA flare?

I'm hoping to find someone else who had GCA, has stopped taking steroids and stopped Tocilizumab (Actemra), to know how their journey went from then on...

I'm hoping to find someone else who had GCA, has stopped taking steroids and st...

Frenchduck

•10 months ago

39 Replies

Pred and MTX what to do next my Dilemma

Just after other’s thoughts and opinions , I stopped MTX 7 weeks ago to undergo dental surgery and then a fortnight after that prostate surgery , I was...

Just after other’s thoughts and opinions , I stopped MTX 7 weeks ago to undergo...

Gaz227

•10 months ago

8 Replies

Doctor follow up

Quick recap: in hospital with pneumonia and Pred increased to 10mg (from 4.5mg). Saw GP on discharge and was prescribed 10mg for 4 weeks. He also cancelled my...

Quick recap: in hospital with pneumonia and Pred increased to 10mg (from 4.5mg)....

Janann25

•10 months ago

10 Replies

Do we get annual reviews as PMR patients?

I get an annual review with a practice nurse for Blood Pressure and another one for Asthma. I have not been called for a PMR review. Is it a condition that is...

I get an annual review with a practice nurse for Blood Pressure and another one ...

HalleysComet

•10 months ago

17 Replies

Azathioprine or methotrexate

Off to see the Rheumatologist in person today. I’ve been taking 40mg pred for the last 12 days following their phone consultation advice. I am sure I’ll be...

Off to see the Rheumatologist in person today. I’ve been taking 40mg pred for th...

Rebsy

•10 months ago

9 Replies

spinal stenosis

Hi Does anyone have spinal stenosis? I was diagnosed 2 & a half years ago after MRI scan . The consultant said it was foraminal spinal stenosis, bilateral....

Hi Does anyone have spinal stenosis? I was diagnosed 2 & a half years ago afte...

TedTheMaineCoon

•10 months ago

18 Replies

Shortages of MTX

Good evening. I'm wondering if anyone else has been affected by the current shortages in UK and USA. My brand was changed due to this and I am getting very bad...

Good evening. I'm wondering if anyone else has been affected by the current shor...

WaltzG

•10 months ago

8 Replies

Painkillers

Hi, sorry for my second post in as many days! What painkillers are safe to take with prednisolone please? I'm assuming paracetamol but wasn't sure if anything...

Hi, sorry for my second post in as many days! What painkillers are safe to take ...

Kma123

•10 months ago

27 Replies

Just a bit of advice

I managed to get to 8 mg the last 2 week's but iam feeling the inflammation building up again.I just wanted to know if iam correct to go up to 9 mg where I was...

I managed to get to 8 mg the last 2 week's but iam feeling the inflammation buil...

Hunter134

•10 months ago

6 Replies

Steroid sparing drugs

Hi Folks! I've had GCA for three years. Last August I had a huge flare up with double vision. I was given MTX. I got down to 3mg Pred...then it went a bit...

Hi Folks! I've had GCA for three years. Last August I had a huge flare up with...

PuttyPenguin

•10 months ago

21 Replies

Thank you

Thank you all for your responses to my geographic question. I understand and appreciate it very much. Take care and I pray you all have a great and pain free...

Thank you all for your responses to my geographic question. I understand and ap...

preith17022

•10 months ago

1 Reply

Is it normal or a flare??

Hi, I’m fairly new to the world of PMR and have found this site invaluable for information and support. I was diagnosed in May this year, started on 15 mg...

Hi, I’m fairly new to the world of PMR and have found this site invaluable for...

Fishtacoqueen

•10 months ago

16 Replies

Does PMR cause breathlessness and cold hands and feet?

I am 80. UK based. Diagnosed after a 7 month battle in Oct 2022 and started on 15 mg Now on 9.5mg but started to get breathless. I take a preventive asthma...

I am 80. UK based. Diagnosed after a 7 month battle in Oct 2022 and started o...

Motida

•10 months ago

3 Replies

Where is my GP?

In my area it has got to the point where it is pretty well nigh impossible to get an appointment with our GPs. One patient in my village could not get an...

In my area it has got to the point where it is pretty well nigh impossible to ge...

piglette

•10 months ago

69 Replies

Last call for participants to join focus group discussion 1st August 2023: PMR and exercise

Hi there. Three more participants are needed for the above. Please send me an email to s.eng@keele.ac.uk if you would like to contribute to the discussion....

Hi there. Three more participants are needed for the above. Please send me an e...

NobleGoodHero

•10 months ago

1 Reply

UTI or?

Good Morning lovely people. I started a reduction down to 4.75 Pred last week and have noticed shoulder and elbow pain. Not drastic but still soldiering on....

Good Morning lovely people. I started a reduction down to 4.75 Pred last week a...

Pippah45

•10 months ago

15 Replies

Ibuprofen with pred? The answer …

… in case anyone’s still interested. After going round a couple of unproductive loops trying to speak to a doctor about whether I could take Ibuprofen to...

… in case anyone’s still interested. After going round a couple of unproductiv...

calibriel

•10 months ago

9 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2023

Can I say I'm a veteran now?

advice please

Lansoprazole

Activ8 joint complete capsules

Negative HLA-B27

Is it Adrenal Insufficiency

Not sure if its really PMR

Acid reflux

methotrexate pill vs injection?

athritus

Relapse 3 years later?

Hi21- gh CRP + Holiday

What is it?

Stopped Tocilizumab, CRP rising, is it a GCA flare?

Pred and MTX what to do next my Dilemma

Doctor follow up

Do we get annual reviews as PMR patients?

Azathioprine or methotrexate

spinal stenosis

Shortages of MTX

Painkillers

Just a bit of advice

Steroid sparing drugs

Thank you

Is it normal or a flare??

Does PMR cause breathlessness and cold hands and feet?

Where is my GP?

Last call for participants to join focus group discussion 1st August 2023: PMR and exercise

UTI or?

Ibuprofen with pred? The answer …

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive