Campaign to raise awareness of PMR - We need your help!

[Fran_Benson]

We are really pleased to launch a campaign to raise awareness of PMR and some of the 'myths' that surround it. We've worked with Dr Sarah Mackie and a group of PMRGCAuk members and PMR patients to uncover four common PMR misunderstandings that can cause patients concern or delay their diagnosis. Over the next eight weeks, we will share them across social media.

But we need your help! It's not enough to put this information here on our HealthUnlocked forum, on our Facebook page or website - we need people to share the message too.

If every one of our active forum members (and there are nearly 5,000) shared this information, more people might be helped to get a diagnosis or to understand their condition better.

There's more information here pmrgca.org.uk/pmr/

Look out for the first myth buster on 14th August and then use Facebook or Twitter to spread the message. If you're not on other social media, print off the information and share with your doctor or email a friend.

We hope you will be part of our campaign to raise awareness.

[Kendrew]

Absolutely. ....100% count me in.

I don't do Facebook or Instagram but I will certainly pass on that information as it comes through to my Practice GP's and nurses and anyone else I think appropriate.

[Koalajane]

This is great. I will certainly spread the message.

[Jackoh]

Great! Same as Kendrew , not using social media but will pass on. 💐

[Oboes22]

I’ve already shared on Fb to spread the word and will ask all my friends to do the same. I also wrote an article for my parish mag and will now do a follow up for next month.

[Fran_Benson Partner in reply to Oboes22]

That's great - thank you!

[Ridge]

100%. Anyway I can

[Janet57]

I will definitely spread the message and ask my FB friends to do the same.

[Sophiestree]

I don't do social media either but can ask others who do to post. Just to check, do we wait for whatever you are sending on 14th August? Happy to spread the word

[Fran_Benson Partner in reply to Sophiestree]

Yes, the first post will be on 14th August

[Thiago1396]

absolutely needed, I will do my bit! 👍

[Animalover65]

Definately, count me in.

[Bibberty]

I will help share this information as you have all been a lifesaver.I can give something back.

[singingloud]

yes yes! Thanks Fran!

[crafty_grannie]

Not social media, but certainly keen to give out information. Thanks Fran.

[Yogikay]

well done it is a necessity as so many doctors have no idea of what’s going on and need to be informed.

I hope my family doctor will take notice.

[Motida in reply to Yogikay]

Dr Mark Porter in the Times on Tuesday has a huge following, as does Drs Poonan, Zand, Oscar and Raj on BBC Morning Live so I am happy to forward things to them as you send them Fran. I am dont do social media, but am in University of the Third Age which has a journal called Age Matters. Age Concern Uk is also a useful organisation. I think when the stats are published on sufferers and how long they have been on steroids, it will have a big impact. Thanks for all you do for us.

[Lyndaki]

Talk about “thick as….”!!! I’ve just looked to follow you on FB so I can get the updates on this (great idea!!) and only just realised the title of the group means PMR GCA U.K.!! Bye ways I saw it, I thought it was based in Auckland NZ!!!! 🙄😂😂

[DorsetLady PMRGCAuk volunteer in reply to Lyndaki]

?? 😂🤣

[Lyndaki in reply to DorsetLady]

I know!!! Dumb blonde or what?!? 😂

[DorsetLady PMRGCAuk volunteer in reply to Lyndaki]

Blame the Pred -everyone else does 🤔

[Katietee]

Brilliant idea. I too will pass on the message in due course. Thanks for the advance warning.