Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,883 posts

All posts for May 2023

GCA- fuzzy, prickly feeling in my scalp

I have tapered down to 20mg of Pred (this is the second time around- had to go back up to 30mg & have now gone much slower down to this level). I've been ok...

I have tapered down to 20mg of Pred (this is the second time around- had to go b...

Janeval

•1 year ago

27 Replies

Injections in lower back from pain clinic

This may not be the right forum to reach out to for my new issue, but hoping someone can tell me if there is a forum for this subect I had referral to pain...

This may not be the right forum to reach out to for my new issue, but hoping som...

arvine

•1 year ago

9 Replies

Any tips for upcoming THR?

My hip replacement is scheduled for five weeks time. PMR history is diagnosis end of 2020, and infrequent rheumy appointments. I was seeking advice for...

My hip replacement is scheduled for five weeks time. PMR history is diagnosis en...

Angel_doll

•1 year ago

7 Replies

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ongoing tapering

Thank you so much for the advice about dropping a couple of steps from 13 to 11.5 and then 10.5. I followed this but wonder how many days I should take 11.5...

Thank you so much for the advice about dropping a couple of steps from 13 to 11....

Motida

•1 year ago

48 Replies

Here we go again!

Good morning, I have reduced my EC Prednisolone down to 4.5mg per day. This is the first time I have got this far, having tried twice in the past. However I...

Good morning, I have reduced my EC Prednisolone down to 4.5mg per day. This is...

Pangolin43

•1 year ago

3 Replies

UTI and microscopic haematuria

After years of recurring uti and a diagnosis of cystitis cystica after camera jobby I was prescribed vagifem. This worked for 7 years until mother of...

After years of recurring uti and a diagnosis of cystitis cystica after camera jo...

Poshdog

•1 year ago

12 Replies

New GCA diagnosis

Hi spent the best part of this week in and out of the hospital. Diagnosed with PMR in March. Responded well to 15mg of Prednisolone. Started the taper of 1mg...

Hi spent the best part of this week in and out of the hospital. Diagnosed with P...

AineB2020

•1 year ago

9 Replies

I am a new to all this...

It took a year for me to be diagnosed and it was a physio who listened to me describe my symptoms and said I had PMR. Don't get me wrong my GP was doing...

It took a year for me to be diagnosed and it was a physio who listened to me d...

Pjso

•1 year ago

13 Replies

Thank you all!

I want to thank everyone on this forum for all the knowledge and support that you give. My wonderful rheumy retired in March. Before I had met with my new...

I want to thank everyone on this forum for all the knowledge and support that yo...

AuthorJ

•1 year ago

9 Replies

Flare or adrenal crisis?

This forum is invaluable and I would really appreciate some advice as I'm confused as to how to proceed. Diagnosed by rheumatologist last October after months...

This forum is invaluable and I would really appreciate some advice as I'm confus...

Alithia

•1 year ago

5 Replies

Quick and Kirwan

The Quick and Kirwan method of reducing dosing, which is sadly not widely known about or practiced widely by other rheumatologists, keeps people at 10mg for...

The Quick and Kirwan method of reducing dosing, which is sadly not widely known ...

Mayadill

•1 year ago

9 Replies

Stress responses

Been trying to write out the emotional roller-coaster of the past week. So here we all are, sensible grown-up rational people, but we’ve found ourselves with...

Been trying to write out the emotional roller-coaster of the past week. So here...

Mayadill

•1 year ago

32 Replies

I've signed up for Tim Spector's ZOE study looking at blood sugars and gut health

I've long had an interest in how the foods we eat affect inflammation and weight and generally follow low -carb eating, although I often lapse and am not as...

I've long had an interest in how the foods we eat affect inflammation and weight...

tangocharlie

•1 year ago

92 Replies

Anyone had back (muscle) spasms? Is it linked to PMR?

My lower and middle back has gone into spasm and I'm finding it very hard to resolve and there isn't much info out there on the internet so am appealing to a...

My lower and middle back has gone into spasm and I'm finding it very hard to res...

tangocharlie

•1 year ago

79 Replies

Reduction with Prednisone and shoulder pains

I have been reducing my prednisone by 1/2 mg every month. I am down to 1mg for the past week. I have been having problems sleeping at night. About half way...

I have been reducing my prednisone by 1/2 mg every month. I am down to 1mg for t...

Plains

•1 year ago

24 Replies

SharonY

Wondering if anyone has had dental extraction while on Actemra. I was told by my dentist that it affects the jaw and I would need to see a specialist since an...

Wondering if anyone has had dental extraction while on Actemra. I was told by my...

WaltzG

•1 year ago

19 Replies

Fatigue treatment for covid. Could have relevance for us.

I copied this from Medscape. https://www.medscape.com/viewarticle/991792 I hope it works.

I copied this from Medscape. https://www.medscape.com/viewarticle/991792 I hop...

SheffieldJane

•1 year ago

6 Replies

Further update to hospital stay

Good morning, all.I'm checking back in to this wonderful community to give a quick update as to where I am with my fatigue and subsequent treatment plan. I am...

Good morning, all.I'm checking back in to this wonderful community to give a qui...

Feathercraft

•1 year ago

2 Replies

pmr and leg pain

Been diagnosed with pmr 2 years ago, now on 3 mg. I see my rheumy tomorrow which I dread because he doesn’t think my leg pain is caused by pmr. Some days my...

Been diagnosed with pmr 2 years ago, now on 3 mg. I see my rheumy tomorrow whic...

BabyRuby1

•1 year ago

18 Replies

what to do next?

Thanks for the support with my mum the past few weeks. It’s much appreciated. The last time I posted she had a temp of 38.2, struggled to move and had a v low...

Thanks for the support with my mum the past few weeks. It’s much appreciated. Th...

RT18

•1 year ago

6 Replies

Adrenal advice

I've been at 1.5 mg pred for a while, and recently have had the occasional day at 1 mg. Today I had a bit of stress with a dental appointment and have felt...

I've been at 1.5 mg pred for a while, and recently have had the occasional day a...

HeronNS

•1 year ago

45 Replies

Feeling Overwhelmed, too many issues. New hand and shoulder pain? PMR?

Hello everyone, I’ve been struggling for the last month or so with increased pain trying to figure out the cause. Diagnosed 3 years ago with...

Hello everyone, I’ve been struggling for the last month or so with increase...

Mstiles

•1 year ago

13 Replies

Checks after stopping Prednisolone?

I was diagnosed with temporal arteritis in Nov 2021 and put on 40 mg of Prednisoline. This has reduced, though dose had to be raised when I had severe...

I was diagnosed with temporal arteritis in Nov 2021 and put on 40 mg of Predniso...

AlamedaCounty

•1 year ago

2 Replies

Feeling overwhelmed by things on 4 mg of Pred, physically ok, but need to make an effort not to despair!

Is this normal / to be expected? No return of symptoms, but not much energy. When I look at all the things I need to do in the garden and in the house I feel...

Is this normal / to be expected? No return of symptoms, but not much energy. Whe...

Dochaz

•1 year ago

37 Replies

Adrenal glands not producing enough cortisone

I hope you are all ok. I am after some advice please? After having polymialgia for 3 years my rheumi at Christmas decided that the PMR had gone and no GCA...

I hope you are all ok. I am after some advice please? After having polymialgi...

Jlml

•1 year ago

22 Replies

Continue on alternate days - 0 and 0.5 mg

I have spent a week alternating between 0.5 mg and 0 mg and this morning I decided to continue for another week. I am feeling a lot of muscular pain (nothing...

I have spent a week alternating between 0.5 mg and 0 mg and this morning I decid...

TheMoaningViolet

•1 year ago

5 Replies

flare after surgery

Good morning. Here I am turning to you all again. I am really struggling after my THR. I am 5 days post op and I think I am having a flare. My Orthopedic...

Good morning. Here I am turning to you all again. I am really struggling after ...

Nightingales

•1 year ago

17 Replies

Recently of Prednisolone. But still aches & Pains.

diagnosed with PMRA September 21. Reduced by 1mg per month. Had Covid February this year only in bed three days no temperature, tiny cough just felt sleepy....

diagnosed with PMRA September 21. Reduced by 1mg per month. Had Covid February t...

Fetlar73

•1 year ago

11 Replies

Fundraising for PMRGCAuk

As Deputy Chair & Trustee for PMRGCAuk I know how important fundraising is for our sustainability. This Saturday - along with 4 family and friends I am doing...

As Deputy Chair & Trustee for PMRGCAuk I know how important fundraising is for o...

Janicecm

•1 year ago

4 Replies

Why am I so tired?

I'm in good shape and a regular exerciser. I've been doing a slow taper from 5mg. to 4 1/2 mg. of Pred for about a month now and am nearing the new daily dose...

I'm in good shape and a regular exerciser. I've been doing a slow taper from 5mg...

christi48

•1 year ago

11 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for May 2023

GCA- fuzzy, prickly feeling in my scalp

Injections in lower back from pain clinic

Any tips for upcoming THR?

ongoing tapering

Here we go again!

UTI and microscopic haematuria

New GCA diagnosis

I am a new to all this...

Thank you all!

Flare or adrenal crisis?

Quick and Kirwan

Stress responses

I've signed up for Tim Spector's ZOE study looking at blood sugars and gut health

Anyone had back (muscle) spasms? Is it linked to PMR?

Reduction with Prednisone and shoulder pains

SharonY

Fatigue treatment for covid. Could have relevance for us.

Further update to hospital stay

pmr and leg pain

what to do next?

Adrenal advice

Feeling Overwhelmed, too many issues. New hand and shoulder pain? PMR?

Checks after stopping Prednisolone?

Feeling overwhelmed by things on 4 mg of Pred, physically ok, but need to make an effort not to despair!

Adrenal glands not producing enough cortisone

Continue on alternate days - 0 and 0.5 mg

flare after surgery

Recently of Prednisolone. But still aches & Pains.

Fundraising for PMRGCAuk

Why am I so tired?

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