Sulfasalazine (SSX): Rhemy has me reducing... - PMRGCAuk

PMRGCAuk

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Sulfasalazine (SSX)

Seal49 profile image
8 Replies

Rhemy has me reducing prednisone by 25 every 2 weeks. Only symptoms I have is a.m. stiffness that goes away after a trip to the bathroom. Alittle rt leg thigh pain like after a charlie horse wears off. Suggests that I should try ssz. I just want to keep going with prednisone for now. Due to go down to 20 mg a day this week. Do sure if I should just slow it down

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Seal49 profile image
Seal49
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8 Replies
piglette profile image
piglette

Do you really mean 25 reduction not 2.5mg or .25mg? Whatever the reduction I would slow down to every four weeks personally. Slowly but surely.

Seal49 profile image
Seal49 in reply topiglette

I meant 2.5. Will call Remy this week and let him know I want to slow down alittle. Sounds like 2.5 a month may be safer.

piglette profile image
piglette in reply toSeal49

Rule of thumb says don't reduce more than 10% at a time.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

I can’t help on Sulfasalazine -but guess you mean reducing by 2.5mg every 2 weeks..

The 2.5mg is okay, but really you need to be each dose longer than 2 weeks, it can sometimes take that long to know it’s enough. If it’s not, and you do another reduction you are likely to flare.

At what dose is your doctor intending to introduce SSX?

Mayadill profile image
Mayadill

What's he said about diagnosis? I thought Sulfasalazine was standard for RA?

piglette profile image
piglette in reply toMayadill

I got the impression that the Sulfasalazine was being prescribed for Charlie’s Horse.

Seal49 profile image
Seal49 in reply topiglette

Just said that to give an example of what the thigh opinion felt like.

PMRpro profile image
PMRproAmbassador

I'd want to know WHY sulphasalazine if your diagnosis is PMR. It has no proven effect in PMR.

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