Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for June 2023

Am I heading for a flare?

Hello I''d really like an opinion please. Diagnosed with GCA 2 years ago, had 2 flares when I reached 10mg. I've now been doing the DSNS method and just...

Hello I''d really like an opinion please. Diagnosed with GCA 2 years ago, had 2 ...

Luciejane

•11 months ago

14 Replies

Flare or Anxiety attack

Been tapering Prednisolone with Tocilizumab for PMR and GCA for three months. Got down to 8mg but suffered two infections and ended up in hospital for IV...

Been tapering Prednisolone with Tocilizumab for PMR and GCA for three months. Go...

Eileanach

•11 months ago

8 Replies

PMR like symptoms r/t chronic tooth abscess?

Most recently it's been discovered I had a tooth abscess. The dentist belive I had tooth infection for a long time. Prior to leaving for the Camino I had this...

Most recently it's been discovered I had a tooth abscess. The dentist belive I ...

SMH4CRNA

•11 months ago

17 Replies

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Fast pulse with high BP

recently I’ve had episodes of feeling a pounding heart which went away rather quickly. Then night before last I had this pounding and it wouldn’t stop. My...

recently I’ve had episodes of feeling a pounding heart which went away rather q...

Karenjaninaz

•11 months ago

4 Replies

New Rheumy appointment today

Good morning, today I have an appointment with my new rheumy, just to give you an update my previous rheumy took me down from 5mg pred to 2.5 for 3 days then...

Good morning, today I have an appointment with my new rheumy, just to give you a...

Wonderfullifeandmore

•11 months ago

13 Replies

Progress on dental implant

Good morning everyone I had the implant yesterday, took an extra 2 milligrams of Prednisolone to deal with the stress of it all. Told the Dentist about my...

Good morning everyone I had the implant yesterday, took an extra 2 milligrams ...

EdithWales

•11 months ago

12 Replies

Missed or not?

I am away from home and put all supplements and pred in a daily box. They then go in an egg cup to be taken during breakfast with Pred at the bottom for last....

I am away from home and put all supplements and pred in a daily box. They then ...

Pippah45

•11 months ago

6 Replies

pmr. Already diagnosed with GCA

people diagnosed with PMR how does it affect you & what is treatment. Does it affect both sides of the body. I have terrible pain etc in left leg, thigh,...

people diagnosed with PMR how does it affect you & what is treatment. Does it ...

CavalierKC3

•11 months ago

8 Replies

headaches??

I have been recently diagnosed with PMR with pretty classic symptoms and good response to initial 15 mg a day of prednisone. After a month reduced to 12.5...

I have been recently diagnosed with PMR with pretty classic symptoms and good re...

Fishtacoqueen

•11 months ago

7 Replies

'But you look OK'

I don't look OK, spinal curvature, so I've never had this. Can folks explain to me where the idiots who say this are coming from? Broken limbs, skin...

I don't look OK, spinal curvature, so I've never had this. Can folks explain to...

Mayadill

•11 months ago

26 Replies

Methotrexate - black moods

Hi all, my rheumy suggested I took methotrexate as i've not been able to get lower than 3 mg on pred for quite some years now. They are freaking out saying I...

Hi all, my rheumy suggested I took methotrexate as i've not been able to get lo...

JudithWarrior

•11 months ago

13 Replies

I WILL DANCE AGAIN!!

One day I will dance again - One day I will walk further than I can do now - One day so called friends will apologise for calling me a cripple, yes a cripple....

One day I will dance again - One day I will walk further than I can do now - One...

UnicornDancer

•11 months ago

37 Replies

crp went up

Hi l was diagnosed in April had crp of 105 went on 15mg pred and it made me feel way better. Followed the 3 week on 15 3 week on 12.5. Got blood test after 3...

Hi l was diagnosed in April had crp of 105 went on 15mg pred and it made me fe...

Lulucat46

•11 months ago

9 Replies

Prednisone reduction

Started reducing my prednisone f r om 30 mg a day by 2.5 every two weeks and mow at 22.5. I follow this site continuously and get the impression this is on...

Started reducing my prednisone f r om 30 mg a day by 2.5 every two weeks and mo...

Seal49

•11 months ago

2 Replies

Muscle or arthritis pain right leg?

I've been on prednisolone since diagnosis of GCA in Oct 2022. Just reduced pred from 6mg to 5mg reducing by 1mg per month. All been fine but am now getting...

I've been on prednisolone since diagnosis of GCA in Oct 2022. Just reduced pred...

Galore

•11 months ago

16 Replies

Pregabalin (Lyrica) for Low Back Pain and Muscle Spasms

Has anyone tried Lyrica? Rhemy prescribed 75 mg at bedtime which makes no sense to me or Pharmist? Pharm has reached out to her about splitting the dose. It...

Has anyone tried Lyrica? Rhemy prescribed 75 mg at bedtime which makes no sense ...

Missus835

•11 months ago

54 Replies

PMR or psoriatic arthritis

Hi everyone and thank you for the invaluable advice you have given over my journey of PMR After two years on pred I have only just managed to get down to...

Hi everyone and thank you for the invaluable advice you have given over my journ...

Storm-boy

•11 months ago

25 Replies

Methotrexate and Folic Acid.

Hello - Quick question - does Folic Acid taken x 6 days a week mitigate the side effects of MTX but lose its efficacy as a steroid sparing medicine? Many...

Hello - Quick question - does Folic Acid taken x 6 days a week mitigate the...

autumnlass

•11 months ago

7 Replies

Dreading seeing the Rheumatologist

Hi everyone, I have an appointment coming up with my Rheumatologist which I’ve been under for the last 3 1/2 years (I’m in the UK, we don’t get a choice in...

Hi everyone, I have an appointment coming up with my Rheumatologist which I’ve ...

Bramble2000

•11 months ago

17 Replies

GCA & flying

I am flying to Denmark tomorrow to see family (2hr flight) - first time we've been away since my diagnosis of GCA in January. I am down to 22.5mg of Pred -...

I am flying to Denmark tomorrow to see family (2hr flight) - first time we've be...

Janeval

•11 months ago

17 Replies

Ibuprofen

Hello, wise ones. I know you should not take Ibuprofen when on pred. But , I have read on here that people do take it occasionally. How often does that mean...

Hello, wise ones. I know you should not take Ibuprofen when on pred. But , I ha...

JanboC

•11 months ago

19 Replies

Been doing great lately, reduced again from 10 to 7.5mg prednisone. My crp is under 10 from 103

I had seen the rheumatologist and had dropped from 12.5 to 10, after the visit. Now for last 2 days I am down to 7.5mg prednisone, my own decision, I am...

I had seen the rheumatologist and had dropped from 12.5 to 10, after the visit. ...

sdowney717

•11 months ago

13 Replies

Calcium Hyroxyapatite caps: Does anyone take them and please give pros and cons if you can.

I took NOW calcium hydroxyapatite caps 500 mg daily until about a year ago. After going through the bottle containing 120 capsules, I started on Solaray...

I took NOW calcium hydroxyapatite caps 500 mg daily until about a year ago. Afte...

darkred

•11 months ago

3 Replies

I’ve upped the Pred, reduced back down but the pains are back today!

Hi, I posted 16 days ago because I was concerned I was having a flare after trying a reduction from 9.5 to 9. I was getting bad aching in both arms and...

Hi, I posted 16 days ago because I was concerned I was having a flare after tryi...

Tiggy70

•11 months ago

8 Replies

Polymyalgia flare after knee cartilage damage

I've had polymyalgia for about 3 years and with a few hiccups are down to 5mg pred a day now. About 3 weeks ago I damaged my knee cartilage, it is slowly...

I've had polymyalgia for about 3 years and with a few hiccups are down to 5mg pr...

townlands

•11 months ago

7 Replies

Timing of taking prednisolone

I do a yoga class on Mondays and because it starts at 9.30 and I have been taking pred with my breakfast around 8.00, I'm still stiff in my neck and hips. So,...

I do a yoga class on Mondays and because it starts at 9.30 and I have been takin...

Smithie49

•11 months ago

13 Replies

Garden Chat groups

Please note that a new leader of the second group should be decided on by vote by the participants. The first group who work very well together, will I’m sure...

Please note that a new leader of the second group should be decided on by vote b...

Hidden

•11 months ago

1 Reply

Blood pressure warning

More fun and frolics. Before I went to pamper myself in Montenegro (swimming in the sea, lounging on the Cabana) I checked my blood pressure which I do...

More fun and frolics. Before I went to pamper myself in Montenegro (swimming in ...

EdithWales

•11 months ago

33 Replies

Reminder: No vaccine posts

Dear members, a polite request for no more posts about vaccines - specifically querying whether you should have the next vaccine you are recommended. We know...

Dear members, a polite request for no more posts about vaccines - specifically q...

Fran_Benson

Partner•11 months ago

5 Replies

fatigue at 3.5mg but cortisol and synacthen in normal range

I’ve felt particularly tired recently but my cortisol tests have been in the normal range. Is this usual?

I’ve felt particularly tired recently but my cortisol tests have been in the nor...

Rosina1871

•11 months ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2023

Am I heading for a flare?

Flare or Anxiety attack

PMR like symptoms r/t chronic tooth abscess?

Fast pulse with high BP

New Rheumy appointment today

Progress on dental implant

Missed or not?

pmr. Already diagnosed with GCA

headaches??

'But you look OK'

Methotrexate - black moods

I WILL DANCE AGAIN!!

crp went up

Prednisone reduction

Muscle or arthritis pain right leg?

Pregabalin (Lyrica) for Low Back Pain and Muscle Spasms

PMR or psoriatic arthritis

Methotrexate and Folic Acid.

Dreading seeing the Rheumatologist

GCA & flying

Ibuprofen

Been doing great lately, reduced again from 10 to 7.5mg prednisone. My crp is under 10 from 103

Calcium Hyroxyapatite caps: Does anyone take them and please give pros and cons if you can.

I’ve upped the Pred, reduced back down but the pains are back today!

Polymyalgia flare after knee cartilage damage

Timing of taking prednisolone

Garden Chat groups

Blood pressure warning

Reminder: No vaccine posts

fatigue at 3.5mg but cortisol and synacthen in normal range

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