What is it?: Iam just wondering if it's just me... - PMRGCAuk

PMRGCAuk

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What is it?

Hunter134 profile image
10 Replies

Iam just wondering if it's just me.Sometimes I can't decipher if it's pmg or old age pain.I know taking pain meds doesn't help pmg so is that the way we confirm?

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Hunter134 profile image
Hunter134
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10 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

It’s not just you, especially as you get lower on Pred, the normal aches and pain of life [not helped by age] do re-appear…

..and you are correct, if they are helped by painkillers it probably just that….painkillers do zilch for PMR itself , although it may help a little with withdrawal symptoms in some people.

What aches and pains do you have in particular? Or are they too numerous to mention ? 😳,, 😂🤣

Hunter134 profile image
Hunter134 in reply to DorsetLady

I've been getting pains in wrists.Also have pains where my legs meet my torso.Thats new pain.It is both sides.Iam assuming it's inflammation!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Hunter134

Wrists can be affected by PMR - or carpal tunnel syndrome…. Legs/torso - around hips or groin?

Have you tried painkillers? .. and what dose of Pred are you on now? - recently reduced?

Hunter134 profile image
Hunter134

The pain is on both sides where my legs attach to my body.I had tapered to 8 mg aft a month but in two weeks I felt pain.So I've upped my prednisone to 10 mg.Its helping already.I guess I for a week then drop to maybe 9mg?

PMRpro profile image
PMRproAmbassador in reply to Hunter134

On the outer aspect of your thighs or in the groin? Either way it could be bursitis.

Hunter134 profile image
Hunter134 in reply to PMRpro

It's the bones at the side of my legs .Does pmg burn in a flare?

PMRpro profile image
PMRproAmbassador in reply to Hunter134

Do the pictures here match?

orthoinfo.aaos.org/en/disea....

my.clevelandclinic.org/heal...

It does sound as if it might be part of your PMR since it is on both sides. You need enough oral pred - but a better approach if you can get it would be local steroid injections. Physio would possibly also help - there are stretches that will ease it somewhat. And icing over the point of the femur.

Hunter134 profile image
Hunter134 in reply to PMRpro

Thank you.I ll look into it.But your right it came with this flare.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Hunter134

Might need a tad more -to really sort it out. This link contains usual advice for dealing with a flare -

healthunlocked.com/pmrgcauk...

MiniSpec profile image
MiniSpec

I recognise the pain on the outside of each hip. I get that when I go too low with my Pred. I've found that sleeping in the recovery position helps, as it stops me from putting weight directly onto the affected part of the hip, but it's still there and doesn't go away unless I up the Pred amount I take, painkillers didn't seem to do much, if anything at all to diminish the pain. So I had to up the Pred dose each day, and then it just faded away.

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