Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,922 members • 39,411 posts

All posts for June 2023

Red light therapy for PMR pain?

has anyone tried red light therapy for PMR pain? I have found some relief with it, although I think the pain comes back and in different places.

has anyone tried red light therapy for PMR pain? I have found some relief with i...

howtotaperdown

•1 year ago

5 Replies

A little extra pred in certain circumstances.

Just wondering if others on this site ever take an extra 1/2 or 1mg of pred during special occasions, while travelling, etc.? I’m hoping it’s ok if it’s a...

Just wondering if others on this site ever take an extra 1/2 or 1mg of pred duri...

PMRCanada

•1 year ago

16 Replies

Update with some pleasant news! I think? and a question

I went to my rheumy yesterday and was supposed to be at 5mg. I am just beginning the taper for 7.5mg. Needless to say she was not happy. She had to push the...

I went to my rheumy yesterday and was supposed to be at 5mg. I am just beginning...

catdance

•1 year ago

22 Replies

Want to take advantage of all our features? Just log in!

WedPM Support Group

WedPM Zoom Support group (a Kent-based group, but open to absolutely everyone) – you are very welcome to join us on the fourth Wednesday of the month at 3pm on...

WedPM Zoom Support group (a Kent-based group, but open to absolutely everyone) –...

pennyw

Administrator•1 year ago

1 Reply

Government Survey

Was sent this link from Versus Arthritis, bit long winded to complete the survey but could be worth the effort...

Was sent this link from Versus Arthritis, bit long winded to complete the survey...

Baner

•1 year ago

Be the first to reply

best tapering advice

I was diagnosed April 2023 PMR, after 2.5 months of severe pain in shoulders, back of neck and buttocks, then hands and wrists. I was started on 15mg which...

I was diagnosed April 2023 PMR, after 2.5 months of severe pain in shoulders, ba...

Thiago1396

•1 year ago

11 Replies

Covid Vaccines

Hi, just wondering what people's views are on keep having vaccines. I'm being pestered by NHS every day to book my spring vax, only available until 30th June...

Hi, just wondering what people's views are on keep having vaccines. I'm being pe...

Pusph

•1 year ago

4 Replies

Ateritis, arthritis... how to make friends and family recognise the difference!

I have just been trying to explain GCA to some former work colleagues and been stumped trying to convincingly make the distinction between arteritis and...

I have just been trying to explain GCA to some former work colleagues and been s...

Dochaz

•1 year ago

22 Replies

Hospital and vertigo

I was admitted to hospital following a nasty bout of vertio in the early hours of Monday morning so I didn't take any medication that day at all including...

I was admitted to hospital following a nasty bout of vertio in the early hours o...

caftan

•1 year ago

5 Replies

Tapering too quickly

Diagnosed with PMR in December 2021, started on 30mg, now I have been tapering 1mg every two weeks from 10mg as instructed so did two weeks at 9mg and when I...

Diagnosed with PMR in December 2021, started on 30mg, now I have been tapering 1...

Bonsaigirl

•1 year ago

21 Replies

What happens with rheumy after you stop pred?

Hi, I'm slowly reducing my pred by half mg a month and just started on 3.5mg. I started on 40mg with PMR and GCA in September 2021. I have a rheumy appointment...

Hi, I'm slowly reducing my pred by half mg a month and just started on 3.5mg. I ...

Broseley

•1 year ago

13 Replies

High sed rate, diagnosis of PMR, bilateral pain in arms, shoulders but not the "characteristic" stiffness in the morning.

Wondering if others with PMR lack this diagnostic criteria, whereby one wakes up with painful stiffness, which then gradually lessens after an hour or more....

Wondering if others with PMR lack this diagnostic criteria, whereby one wakes up...

darkred

•1 year ago

17 Replies

Does anyone know what this is?

Just wondered if anyone knows what is in the circle on this X-ray? I’m not asking for advice or diagnoses or anything . Just curious. 😊🤔

Just wondered if anyone knows what is in the circle on this X-ray? I’m not aski...

Bramble2000

•1 year ago

12 Replies

History of PMR/GCA?

I can’t help wondering as I read all the problems and advice re: these conditions, what happened in the past before they were given a name and separate...

I can’t help wondering as I read all the problems and advice re: these condition...

Strelitzia

•1 year ago

21 Replies

Pet scan was clear for vasculitis

Pet scan did not show vasculitis but have to have a MRA of aorta but dr not too concerned I think. No panic for this scan which is next week. Also mri of brain...

Pet scan did not show vasculitis but have to have a MRA of aorta but dr not too ...

5lupins

•1 year ago

17 Replies

A follow on from my previous post

Can I just revisit this issue I have been having. I am now wondering if the high heart rate was a flare as my LVV originates from my Aorta. The reason I ask is...

Can I just revisit this issue I have been having. I am now wondering if the high...

Sophiestree

•1 year ago

7 Replies

Tapering………

I’ve had problems tapering and now seem to be stuck at 7mg. I did try to drop to 6mg and that was a no go area. For the past 4wks I have been tapering using...

I’ve had problems tapering and now seem to be stuck at 7mg. I did try to drop to...

Bayleaf1

•1 year ago

12 Replies

calcium citrate with no artificial sugars

A minor question I hope you don’t mind. I’ve just read ‘Ultra Processed People’ book about additives in our diet. Eye opening and shocking to say the least!...

A minor question I hope you don’t mind. I’ve just read ‘Ultra Processed People’ ...

Temeraire

•1 year ago

2 Replies

Anti-inflammatory diet: super successful

Hi. I've been on this forum for a while, hope this post may help someone who is curious about how diet can help with PMR. I've was diagnosed back in Nov 22,...

Hi. I've been on this forum for a while, hope this post may help someone who is ...

SarahDHx

•1 year ago

47 Replies

Do I slow down now?

I have been reducing by 0.5mg every 4 weeks and am now on 3mg daily. Should I now aim for 0.5mg every 5 weeks or continue on a 4 week cycle? I am not...

I have been reducing by 0.5mg every 4 weeks and am now on 3mg daily. Should I no...

HamishPMR

•1 year ago

8 Replies

Pred reduction

Hi, I have been on 12.5mg of pred for 3 weeks. My doctor wants to reduce it to 10mg at the end of June and then a further reduction by 1mg every month after...

Hi, I have been on 12.5mg of pred for 3 weeks. My doctor wants to reduce it to 1...

Worthy10

•1 year ago

10 Replies

pain in legs

does prednisolone weaken muscles. I like to do gardening, walk dog etc. the pain in my legs is terrible, normally worse mornings. Now on 9 mgs of...

does prednisolone weaken muscles. I like to do gardening, walk dog etc. the pa...

CavalierKC3

•1 year ago

28 Replies

Methotrexate or not?

I had my second appointment with my new rheumatologist this morning, he is very thorough, and I'm to have chest xray, hip and leg ultrasound and shoulders and...

I had my second appointment with my new rheumatologist this morning, he is very ...

Kiwisufferer2019

•1 year ago

25 Replies

Muscle relaxants + painkillers ?

Body_bonkers

•1 year ago

12 Replies

Heart fluttering with fatigue

Hi Everyone. Is it common that tapering...currently trying to get below 5 before Rheumy appt...to have heart/chest fluttery sensations? Not a racing...

Hi Everyone. Is it common that tapering...currently trying to get below 5 befor...

Temoral

•1 year ago

23 Replies

PMR Tapering

I am having great difficulty tapering below 3mg. I am currently on 3mg and haven't any energy. Occasionally, I feel well enough to do a little work around...

I am having great difficulty tapering below 3mg. I am currently on 3mg and have...

RaisinBran

•1 year ago

6 Replies

Tapering prednisolone and PMR flare ups

Hello, this is probably a very frequently asked question, sorry. I was diagnosed with both PMR and GCA in March 2022 and immediately put on 60mg prednisolone...

Hello, this is probably a very frequently asked question, sorry. I was diagnose...

BlindTechie

•1 year ago

4 Replies

Timing of Pred

Hi all I have managed to get down to 3mg after having pmr for 11 years following Dorset Lady’s slow taper. The first couple of weeks of each taper I always...

Hi all I have managed to get down to 3mg after having pmr for 11 years followin...

Suet3942

•1 year ago

24 Replies

Any advice on tapering prednisolone with Methotrexate and RoActemra?

hello...would be grateful for words of wisdom and experience. Feeling confused on how to manage steroid reduction. Started Methotrexate 5 weeks ago and 3rd...

hello...would be grateful for words of wisdom and experience. Feeling confused ...

tweety_pie

•1 year ago

9 Replies

Local support group

Hi all….I am on the reducing Pred journey and the ups and downs, tears and fears and find this site extremely helpful in managing however is there a local...

Hi all….I am on the reducing Pred journey and the ups and downs, tears and fears...

naturalalways

•1 year ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2023

Red light therapy for PMR pain?

A little extra pred in certain circumstances.

Update with some pleasant news! I think? and a question

WedPM Support Group

Government Survey

best tapering advice

Covid Vaccines

Ateritis, arthritis... how to make friends and family recognise the difference!

Hospital and vertigo

Tapering too quickly

What happens with rheumy after you stop pred?

High sed rate, diagnosis of PMR, bilateral pain in arms, shoulders but not the "characteristic" stiffness in the morning.

Does anyone know what this is?

History of PMR/GCA?

Pet scan was clear for vasculitis

A follow on from my previous post

Tapering………

calcium citrate with no artificial sugars

Anti-inflammatory diet: super successful

Do I slow down now?

Pred reduction

pain in legs

Methotrexate or not?

Muscle relaxants + painkillers ?

Heart fluttering with fatigue

PMR Tapering

Tapering prednisolone and PMR flare ups

Timing of Pred

Any advice on tapering prednisolone with Methotrexate and RoActemra?

Local support group

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