Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,922 members • 39,411 posts

All posts for December 2022

Omeprazole

My GP told me that omeprazole dont work after taking them for 10 years . Stopped a few days ago and my stomach feels terrible. Could this be cold turkey.

My GP told me that omeprazole dont work after taking them for 10 years . Stopped...

mtbiker

•2 years ago

10 Replies

Strep A

Are we more immune to catching something like this? I have young grandchildren and several kids have gone down with what MAY be this luckily none are seriously...

Are we more immune to catching something like this? I have young grandchildren a...

Caulkhead63

•2 years ago

2 Replies

Further questions re tender scalp, forehead

well as I posted couple days ago, still have tenderness scalp, skull, back of head when touching or shampooing,front right forehead. Yesterday and this...

well as I posted couple days ago, still have tenderness scalp, skull, back of he...

arvine

•2 years ago

2 Replies

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tapping

hello all I’m new on here but have been reading a lot of post I start on 20 pref then 15 then 12.5 and have been fine but I’m down to 10 and my head feels...

hello all I’m new on here but have been reading a lot of post I start on 20 pr...

314B82m210c

•2 years ago

5 Replies

Blood Glucose Levels post Pred?

After ceasing intake of pred does it take some time for blood glucose levels to subside?

After ceasing intake of pred does it take some time for blood glucose levels to ...

Nuff1

•2 years ago

3 Replies

Etoricoxib?

Finally got to see rheumatologist on 8 Dec for the urgent appointment requested by my GP in June (!) He took a detailed history and did a thorough...

Finally got to see rheumatologist on 8 Dec for the urgent appointment requested ...

Lyra42

•2 years ago

12 Replies

Additional illnesses

I have developed a very painful knee - this happened before and it was put down to bursitis. The knee was aspirated and it took me the best part of a year to...

I have developed a very painful knee - this happened before and it was put down ...

Miserere

•2 years ago

25 Replies

web of autoimmune conditions

I often feel all the illnesses we suffer are connected like the threads of this frozen web.

I often feel all the illnesses we suffer are connected like the threads of this...

Hidden

•2 years ago

13 Replies

Blood test results. Any action required?

I am currently tapering from 3.5mg to 3mg using DSNS. I have some symptoms which I have had for at least 6 months and which are probably not all PMR related...

I am currently tapering from 3.5mg to 3mg using DSNS. I have some symptoms whic...

LBM1953

•2 years ago

3 Replies

Eye infection & cold - Sick Day Rules?

I have a nasty eye infection and the doctor has given me antibiotic eye drops and pills, which I have been on for a few days now but they haven’t worked yet. I...

I have a nasty eye infection and the doctor has given me antibiotic eye drops an...

SusyTe

•2 years ago

86 Replies

Flare?

I have been gradually reducing prednisone over 18 months. Dropped from 1.5mg to 1mg daily about 4 weeks ago and now getting pain in both glutes, but no...

I have been gradually reducing prednisone over 18 months. Dropped from 1.5mg to ...

Boson

•2 years ago

8 Replies

skull hurts when massaging , shampooing, pressing on different areas feeling bruised, moves around, even on forehead

what is going on here, last few days, when touch, press on top of head, skulll, forehead,feels bruised when press on,no headache? is this connected to GCA,...

what is going on here, last few days, when touch, press on top of head, skulll, ...

arvine

•2 years ago

24 Replies

UTI’s

Hello, I have had 3 or 4 UTI’s since visiting Zagreb in May 2022. I had ‘retention’ of Approx 2000ml when a catheter was fitted. I have had a ‘TURP’ prostate...

Hello, I have had 3 or 4 UTI’s since visiting Zagreb in May 2022. I had ‘retenti...

Villa82

•2 years ago

1 Reply

Traveling time zones

I have read answers on traveling with prednisone over time zones but still am a little confused and nervous. I have GCA/PMR and am on 10 mg of prednisone....

I have read answers on traveling with prednisone over time zones but still am...

Grandmabeach

•2 years ago

7 Replies

Where to start? …….

I suppose, at the beginning! I was diagnosed with PMR five and a half years ago, then four years ago I was diagnosed with COPD. Not sure whether there was...

I suppose, at the beginning! I was diagnosed with PMR five and a half years ago...

Janann25

•2 years ago

7 Replies

Weeks in pain and return of lack of Spoons

For weeks now, with all the jiggery pokery with my Pred and Hydrocortisone , I've been in constant pain unless I take the French equivalent of Co-Codamol x 3...

For weeks now, with all the jiggery pokery with my Pred and Hydrocortisone , I'v...

IdasMum

•2 years ago

4 Replies

could adrenals be waking a little

After a cortisol test I was advised I was slightly adrenal insufficient . I have kept to my 4.5 mg of pred for two months now and the last couple of days I...

After a cortisol test I was advised I was slightly adrenal insufficient . I have...

Rosina1871

•2 years ago

9 Replies

recently diagnosed.

hi, I was diagnosed with PMR in September. I have tapered down to 10mg of pred but finding I’m in a lot of pain in the morning and this is lasting until at...

hi, I was diagnosed with PMR in September. I have tapered down to 10mg of pred b...

Mario66

•2 years ago

15 Replies

THE HPA AXIS OR THE TRIO.

The following is a long post and you may want to copy it or put in your Saved Posts. It was published in a Newsletter (which is now defunct) and written by...

The following is a long post and you may want to copy it or put in your Saved Po...

jinasc

•2 years ago

13 Replies

Stopping Lansoprazol

Rheumy advises stopping my daily 15mg Lansoprazol now I am down to 3.5mg Pred (with Leflunomide). She says Ok to just stop. Anyone have experience to share...

Rheumy advises stopping my daily 15mg Lansoprazol now I am down to 3.5mg Pred (w...

Roltuba

•2 years ago

10 Replies

Ectopic Beats or Something More?

I thought it might be interesting to tell of my recent experience following my 6th covid booster. I have had a long history of experiencing ectopic...

I thought it might be interesting to tell of my recent experience following my 6...

Kendrew

•2 years ago

71 Replies

A good end to 2022

I have been very grateful for all the help I have received over the years and wanted to give a quick update on my journey in 2022. I always struggled to get...

I have been very grateful for all the help I have received over the years and wa...

Mamamia21

•2 years ago

2 Replies

How long to stay on previous level after a flare when tapering?

Struggling to have my body play nice with my Dr’s Prednisone schedule: 20mg/2 weeks 15mg/1 week 10mg/1 week Then reduce by 1 mg/month First 2 weeks (...

Struggling to have my body play nice with my Dr’s Prednisone schedule: 20mg/2 w...

Caniwi

•2 years ago

12 Replies

Diet book for PMR - anyone know of it?

Has anyone tried this book? It was recommended by my local pharmacist, a young guy that did a his university thesis on PMR. ( He also does a lot of research...

Has anyone tried this book? It was recommended by my local pharmacist, a young g...

Hidden

•2 years ago

35 Replies

I am better!

Dear Dorset Lady, I developed PMR at New Year 2020. I was put on 15 mg Pred and I have 'stuck to the script' since then. I was warned that I was border line...

Dear Dorset Lady, I developed PMR at New Year 2020. I was put on 15 mg Pred an...

Silver-Babe

•2 years ago

22 Replies

Flare?

I have tapered to 6.5 mg over 3 years. I recently had two falls (fainted) and now my CRP is 13.9 and my Sed rate is 50. I don’t feel awful, but I am now very...

I have tapered to 6.5 mg over 3 years. I recently had two falls (fainted) and n...

PUMC

•2 years ago

17 Replies

NContralto91

iI am on Methatrexate, for R/A, so am unable to take Prednisalone. Is there an alternative for Polymyalgia which I have and very painful.?

iI am on Methatrexate, for R/A, so am unable to take Prednisalone. Is there an ...

NContralto91

•2 years ago

11 Replies

Would like your advice please. ?Increase Pred. Update

Hi everyone Apologies for the length of this post. Sorry but I need some further advice if you don’t mind. I increased to 40 mg Pred on Saturday and then...

Hi everyone Apologies for the length of this post. Sorry but I need some furt...

Hidden

•2 years ago

11 Replies

Looking for short video on PMR

Hi all. I am really reaching my limits with this. I cannot find a dose of pred that works....23.5....I had one great day but everything tanked (rinse and...

Hi all. I am really reaching my limits with this. I cannot find a dose of pred...

Wallysma

•2 years ago

24 Replies

pma back again

i have had poly rh for a year now , i have a flair up in march went back up to 10mg and it went away,this time in october it came back after going back down to...

i have had poly rh for a year now , i have a flair up in march went back up to 1...

Wasps11

•2 years ago

29 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2022

Omeprazole

Strep A

Further questions re tender scalp, forehead

tapping

Blood Glucose Levels post Pred?

Etoricoxib?

Additional illnesses

web of autoimmune conditions

Blood test results. Any action required?

Eye infection & cold - Sick Day Rules?

Flare?

skull hurts when massaging , shampooing, pressing on different areas feeling bruised, moves around, even on forehead

UTI’s

Traveling time zones

Where to start? …….

Weeks in pain and return of lack of Spoons

could adrenals be waking a little

recently diagnosed.

THE HPA AXIS OR THE TRIO.

Stopping Lansoprazol

Ectopic Beats or Something More?

A good end to 2022

How long to stay on previous level after a flare when tapering?

Diet book for PMR - anyone know of it?

I am better!

Flare?

NContralto91

Would like your advice please. ?Increase Pred. Update

Looking for short video on PMR

pma back again

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