Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,756 members • 39,022 posts

All posts for December 2022

Offroader

I started pred on 15mg early in 2020 and have got down to 5.5mg by reducing at half mg per month. I have had a couple of flares along the way and increased as...

I started pred on 15mg early in 2020 and have got down to 5.5mg by reducing at h...

offroader

•2 years ago

10 Replies

unrelenting pain with post Herpetic neuralgia

Recently I was diagnosed with GCA back in August I now have shingles diagnosed within the last 4 weeks. Does anybody know of any pain relief or anything that...

Recently I was diagnosed with GCA back in August I now have shingles diagnosed w...

WHL67

•2 years ago

11 Replies

Leflunomide

I am worried about going on to Leflunmide. Anyone had exprience of it?

allotment-lover

•2 years ago

18 Replies

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PMR & Covid

I have PMR and recently got Covid. My symptoms have been fairly mild, but I was prescribed molnupiravar, an antiviral. Have any of you had experience with...

I have PMR and recently got Covid. My symptoms have been fairly mild, but I was...

ab58sf

•2 years ago

25 Replies

PS to previous post

I just want to clarify that the blood test results I had (from the only blood test I’ve had since diagnosis) for the inflammatory markers were done in the...

I just want to clarify that the blood test results I had (from the only blood te...

ClioMcM

•2 years ago

2 Replies

Methotrexate

I did not accept methotrexate after reading other people's bed ridden experiences, I continued with prednisolone, I am now a lot better and off steroids after...

I did not accept methotrexate after reading other people's bed ridden experience...

cherrysteps

•2 years ago

1 Reply

Leflunomide and tapering prednisolone for GCA, advice please

I was diagnosed with GCA in September this year and started on 30mg of prednisolone based on half a mg per kg of body weight. This seemed to be lower than some...

I was diagnosed with GCA in September this year and started on 30mg of prednisol...

Raga72

•2 years ago

25 Replies

Probably a Stupid Question

I’m currently on 4mgs of Pred and into the third week of this dose. I’m now experiencing neck pain again and have developed a painful lump on jaw bone in front...

I’m currently on 4mgs of Pred and into the third week of this dose. I’m now expe...

Decsgran

•2 years ago

5 Replies

Hi all, a further update from me and some "good" news

Hi to everyone who responded to me on my previous posts with regard to my quandary about how to finally get a flare under control and the further discussion on...

Hi to everyone who responded to me on my previous posts with regard to my quanda...

Hidden

•2 years ago

7 Replies

MPR a expert in Oxfordshire?

Can anyone recommend a PMR expert in Oxfordshire please?

Vrissi

•2 years ago

8 Replies

Importance of rest

I was diagnosed with PMR last fall. Just as I was about to go off prednisone, I was diagnosed with GCA. I'm down to 5 mg of prednisone again. I have a desk job...

I was diagnosed with PMR last fall. Just as I was about to go off prednisone, I ...

Hidden

•2 years ago

24 Replies

alendronic Acid

Have been prescribed this by Rhuemy after waiting 3 1/2 years to see one. Have been down to 1/2 and 1 mg but symptoms returned. Have been on 3 mg for 12 months...

Have been prescribed this by Rhuemy after waiting 3 1/2 years to see one. Have b...

Fatsdomino

•2 years ago

7 Replies

Thank you everyone for your company over the last two years in my GCA journey

I was diagnosed with GCA in December 2020. With the help of an excellent and very helpful Rheumatologist (who talked me through a few wobbles)support from this...

I was diagnosed with GCA in December 2020. With the help of an excellent and ver...

Blairmore

•2 years ago

5 Replies

long term PMR

I was diagnosed with PMR at 39 years and given steroids. That’s 40 years ago Back then I saw a rheumatologist regularly for the first couple of years which...

I was diagnosed with PMR at 39 years and given steroids. That’s 40 years ago Ba...

dipalog

•2 years ago

15 Replies

Hair loss

Hi all. Just a quick question. I have PMR and am taking Pred 7mg (had a flare) so went from 1 to 7 which has sorted it. The question I have is can PMR cause...

Hi all. Just a quick question. I have PMR and am taking Pred 7mg (had a flare) ...

Holycow2

•2 years ago

27 Replies

Does acupuncture work?

Has anyone tried acupuncture for the relief of PMR pains, particularly in shoulders, aromas, neck , and if so did it work?

Has anyone tried acupuncture for the relief of PMR pains, particularly in should...

Vrissi

•2 years ago

19 Replies

GP opinion

Had to see the doc yesterday for an unrelated problem. Energy levels are minus and have been for months now. Not sure the doc is on the same page as me,...

Had to see the doc yesterday for an unrelated problem. Energy levels are minus ...

ChrisinNam

•2 years ago

4 Replies

Steroid injections

Evening All,Just to fill you in a wee bit before asking my question. I am currently using the 7 week DSNS taper from 7mg to 6.5mg pred. Going from 8mg to...

Evening All,Just to fill you in a wee bit before asking my question. I am curre...

lkcreedon

•2 years ago

6 Replies

Follow up from GSA or not post

Good evening ladies, Just a quick update from my previous post. My doctor sent me up to eye a&e yesterday . Had lots of tests and after a long 5 hours the...

Good evening ladies, Just a quick update from my previous post. My doctor sent...

Jlml

•2 years ago

9 Replies

Thank you for voting for us!

Thank you to everyone who voted for us in the Benefact Movement for Good Award programme - we've just heard today that we are one of the charities chosen for a...

Thank you to everyone who voted for us in the Benefact Movement for Good Award p...

Fran_Benson

Partner•2 years ago

38 Replies

acid reflux

i have terrible burps mostly afternoon and evening any advice what to take have had omeprazule doesnt work or nexium or gaviscon leaves horrible taste in my...

i have terrible burps mostly afternoon and evening any advice what to take have ...

cambutdlady

•2 years ago

3 Replies

cellulitius

about two years ago i had cellulitius on my leg had antibotics for it have put loads of different creams on it including e45 etc but still got a red mark like...

about two years ago i had cellulitius on my leg had antibotics for it have put l...

cambutdlady

•2 years ago

4 Replies

Timing for Prednisone

I have been taking my Prednisone in the morning and would like to switch to bedtime if it won’t interfere with sleep. I now take 10mg and I am using 15mg...

I have been taking my Prednisone in the morning and would like to switch to bedt...

Plantingwithfaith

•2 years ago

27 Replies

I would be interested to know how you all read this

First line of my PET CT report in case you can't read the photo Clinical Information ?active vasculitis. Urgent please. Large vessel vasculitis diagnosed...

First line of my PET CT report in case you can't read the photo Clinical Info...

Sophiestree

•2 years ago

12 Replies

Flummoxed

Hello Folks, After holding well and steady at 6mg of pred for months, I inched down to 5.5mg a week ago. On the 6th day I awoke with mild right shoulder pain....

Hello Folks, After holding well and steady at 6mg of pred for months, I inched ...

MikeVanBC

•2 years ago

24 Replies

Reducing steroids

Hi. I have a nasty chest infection and difficulty in breathing. Went hospital. 40mg steroids for 3 days and an antibiotic called Doxycycline. As I had reduced...

Hi. I have a nasty chest infection and difficulty in breathing. Went hospital. 4...

Richmond162

•2 years ago

4 Replies

Not sure how to answer question

Got tex today asking i f when blood markers are up will thy come down on there own or do you always have to up pred,couldn't answer that because I've always...

Got tex today asking i f when blood markers are up will thy come down on there o...

Harrywogan

•2 years ago

5 Replies

Flare after covid for the second time

Good morning I am in a sad place today and really need your help. After 3 years of PMR I was put on hydroxychloroquine as well and had managed to reduce the...

Good morning I am in a sad place today and really need your help. After 3 years ...

Pawscat11

•2 years ago

6 Replies

omeprazole

does everyone who’s on prednisol take omeprazole or similar?

NormaB

•2 years ago

36 Replies

I messed up. What to do now?

I have been doing well using the dabs method. Made it through the horrendous fatigue and nicely down to two and a half . Feels like GCA gone and thought the...

I have been doing well using the dabs method. Made it through the horrendous fat...

Chopin002

•2 years ago

8 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2022

Offroader

unrelenting pain with post Herpetic neuralgia

Leflunomide

PMR & Covid

PS to previous post

Methotrexate

Leflunomide and tapering prednisolone for GCA, advice please

Probably a Stupid Question

Hi all, a further update from me and some "good" news

MPR a expert in Oxfordshire?

Importance of rest

alendronic Acid

Thank you everyone for your company over the last two years in my GCA journey

long term PMR

Hair loss

Does acupuncture work?

GP opinion

Steroid injections

Follow up from GSA or not post

Thank you for voting for us!

acid reflux

cellulitius

Timing for Prednisone

I would be interested to know how you all read this

Flummoxed

Reducing steroids

Not sure how to answer question

Flare after covid for the second time

omeprazole

I messed up. What to do now?

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