Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,219 members•40,234 posts

All posts for July 2023

Survey about the future of the FAIRVASC project - have your say

Vasculitis UK alongside the Ireland's and Netherland's Vasculitis organisations participated in the FAIRVASC project. FAIRVASC is a Europe-wide research...

Vasculitis UK alongside the Ireland's and Netherland's Vasculitis organisations ...

zoe69

•1 year ago

5 Replies

A decision to Rest

Hello lovely people. I’m usually on lupus forum but decided to join this one as well. My aunt had PMR and was put in a nursing home. Three children and no...

Hello lovely people. I’m usually on lupus forum but decided to join this one as ...

MrsMarigold

•1 year ago

8 Replies

Effects of weather - there may not be an answer to this.

Hi ,I have been feeling OK having reduced to 1mg of pred for the last 6 days, however I noticed that last night as low air pressure moved in before it rained I...

Hi ,I have been feeling OK having reduced to 1mg of pred for the last 6 days, ho...

Animalover65

•1 year ago

21 Replies

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Colonoscopy

Hi I’m due a colonoscopy next week and wondered what other people have done about their steroids. The prep leads to bowel evacuation. I’m currently on 7.5...

Hi I’m due a colonoscopy next week and wondered what other people have done abo...

Thelmarina

•1 year ago

25 Replies

DHEA curious...

Has anyone used this supplement to help with adrenal insufficiency?

christi48

•1 year ago

21 Replies

Neuralgia and GCA

Hi all Has anyone experienced symptoms of neuralgia alongside GCA, my GCA is well controlled on my current treatment but I’m getting severe pain in my face...

Hi all Has anyone experienced symptoms of neuralgia alongside GCA, my GCA is we...

Graciejack4

•1 year ago

6 Replies

Rinvoq can anyone please advise me if they have been on this drug

I have ankylosing spondylitis lupus and ulcerative colitis. I had another mri which has shown extensive inflammation throughout my spine despite being on...

I have ankylosing spondylitis lupus and ulcerative colitis. I had another mri wh...

Kitten15

•1 year ago

8 Replies

From US?

Is anyone on this forum from the US? I notice UK and Australia more than not. Just wondering. Have a great day

Is anyone on this forum from the US? I notice UK and Australia more than not. ...

preith17022

•1 year ago

70 Replies

Apology.

Apologies to anyone offended by my use of the word "whingers" in my recent post. This was used in a reply to a post that used that word, not to anyone...

Apologies to anyone offended by my use of the word "whingers" in my recent post....

pmrgcavictim

•1 year ago

2 Replies

wrong diagnosis - paying the price update

Consultant visit this evening- almost certain PMR but pain in wrists/hands more like inflammatory arthritis (I’m not convinced as I’ve read enough on here and...

Consultant visit this evening- almost certain PMR but pain in wrists/hands more ...

RedRum1968

•1 year ago

10 Replies

Charlie Mackesy

I love this.

Kendrew

•1 year ago

22 Replies

bursitis.. can you have bursitis with PMR

I thought I had sciatica ( I,ve had PMR for over. Year and on prednisalone). Terrible hip pain thought sciatica but now think it might be bursitis. Cannot...

I thought I had sciatica ( I,ve had PMR for over. Year and on prednisalone). T...

Elmadon

•1 year ago

32 Replies

GCA with Lupus

I was first diagnosed with PMR first about 10 years ago. That was quickly followed by diagnosis of lupus. After complaining of headache in right temple area...

I was first diagnosed with PMR first about 10 years ago. That was quickly follo...

Gluten

•1 year ago

1 Reply

PMR or RA?

Background: (And all we know at this point) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ - Husband diagnosed with PMR in...

Background: (And all we know at this point) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~...

Andymegv

•1 year ago

7 Replies

Mental health of sufferers from systematic auto-immune rheumatic diseases

Just got this link today because I responded to a questionnaire. GCA /PMR is not specifically mentioned, but is part of the picture...

Just got this link today because I responded to a questionnaire. GCA /PMR is not...

Dochaz

•1 year ago

9 Replies

Newly diagnosed

Hi everyone, I've just been told that my symptoms suggest I have PMR. My GP has sought advice from Rheumatology and been advised to treat as PMR and see how my...

Hi everyone, I've just been told that my symptoms suggest I have PMR. My GP has ...

Kma123

•1 year ago

20 Replies

Sciatica

I’ve had PMR for 18 months and had got down to 8mg. Pain in one hip and assumed it was a spike so went back to 12mg as advised by doctor. However symptoms...

I’ve had PMR for 18 months and had got down to 8mg. Pain in one hip and assumed...

Elmadon

•1 year ago

14 Replies

New adaptations

I can t find it now but yesterday I saw a couple of posts from people who had found new interests to substitute for things they couldn't do any more -- this is...

I can t find it now but yesterday I saw a couple of posts from people who had fo...

Paulagcl

•1 year ago

6 Replies

Results of Rheumatology Patient experiences Research

The PMR PRO highlighted this study awhile back and the results are now out. No big surprises but gratifying to know that this research has highlighted some of...

The PMR PRO highlighted this study awhile back and the results are now out. No b...

Seekingasolution

•1 year ago

6 Replies

Termeric

Hi all, I've had Pmr for about 18 months now and I read all these Q&A with interest, I was on 30mg and now down to 10mg but I don't seem to have a lot of these...

Hi all, I've had Pmr for about 18 months now and I read all these Q&A with inter...

Petertaffy

•1 year ago

10 Replies

At Last !

Just to let you know , the kind people who have helped me on here numerous times i have at last got the date for my new hip, August the 17th.I went for my...

Just to let you know , the kind people who have helped me on here numerous time...

Viv54

•1 year ago

11 Replies

wrong diagnosis - paying the price!!

briefly, diagnosed by GP with PMR in April this year, on 15mg of prednisolone - total relief (all day/night). Rheumatology Consultant said not PMR as CRP...

briefly, diagnosed by GP with PMR in April this year, on 15mg of prednisolone - ...

RedRum1968

•1 year ago

22 Replies

Prednisolone withdrawal.

I just came from a Rheumatologist appointment. He has discontinued my prednisolone. I'm currently taking 5/10mg. tablets. I ran out of the liquid about a...

I just came from a Rheumatologist appointment. He has discontinued my prednisol...

pomeranion

•1 year ago

13 Replies

does poor adrenal function until they work again increase CRP results?

As in your dropping the prednisone under 10 and down lower and lower? I just dropped today from 7.5 to 5, and don't yet feel any different.

As in your dropping the prednisone under 10 and down lower and lower? I just dr...

sdowney717

•1 year ago

8 Replies

My doctor won't acknowledge PMR without inflammation markers in blood tests.

I have been in unbelievable pain for seven months. Was vaguely suggested PMR by neurologist and given prednisone, I was well for about five months.after the...

I have been in unbelievable pain for seven months. Was vaguely suggested PMR by...

Yogikay

•1 year ago

14 Replies

I see no "reply" link under any of the posts.

Can't figure out how to reply -- there's no such link showing up.

Paulagcl

•1 year ago

6 Replies

New to this forum

I am happy to have found this forum. The posts today about the emotional aspects of acceptance, etc etc were very helpful. I am confused about the site -- I...

I am happy to have found this forum. The posts today about the emotional aspect...

Paulagcl

•1 year ago

19 Replies

Biologics to treat PMR

I've had PMR since March 2019. Now tapering slowly to 4.5mg. My neighbour is about to start Biologics for a severe auto-immune chest complaint and asked if PMR...

I've had PMR since March 2019. Now tapering slowly to 4.5mg. My neighbour is abo...

HelenDaisy

•1 year ago

43 Replies

Should I persevere and keep working?

I’m just starting to taper from 10mg prednisolone to 9.5mg using the DSNS method. I’m 71 and until PMR hit I was very fit and active and still working 3 six...

I’m just starting to taper from 10mg prednisolone to 9.5mg using the DSNS method...

Mfaepink1973

•1 year ago

16 Replies

Have you ever had a PET-CT scan? Quick questionnaire.

Dr Ben Mulhearn who recently gave a talk at one of our PMRGCAuk Week webinars is conducting some research relating to PET-CT scans and looking for patient...

Dr Ben Mulhearn who recently gave a talk at one of our PMRGCAuk Week webinars is...

Fran_Benson

Partner•1 year ago

14 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2023

Survey about the future of the FAIRVASC project - have your say

A decision to Rest

Effects of weather - there may not be an answer to this.

Colonoscopy

DHEA curious...

Neuralgia and GCA

Rinvoq can anyone please advise me if they have been on this drug

From US?

Apology.

wrong diagnosis - paying the price update

Charlie Mackesy

bursitis.. can you have bursitis with PMR

GCA with Lupus

PMR or RA?

Mental health of sufferers from systematic auto-immune rheumatic diseases

Newly diagnosed

Sciatica

New adaptations

Results of Rheumatology Patient experiences Research

Termeric

At Last !

wrong diagnosis - paying the price!!

Prednisolone withdrawal.

does poor adrenal function until they work again increase CRP results?

My doctor won't acknowledge PMR without inflammation markers in blood tests.

I see no "reply" link under any of the posts.

New to this forum

Biologics to treat PMR

Should I persevere and keep working?

Have you ever had a PET-CT scan? Quick questionnaire.

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for July 2023

Survey about the future of the FAIRVASC project - have your say

A decision to Rest

Effects of weather - there may not be an answer to this.

Colonoscopy

DHEA curious...

Neuralgia and GCA

Rinvoq can anyone please advise me if they have been on this drug

From US?

Apology.

wrong diagnosis - paying the price **update**

Charlie Mackesy

bursitis.. can you have bursitis with PMR

GCA with Lupus

PMR or RA?

Mental health of sufferers from systematic auto-immune rheumatic diseases

Newly diagnosed

Sciatica

New adaptations

Results of Rheumatology Patient experiences Research

Termeric

At Last !

wrong diagnosis - paying the price!!

Prednisolone withdrawal.

does poor adrenal function until they work again increase CRP results?

My doctor won't acknowledge PMR without inflammation markers in blood tests.

I see no "reply" link under any of the posts.

New to this forum

Biologics to treat PMR

Should I persevere and keep working?

Have you ever had a PET-CT scan? Quick questionnaire.

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive

wrong diagnosis - paying the price update