Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,883 posts

All posts for December 2022

Advice On A Wean

I recently went down from 11.5 Mgs of Prednisone to 11 in 7 days then to 10.5 mgs after another 7 or 8 days with only minor issues. 8 days after that I weaned...

I recently went down from 11.5 Mgs of Prednisone to 11 in 7 days then to 10.5 mg...

micpenn222

•2 years ago

8 Replies

Creaking & clicking

I’d be very grateful for any insight on this. Initially on 15mg Prednisolone from Sept, I am now down to 10mg under a rheumatologist’s plan. Some pain around...

I’d be very grateful for any insight on this. Initially on 15mg Prednisolone fr...

Windy183

•2 years ago

20 Replies

Learning to live with PMR

My PMR started with strange stiffness, as if I'd been riding a horse, around the hips and buttocks in April/May 2022. I ignored it as far as possible, trying...

My PMR started with strange stiffness, as if I'd been riding a horse, around the...

Orange_2022

•2 years ago

8 Replies

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Trying to give up Prednisolone

i started PMR treatment in June 2020 nearly got down to nil from 15mg 18 months later but the pains retuned so i have been on a ‘holding dose of...

i started PMR treatment in June 2020 nearly got down to nil from 15mg 18 mont...

Loveopera

•2 years ago

4 Replies

PAD after Pmr

Hi, I just wanted to share what's going on as I've been so worried and upset. I know I've no right to be, I'm fine compared with many of you, but...So I've...

Hi, I just wanted to share what's going on as I've been so worried and upset. I ...

Blossom20

•2 years ago

76 Replies

Ultrasound for possible temporal arteritis

Well after being on prednisone since Oct, , 2016 , diagnosed origninally by GP, put on 40 mgs, and after over 6 years of treatment, slowly getting down to 4...

Well after being on prednisone since Oct, , 2016 , diagnosed origninally by GP,...

arvine

•2 years ago

49 Replies

UPDATE ON CRP, FLU AND PRED INCREASE

Now in the 5th week of flu, but that seems to be subsiding. Had bloods taken end of November and CRP was up to 24 from being "normal" for months. Had upped the...

Now in the 5th week of flu, but that seems to be subsiding. Had bloods taken end...

Missus835

•2 years ago

6 Replies

Why do we all Reduce ..............

at stressful times? holidays, Christmas, Easter, Summer holidays, just before travelling, weddings etc. Mainly I have noticed it is women who do so. The...

at stressful times? holidays, Christmas, Easter, Summer holidays, just before...

jinasc

•2 years ago

44 Replies

Is this PMR or something else?

Sorry to be posting so soon after my last post but I do rely on the advice from this forum so much. Trying to get sensible advice from my GP or Rheumatologist...

Sorry to be posting so soon after my last post but I do rely on the advice from ...

Tiggy70

•2 years ago

20 Replies

Long haul travel and pred timing

Morning I recall reading about this before but sorry I can’t find the post . I am off to Canada tomorrow from the UK to see my daughter for Christmas and not...

Morning I recall reading about this before but sorry I can’t find the post . I ...

Cysty1

•2 years ago

9 Replies

So Where to Now?

Thank you to all of you for all the wonderful replies to my post about the rudest rheumatologist ever! BUT I am now really stuck because I feel like a dead...

Thank you to all of you for all the wonderful replies to my post about the rudes...

Louisa1840

•2 years ago

18 Replies

High and persistent C-RP blood results, but no classic PMR symptoms

Hi all: Following the excellent advice here, I have been tapering quite successfully and was at 0.75 mg/week when my CRP blood work was high, and did not come...

Hi all: Following the excellent advice here, I have been tapering quite success...

Marinescience

•2 years ago

6 Replies

Advice when bloods stay normal for ESR and CRP but shoulder stiffness and pain are increasing little by little

Although my ESR and CRP today are within normal range (21 & 6.8 respectively) I have had a return of stiffness and pain in my shoulders and neck over the last...

Although my ESR and CRP today are within normal range (21 & 6.8 respectively) I ...

Dochaz

•2 years ago

16 Replies

Confused

I have been on high dose pred for 5 months....from60mg down to 30 and back up a few times. I had 2 Actemra injections(epi-pen) and my rheamy says my bloodwork...

I have been on high dose pred for 5 months....from60mg down to 30 and back up a ...

Joseph14612

•2 years ago

32 Replies

Tapering advice please.

Brief recap on me. In June this I year had 120mg Depo-medrone injection (for PMR), which was little short of miraculous, from private Rheumy who then wrote to...

Brief recap on me. In June this I year had 120mg Depo-medrone injection (for PMR...

Countrykitten

•2 years ago

22 Replies

Think I did too much

I had successfully managed to come down from 6 to 5.5, then on Wednesday I helped set up and clear away a children’s party, and attended a dinner at night....

I had successfully managed to come down from 6 to 5.5, then on Wednesday I helpe...

Carathedog

•2 years ago

9 Replies

Tapering advice

A quick recap on me. I saw a Rheumatologist in June who gave me intrami

Countrykitten

•2 years ago

2 Replies

RAISED CPR

Hi, I am in Europe after 3 weeks in the UK where I contracted flu. High fever, shivers, body aches for 2 days. Now terrible cough, sore throat and headache....

Hi, I am in Europe after 3 weeks in the UK where I contracted flu. High fever, s...

Nolsie

•2 years ago

4 Replies

Norovirus and Prednisolone

Hello everyone, here I go again. I am currently on 8mg pred for PMR. Unfortunately I have come down with a really bad case of either food poisoning or...

Hello everyone, here I go again. I am currently on 8mg pred for PMR. Unfortu...

Washingup

•2 years ago

2 Replies

Changes in Vision - blurs, floaters flashes, CRP & ESR Markers changed, How to manage Prednisolone?

Background Diagnosed PMR April 2019 ESR 90 CRP 42 initial 20mg Prednisolone, ADCal D3 1 tab twice a day , every 3 wks reduction 17.5, 15, 12.5, 10mg, then...

Background Diagnosed PMR April 2019 ESR 90 CRP 42 initial 20mg Prednisolone, ...

maxistar

•2 years ago

9 Replies

Prednisilone or Biologic

Hi, If someone with PMR can’t tolerate Prednisilone due to Diabetes, Ventricular Tachycardia and Depression, would it be reasonable to be prescribed a...

Hi, If someone with PMR can’t tolerate Prednisilone due to Diabetes, Ventricula...

Bramble2000

•2 years ago

19 Replies

feeling really vulnerable and so fed up

Hi, The saga continues….. GP diagnosed PMR, prescribed Pred, miraculous recovery. Saw my rheumatologist 3 weeks later (I’m under him for Ankylosing...

Hi, The saga continues….. GP diagnosed PMR, prescribed Pred, miraculous recove...

Bramble2000

•2 years ago

14 Replies

A NEW SYMPTOM, IS IT LEFLUNOMIDE CAUSING IT

Currently between 4 and 4.5 preds. After breaking 3 ribs a few months ago I was on oxygen for aprox 3 weeks. Since then I have been extremely happy with my...

Currently between 4 and 4.5 preds. After breaking 3 ribs a few months ago I was...

shazstep

•2 years ago

5 Replies

Cortisol test

I am having a cortisol test in the morning. Do I remember reading that I should not take my prednisone before the test? Thank you.

I am having a cortisol test in the morning. Do I remember reading that I should...

PUMC

•2 years ago

14 Replies

Should I have stopped methotrexate whilst I had an awful cold recently?

I’ve had a really bad cough and head cold for over 6 weeks and it’s just settling now. Do you think I would have got better quicker if I’d withheld the...

I’ve had a really bad cough and head cold for over 6 weeks and it’s just settlin...

MiloCollie

•2 years ago

14 Replies

Update on 'Ectopic Beats or Something Else'

Well I've just seen the cardiologist and after lots of conversation, an examination and some tests, he's said that it was "More of the same". By that...

Well I've just seen the cardiologist and after lots of conversation, an examinat...

Kendrew

•2 years ago

35 Replies

thank you

I’d just like to say a big thank you to everyone who responded to me about my morning pain. It was suggested I try taking my Pred at a different time of day,...

I’d just like to say a big thank you to everyone who responded to me about my mo...

Mario66

•2 years ago

6 Replies

How common is PMR?

When I spoke to my practice’s pharmacist recently she told me that the practice (which has about 15,000 patients) has about 40 patients with RA but far fewer...

When I spoke to my practice’s pharmacist recently she told me that the practice ...

Siena62

•2 years ago

38 Replies

Pmr and cold weather

Does extremely cold weather worsen PMR

Rosekid

•2 years ago

20 Replies

A thread or sub-group for all long-term PMRers

I'm gathering information, please share your story if you're a long-timer, say over about 6 years with PMR. I've had PMR for 10 years now and it shows no...

I'm gathering information, please share your story if you're a long-timer, say o...

tangocharlie

•2 years ago

29 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2022

Advice On A Wean

Creaking & clicking

Learning to live with PMR

Trying to give up Prednisolone

PAD after Pmr

Ultrasound for possible temporal arteritis

UPDATE ON CRP, FLU AND PRED INCREASE

Why do we all Reduce ..............

Is this PMR or something else?

Long haul travel and pred timing

So Where to Now?

High and persistent C-RP blood results, but no classic PMR symptoms

Advice when bloods stay normal for ESR and CRP but shoulder stiffness and pain are increasing little by little

Confused

Tapering advice please.

Think I did too much

Tapering advice

RAISED CPR

Norovirus and Prednisolone

Changes in Vision - blurs, floaters flashes, CRP & ESR Markers changed, How to manage Prednisolone?

Prednisilone or Biologic

feeling really vulnerable and so fed up

A NEW SYMPTOM, IS IT LEFLUNOMIDE CAUSING IT

Cortisol test

Should I have stopped methotrexate whilst I had an awful cold recently?

Update on 'Ectopic Beats or Something Else'

thank you

How common is PMR?

Pmr and cold weather

A thread or sub-group for all long-term PMRers

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