Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,925 members • 39,411 posts

All posts for December 2022

Vocal chords

Did I read somewhere on here a while ago that PMR can affect your vocal cords ? I often find it difficult to speak clearly at length. It’s as though my voice...

Did I read somewhere on here a while ago that PMR can affect your vocal cords ?...

Bridge31

•2 years ago

71 Replies

The Rudest Rheumatologist EVER!!!

My doctor had warned me that the rheumy she was referring me to was "weird". I thought I could cope with that because she also said she's extremely throrough....

My doctor had warned me that the rheumy she was referring me to was "weird". I ...

Louisa1840

•2 years ago

91 Replies

Adrenal Insufficiency???

Hello everyone, this nightmare journey just seems to be never ending and I am so in need of some advice....... 8 days ago I took my last 1mg of Prednisone...

Hello everyone, this nightmare journey just seems to be never ending and I am so...

MarksPoint

•2 years ago

31 Replies

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Diarrhoea

I've been on steroids for 5 months and have had diarrhoea for about 3 months. Is this a side effect?if

I've been on steroids for 5 months and have had diarrhoea for about 3 months. I...

Posie42

•2 years ago

11 Replies

Heart update

At snail's pace the tests and investigations continue. My GP lives in cloud cuckoo land if he thinks the six months ago referral to a cardiologist should have...

At snail's pace the tests and investigations continue. My GP lives in cloud cuc...

HeronNS

•2 years ago

29 Replies

Members' magazine Winter NewsWire out now!

NewsWire magazine was posted out at the end of last week and digital copies have been emailed out this week. If you are a member of the charity, and you've...

NewsWire magazine was posted out at the end of last week and digital copies have...

Fran_Benson

Partner•2 years ago

8 Replies

Pains.

Hi.hope everyone coping with cold weather.would like to ask about pains in shoulders,legs,arms,very sore tongue,and pains in my head not all time.eyes are...

Hi.hope everyone coping with cold weather.would like to ask about pains in shoul...

Flosy

•2 years ago

9 Replies

4am Wake up call

Good Morning everyone I am currently on 8mg Pred and managing the pmr for now. However, I have been waking up every morning at between 4-5 am and can’t get...

Good Morning everyone I am currently on 8mg Pred and managing the pmr for now. ...

Charliepeace

•2 years ago

24 Replies

Covid and Prednisolone

I’ve had covid for 12 days. Started while abroad and thought it was just a cold. After a stressful end to the holiday arrived home, felt worse so did a test....

I’ve had covid for 12 days. Started while abroad and thought it was just a cold...

Plantmad

•2 years ago

35 Replies

Concerned about Avascular Nacrosis

Hi How common is AVN in people on long term prednisolone for PMR & GCA thankyou for any reply’s

Hi How common is AVN in people on long term prednisolone for PMR & GCA thankyou ...

Bulb20

•2 years ago

3 Replies

GCA and sore lumpy tongue

I've managed to get to 5.5mg with the help of Actemra over the last 16 months, not as fast my my Rheumy would like but she accepts some folk are slower....

I've managed to get to 5.5mg with the help of Actemra over the last 16 months, ...

Happyexplorer

•2 years ago

16 Replies

Slow drop 6.5 to 6mg and got through fatigue. Great for 2 weeks but now stiffness.

About 6 weeks ago had conversation with some of you about taking pred at night. It was fine. I had started a very slow drop 6.5mg to 6mg mid October. Through...

About 6 weeks ago had conversation with some of you about taking pred at night. ...

Ebiker

•2 years ago

13 Replies

An alarming visit: Rheumy suggested infusing with 500 mg per day for 4 days after I've already been tapering for 4 months

Hi all, I'm a GCA patient, diagnosed in AUG via a positive Temporal Artery Biopsy. I started on 60 mg for 2 weeks, then 50 for 2 weeks, etc. down to 20 mg at...

Hi all, I'm a GCA patient, diagnosed in AUG via a positive Temporal Artery Biop...

montebello

•2 years ago

20 Replies

PMR/GCA and the Shingles Vaccine

I have seen information with regard to patients who are immunosuppressant that they can be offered the Shingles Vaccine. Ordinarily this vaccine is only...

I have seen information with regard to patients who are immunosuppressant that t...

Sew_And_Sew

•2 years ago

8 Replies

belated phone call

I wrote that I had AskMy GP a few days ago. my GP had asked me to let her know if I was having a flare. I had said my hips were painful and it was difficult...

I wrote that I had AskMy GP a few days ago. my GP had asked me to let her know...

Suffererc

•2 years ago

15 Replies

Concern about Vaccines

I am due to get my second shingles (shingrix) vaccine at the start of January 2023. After the first vaccine in August and my flu and covid booster vaccines...

I am due to get my second shingles (shingrix) vaccine at the start of January 20...

Callymac

•2 years ago

13 Replies

A month at 23.5 (up from 17.5), got me a couple of good days and now back to intense pain and muscle spasms.

WHAT THE HECK? What should I do? Do I go up by 5? After starting that dose it took 3 weeks for me to feel a good improvement but I hung in. Was really...

WHAT THE HECK? What should I do? Do I go up by 5? After starting that dose it...

Wallysma

•2 years ago

37 Replies

Heart issues with GCA

I had my 3rd trip to ER last night. My second vertigo attack in 3 weeks. I suspect the antibiotics I have been given for adenoid infection. Had a CT scan...

I had my 3rd trip to ER last night. My second vertigo attack in 3 weeks. I sus...

phebamom

•2 years ago

3 Replies

Increased Prednisolone but still aching badly …..

Hi, I hope someone can help me😱😱 I suspected I was having a flare of my PMR over a month ago but because I was having a second surgery on my shoulder due to...

Hi, I hope someone can help me😱😱 I suspected I was having a flare of my PMR o...

Tiggy70

•2 years ago

18 Replies

Getting off low dose prednisone and MTX

I have heard some of you mention it is hard to get off prednisone while on MTX. Why? I am on 2 1/2 mg of pred and 25 of mtx. Should I try to get off the mtx...

I have heard some of you mention it is hard to get off prednisone while on MTX. ...

Missmymuscles

•2 years ago

11 Replies

Dizzy, sore eyes

Hi I’ve reduced to 6.5 mgs Pred and my eyes are sore (recovering from cold?) - and I am a slightly dizzy. Would this be a normal response to lower dosage or...

Hi I’ve reduced to 6.5 mgs Pred and my eyes are sore (recovering from cold?) - ...

Thelmarina

•2 years ago

9 Replies

Time between vaccines

Hi,just wondering how long it should be better my first and second Shingrix vac acine, nurse gave me appointment for end of December that only makes it 6...

Hi,just wondering how long it should be better my first and second Shingrix va...

Harrywogan

•2 years ago

3 Replies

Flare up at 1Mg

I have dropped from 1.5mg to 1mg at my usual 4 weekly intervals and now having aches in the back of my neck, elbows and hands are tingling. I increased my pred...

I have dropped from 1.5mg to 1mg at my usual 4 weekly intervals and now having a...

Fredddie

•2 years ago

20 Replies

TOXOPLASMOSIS IN THE IMMUNE-SUPPRESSED

Just one more thing to add to our never-ending list of concerns. Toxoplasmosis. Even without close contact with cats, you can contract it and you can go years...

Just one more thing to add to our never-ending list of concerns. Toxoplasmosis. ...

LIVEORDIEHEREIAM

•2 years ago

5 Replies

Skin Problem

Hi, First time on here although I have been reading a lot of posts over the last few months. I am a 77 year old male taking Apixaban for Pulmonary Embolisms...

Hi, First time on here although I have been reading a lot of posts over the la...

Hidden

•2 years ago

9 Replies

Tapering Pred, coping with aches and stiffness, and 'Tough it Out' advice.

Tapering I have had PMR for a year - or at least that was when it was diagnosed. Looking back I may have had it for a while before. Near the beginning there...

Tapering I have had PMR for a year - or at least that was when it was diagnosed...

Stargiver

•2 years ago

8 Replies

Celebrex while on prednisone

About 8 months ago my hip pain ( totally different than pain when first diagnosed) became so bad my doc suggested I start Celebrex to ease pain and keep me...

About 8 months ago my hip pain ( totally different than pain when first diagnose...

Evercurious

•2 years ago

44 Replies

Another flare

I have had PMR and suspected GCA since 2017 and started on 40mg Pred. Tapering to 15mg in the first few months went well but trying to get down further has...

I have had PMR and suspected GCA since 2017 and started on 40mg Pred. Tapering t...

PatB1948

•2 years ago

30 Replies

To take or not to take?

Hi, I wanted to shout from the rooftops , June time I believe. My final dose of Pred, after dropping from 30 mg through to 1 mg every other day. I had already...

Hi, I wanted to shout from the rooftops , June time I believe. My final dose of...

Stifffingers

•2 years ago

21 Replies

Christmas greetings posts

Dear members, we know that many of you will want to share Christmas greetings with your fellow members here on the forum. We have once again decided to open up...

Dear members, we know that many of you will want to share Christmas greetings wi...

Fran_Benson

Partner•2 years ago

6 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2022

Vocal chords

The Rudest Rheumatologist EVER!!!

Adrenal Insufficiency???

Diarrhoea

Heart update

Members' magazine Winter NewsWire out now!

Pains.

4am Wake up call

Covid and Prednisolone

Concerned about Avascular Nacrosis

GCA and sore lumpy tongue

Slow drop 6.5 to 6mg and got through fatigue. Great for 2 weeks but now stiffness.

An alarming visit: Rheumy suggested infusing with 500 mg per day for 4 days after I've already been tapering for 4 months

PMR/GCA and the Shingles Vaccine

belated phone call

Concern about Vaccines

A month at 23.5 (up from 17.5), got me a couple of good days and now back to intense pain and muscle spasms.

Heart issues with GCA

Increased Prednisolone but still aching badly …..

Getting off low dose prednisone and MTX

Dizzy, sore eyes

Time between vaccines

Flare up at 1Mg

TOXOPLASMOSIS IN THE IMMUNE-SUPPRESSED

Skin Problem

Tapering Pred, coping with aches and stiffness, and 'Tough it Out' advice.

Celebrex while on prednisone

Another flare

To take or not to take?

Christmas greetings posts

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