Progress

[Alazarin]

it’s my 5yr PMR/GCA anniversary.

After coming off pred completely last October, and struggling through what was obviously a flair. I won’t go into the whole story. But here I am on 7 mg, and Amitrypteline( for migraine). And I feel well! All the way through my first 4 years on pred I never felt well, sleeping badly, no energy having to sleep every afternoon, muscle weakness, the lot. Now I have no pain I’m feeling great, wasn’t like this when I was on 7 before. Anyway I am making the most of it. Starting the next taper this week, fingers crossed it holds.

[SheffieldJane]

Fingers crossed for you! No pain - wow!!

[PMRpro Ambassador]

That is the way it should be. Do you think it is the amitryptiline that has made the difference?

[Alazarin in reply to PMRpro]

I was pondering that today. I’m on a very low dose, but who knows if there is that element of antidepressant.

[Rachmaninov2]

I have been prescribed Amitriptyline for foot pain but haven’t as yet taken any. Do you take them on a regular basis, if so how often. Thanks.

[Alazarin]

I take them one a day, early evening, as they can make you feel groggy in the morning. But give me great sleep.

[Alazarin]

I’m not sure how they work on pain relief. The steroid dose I’m on lifts my pain