Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,475 members • 38,435 posts

All posts for June 2023

CBD...does it help? should it be avoided with Pred?

I seem to remember early on in the PMR journey that CBD was advised against, but the night pains are worse and have run out of previously useful sleep remedies...

I seem to remember early on in the PMR journey that CBD was advised against, but...

howtotaperdown

•11 months ago

13 Replies

Prednisolone and high blood pressure

Hi Everyone I thought I would let you good people know my recent success story. I have been taking Prednisolone since Approx Nov 2021. In about June 2022 I...

Hi Everyone I thought I would let you good people know my recent success story....

MrsPractical

•11 months ago

23 Replies

Should I follow sick day rules?

I've recently needed to take a quick trip over to Spain which didn't quite go to plan! We ended up experiencing a 30hr long delay due to a cancelled flight. We...

I've recently needed to take a quick trip over to Spain which didn't quite go to...

Elispeth

•11 months ago

12 Replies

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Recovery

Has anyone used a supplement called Recovery for inflammation. I have a friend that has PMR and uses recovery in conjunction with prednisone. He says it’s...

Has anyone used a supplement called Recovery for inflammation. I have a friend t...

Citation

•11 months ago

14 Replies

Update, couple of questions and looking for Rheumatologist recommendation

Hi everyone, I last posted around 12 months ago but have been following the forum and reading the posts since then. As a quick recap I am now 47 years old,...

Hi everyone, I last posted around 12 months ago but have been following the fo...

mpartrid

•11 months ago

16 Replies

Sulfasalazine (SSX)

Rhemy has me reducing prednisone by 25 every 2 weeks. Only symptoms I have is a.m. stiffness that goes away after a trip to the bathroom. Alittle rt leg thigh...

Rhemy has me reducing prednisone by 25 every 2 weeks. Only symptoms I have is a...

Seal49

•11 months ago

8 Replies

Possible Prednisone Allergy?

Hi all, I'm a GCA patient, diagnosed in AUG 2022. I started on 60 MG pred and have weaned down to 10 MG at present. About 2 months ago I started getting an...

Hi all, I'm a GCA patient, diagnosed in AUG 2022. I started on 60 MG pred and ...

montebello

•11 months ago

47 Replies

Slow, slow, quick quick slow -to taper or not?

I've forgotten the name of the tapering method. It's come to me in an hour or so I am sure. Canada was amazing and exhausting, we've been back since the 31st...

I've forgotten the name of the tapering method. It's come to me in an hour or s...

IdasMum

•11 months ago

10 Replies

Bed Ridden but not PMR

As some are aware I've been plaged with back and stomach spasms for weeks...months. Last Rheumatologist visit she advised "I think it's your muscles"....

As some are aware I've been plaged with back and stomach spasms for weeks...mont...

Missus835

•11 months ago

21 Replies

Recurring UTI’s

Had appointment with Rheumatology nurse this week and she wanted to check my recent urine infection had cleared. I didn’t have any symptoms and was feeling...

Had appointment with Rheumatology nurse this week and she wanted to check my rec...

Baner

•11 months ago

30 Replies

side effects of pred

I have been on Pred since April 2022. Over last 2/3 months have tapered from 16 to 11mg a day with no problems. Will continue slow taper. How long before side...

I have been on Pred since April 2022. Over last 2/3 months have tapered from 16 ...

craighead72

•11 months ago

3 Replies

New to PMR

Hi, just joined up. I'm coming up 48 and my GP has recently diagnosed me with PMR. I've had pains now since May 2021 so been 2 years of pains, scans, bloods,...

Hi, just joined up. I'm coming up 48 and my GP has recently diagnosed me with PM...

Monkey321

•11 months ago

86 Replies

Increase Prednisone?

Rough week... I got as low as 12.5 because of Rheummy pressure...had splitting headache and eye pain which I posted earlier...he said he didn't think it was...

Rough week... I got as low as 12.5 because of Rheummy pressure...had splitting ...

Joseph14612

•11 months ago

3 Replies

Quick update

Well I’m back on the Pregablin and joy oh joy I’m getting some relief. After just a couple of days at half the dose I was on and no Amitripyline it’s so much...

Well I’m back on the Pregablin and joy oh joy I’m getting some relief. After jus...

Griggser

•11 months ago

12 Replies

Advice

I am 74 and have had PMR for 2 years now and I’ve been trying to reduce my pred from a failsafe dose of 15mg. I get to 7 or 8 and have to revert back to 15mg...

I am 74 and have had PMR for 2 years now and I’ve been trying to reduce my pred ...

RonnieandReggie

•11 months ago

2 Replies

covid vaccine

Thank you all for taking the time out to reply to my question it’s much appreciated and has helped me with my decision 😊

Thank you all for taking the time out to reply to my question it’s much apprecia...

Graciejack4

•11 months ago

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How long do the effect of AA persist after stopping?

I stopped the weekly AA (actually Risedronate in my case, but basically the same) about 10 or so months ago when I had reduced to 2.5mg Pred. (I’m now on...

I stopped the weekly AA (actually Risedronate in my case, but basically the same...

Exflex

•11 months ago

7 Replies

increasing dose when having surgery advice

In three weeks I’ll be having a gluteal repair operation. I’ll be non weight bearing for several weeks on right leg. I’ve been on 5mg pred for several months...

In three weeks I’ll be having a gluteal repair operation. I’ll be non weight bea...

Sumojo

•11 months ago

14 Replies

Pain free??

This may be obvious but is the idea that you should be pain free when on your current dose of pred before tapering down or just as comfortable as you can be.....

This may be obvious but is the idea that you should be pain free when on your cu...

Bonsaigirl

•11 months ago

23 Replies

Still unclear about cortisol suppression

I wonder if people could clarify this for me. Do our adrenals shut down completely on prednisone or do they adjust depending on our dose of prednisone? I have...

I wonder if people could clarify this for me. Do our adrenals shut down complet...

Donna5658

•11 months ago

14 Replies

methotrexate

I can’t really help much, but I was on it a short while but it didn’t agree with me so I went on micophenolate and are currently still on it sorry I can’t...

I can’t really help much, but I was on it a short while but it didn’t agree with...

Touting

•11 months ago

2 Replies

possible tooth extraction

Have been dealing with GCA and PMR for nearly 5 years…up and down with varying degrees of success! Am down to 4 mgs of Prednisolone and it looks like I may...

Have been dealing with GCA and PMR for nearly 5 years…up and down with varying d...

passerdomesticus

•11 months ago

4 Replies

pins and needles in tips of both thumbs

hi good people Anyone had this problem, it started about 6 weeks ago in both thumbs, I’ve been seeing an osteopath for my right arm (as it was painful to...

hi good people Anyone had this problem, it started about 6 weeks ago in both t...

9lives

•11 months ago

24 Replies

Tapering down after shingles

I was currently on 1.5mg Pred for the last 10 days, having been on 2mg previously for about two months. I am tapering very slowly as I move down to coming...

I was currently on 1.5mg Pred for the last 10 days, having been on 2mg previou...

Ruins67

•11 months ago

2 Replies

covid vaccine

Hi all Has anyone in the uk had the current Covid spring booster? If so were you ok? I have mixed feelings about it and only have until the 30th June to have...

Hi all Has anyone in the uk had the current Covid spring booster? If so were you...

Graciejack4

•11 months ago

46 Replies

An example of excellent NHS care

In these days of waiting 10 hours for an ambulance and all the rest of the frightening horror stories, i thought I'd just report that the NHS isn't dead yet...

In these days of waiting 10 hours for an ambulance and all the rest of the frigh...

Mayadill

•11 months ago

13 Replies

Anxiety again?

I have gone from 4 mg of prednisone to 3.5 and am experiencing mild anxiety and depression. I was on 4 for a month. Am also getting monthly Actemra infusions...

I have gone from 4 mg of prednisone to 3.5 and am experiencing mild anxiety and ...

Greytree

•11 months ago

54 Replies

Alendronic acid and dental wirk

Does anyone have a similar experience or advice please? I finally started taking Alendronic Acid on Monday under pressure from a GP who said I should not...

Does anyone have a similar experience or advice please? I finally started taking...

Raga72

•11 months ago

15 Replies

Saw the Rheumatologist, went well, Metoprolol update, and I have trigger finger

I have been reducing on my own for a while, was at 12.5 from beginning dose of 30mg prednisone. He told me to reduce the evening dose to 2.5 from 5mg. I have...

I have been reducing on my own for a while, was at 12.5 from beginning dose of 3...

sdowney717

•11 months ago

17 Replies

Garden Chat Groups

Unhappily, I have to leave the Garden Chat Groups, because of the increasing demands on my time. However, I have met some lovely people and I hope that some of...

Unhappily, I have to leave the Garden Chat Groups, because of the increasing dem...

Hidden

•11 months ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2023

CBD...does it help? should it be avoided with Pred?

Prednisolone and high blood pressure

Should I follow sick day rules?

Recovery

Update, couple of questions and looking for Rheumatologist recommendation

Sulfasalazine (SSX)

Possible Prednisone Allergy?

Slow, slow, quick quick slow -to taper or not?

Bed Ridden but not PMR

Recurring UTI’s

side effects of pred

New to PMR

Increase Prednisone?

Quick update

Advice

covid vaccine

How long do the effect of AA persist after stopping?

increasing dose when having surgery advice

Pain free??

Still unclear about cortisol suppression

methotrexate

possible tooth extraction

pins and needles in tips of both thumbs

Tapering down after shingles

covid vaccine

An example of excellent NHS care

Anxiety again?

Alendronic acid and dental wirk

Saw the Rheumatologist, went well, Metoprolol update, and I have trigger finger

Garden Chat Groups

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