Feeling so low

[Harrywogan]

Hi all today IAM feeling so low for no reason for it so IAM thinking Adrenals coming to life, nobody understand stands unless you have this condition hubby doesn't understand so IAM on my own, except for all you lovely people so I can moan to you all,I know I'll have to ride it out. Thanks to you all.

[SnazzyD]

Sorry to hear that. Yes, on 3.5mg you could well be suffering from low adrenals. It’s not them coming back to life, it’s them being sluggish. Once they work you feel normal. I remember it well; that flat, empty feel. 💐

[Harrywogan in reply to SnazzyD]

Thanks Snazzy, hope it's not to long.

[Kendrew]

Hi Harrywogan

Sorry to hear you're feeling quite down. I'm on 3½mgs too but seem to have avoided that awful low feeling that many people like yourself can experience.

I know from what others (as well as Snazzy) on here have reported, that it shouldn't last and your mood will eventually improve as your adrenals begin to function more effectively again.

In the meantime, it'll feel quite frustrating, and unsettling, but as you said, you'll have to be patient and "ride it out".

Talking always helps so you've done exactly the right thing by posting how you're feeling on here.

Just try and take comfort from knowing it will improve and it won't be forever.

Take care and I hope you start to feel some improvement soon.

[Harrywogan in reply to Kendrew]

Thanks Kendrew IAM hoping it won't last long and will lie in sun,may manage a G&T tonight,thanks again xx

[Bcol]

Hi Harry, nothing to add to the comments from Snazzy and Kendrew but will just add that however low you feel there will always be someone here to listen, chat and empathise. Take care, and remember that this will improve with time.

[Grammy80]

I just posted similar thoughts...I should have read your post and the answers first. We are all in this together and I find comfort in that. My best to you💞

[ImC_]

sorry to hear this. Yes, lots of us here know the feeling. It’s good to recognise it and know it will not be forever. Be kind to yourself - whatever little treats you can rustle up, go for it.

[jsc50]

Strangely, while still in bed this morning I had mentioned to my husband about how Prednisilone can cause mood swings due to its affect on the adrenal system. How worried I am that should eventually this symptom arise, how it could put a significant strain on our relationship and furthermore if it might be upsetting for our children and grandchildren. It is natural for others to not always instantly remind themselves how Prednisilone is likely to be the root cause for one's behaviour. At the moment my GP is prescribing Co-codamol to control the pain from PMR, due to concerns attributed to my ovarian cancer. Having read your message, I felt I had to reply. I am so sorry that you are feeling in so much despair; perhaps it might help to relay to your husband what I have mentioned and how desperate it leaves one feeling to have little control over such side-effects. My husband has also been experiencing similar symptoms in his groin over the last two weeks, so should we both have the same and end up on Prednisilone ... we could end up in the divorce court!!

[PMRpro Ambassador in reply to jsc50]

If cocodamol is controlling your pain - it must be questioned whether it is due to PMR. For the vast majority of patients even antiinflammatory medications don't have much effect and we have had a lot of people who say even morphine doesn't help.

[SnazzyD in reply to jsc50]

Hello, although there are side effects common to most of us, there is no certainty about whether you will get them and how intensely. I don’t think it helps to think of us all inevitably traipsing along the same road to misery and despair or turning into a marriage destroying, child upsetting demon. Your adrenal glands may get back into working order fairly easily or you just have mild adrenal insufficiency if you over do it. If our adrenal glands aren’t working well for a time, one can really help oneself by not forcing the body to go back to normal routines which require more cortisol than we can make. You are less likely to have a long fuse if you don’t, for example, say no to having the grandchildren for the afternoon when you feel tired and have to tank up on pain killers to cope. I have no idea if you do this but it’s just an example based on what commonly comes up here. Another common feature is how many PMR sufferers feel they have to bear their struggle stoically and don’t really talk to their partners or families; more stress. I think any issue with illness and side effects often shines a light on stresses and blocks in one’s life already and working on those and getting extra support (if you can) can help the way one gets through.

My mood experience with low cortisol was a flat feeling, feeling easily overwhelmed and teary. I had to withdraw a lot. I was already suffering at 7mg. The angry me that couldn’t stop talking came out on high doses of Pred.

As PMRPro says, pain that needs co-codamol may not be PMR. Has your husband had his groin looked at? Often an early diagnosis can lead to a quicker fix than if it is left to the point of necessity, especially if there involves a waiting list!

[agingfeminist]

3.5 mg is the killer dose for me...feeling absolutely wretched...endless fatigue..total misery. I am reassured it will pass by people on here. Patience never been one of my virtues but ..

Sending you every good wish for perked up adrenal function

[Cantfindanam]

I am so sorry to hear your distress.I am on 3 now and have been so fatigued low and dispondant. I never even gave adrenals a thought. Thanks everyone....I'm off to the sun on Saturday so hoping to feel better soon.

[oscarandchloe]

So sorry Harrywogan, I'm going down from 5 mg to 4 + I/2 mg using the DSNS schedule. My reduced days at first made me miserable, no energy, and a strange feeling as if I wasn't firing up on all cylinders, which of course is exactly what was happening re-adrenals functioning properly. I've learnt to plan minimal activity for these planned days and discussed why with my OH. It seems to be working as I spring to life in-between. It's such a blow to this end-bit to a GCA/PMR journey, as I have no symptoms now from either but still feel 'ill'. The medics have no idea what it's like getting off Pred. Fortunately my GP just leaves me to it and I trust this wonderful forum to help me through it.

[Sharitone]

I think it also doesn't help that by the time you've got down to the low dose, you've probably had a bit of a long-drawn out struggle and you're getting tired of having to maintain a hopeful attitude. And it's at this stage that other pains and problems start to emerge that maybe have caused by the pred, or have been masked by it, so it seems a bit like one setback after another. I just keep reminding myself how pleased I am not be taking large doses any more.

[Wizards]

Hi Harry WoganI totally understand. I was slow at 3mg but it stopped me in my tracks at 2mg down.

It was everything to get out of bed to the lazyboy chair. Lost scence of certain tastes and desire to eat.

Stay away from caffeine with adrenal insufficiency as well as other foods to help adrenal glands.

We hear you and many of us understand. When I got really bad it took about 2 mos but straight adrenal insufficiency I was in for over 1 yr.

Just remember we are not cookie cutter everyone is different. Hang in there.

[Missus835]

{{{hugs}}}. Positive vibes to you Harrywogan. I have yet to go through the adrenal thing, but do feel a little low these days myself. Cheers to us getting through the roller coaster ride. ❤️