Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,885 posts

All posts for December 2022

First blood test

Hi all My Dad’s GP wants to test my Dad’s blood each time there is a Pred reduction. He first reduction is 10% for 4 weeks and so on. Does he take his Pred...

Hi all My Dad’s GP wants to test my Dad’s blood each time there is a Pred reduc...

Lindsayf

•2 years ago

9 Replies

I have a cold. Increase preds, pause TCZ?

Advice please. I have GCA, slowly tapering preds, currently on 6mg, and weekly TCZ. I started a cold last Monday (8 days ago) and it’s def not Covid (done 3...

Advice please. I have GCA, slowly tapering preds, currently on 6mg, and weekly T...

Duncoding

•2 years ago

10 Replies

Leflunomide - in hind sight

Just an update on my Leflunomide experience. Initially was taking 20 mg Sept 2021 and was immediately feeling side effects dizziness & weakness along with...

Just an update on my Leflunomide experience. Initially was taking 20 mg Sept 20...

Alebeau

•2 years ago

24 Replies

Want to take advantage of all our features? Just log in!

nausea - related to adrenal insufficiency?

I have managed to reduce to 3mg per day, without too much pain and stiffness. I am getting bouts of nausea which I don’t think are related to digestive...

I have managed to reduce to 3mg per day, without too much pain and stiffness. I ...

HalleysComet

•2 years ago

11 Replies

Nausea and diarrhoea

Hello folks , Could I ask for some advice I have had the flu , that left me with a respiratory infection all over the past 3 weeks . This Sunday started...

Hello folks , Could I ask for some advice I have had the flu , that left me wi...

Staffieblue

•2 years ago

10 Replies

Parkinson's

Parkinson's and B1

Allum

•2 years ago

5 Replies

Finally…..

Hi, some of you know of my battle to get a diagnosis having had the Pred stopped due to Rheumy saying I’m too young to have it at age 52. I have had a call...

Hi, some of you know of my battle to get a diagnosis having had the Pred stopped...

Bramble2000

•2 years ago

7 Replies

Looks awful !

I have been on Pred for a number of years and coped with the highs and lows of it ! Now have reached 7.5 mgs, taken a long time but its fine . Im never going...

I have been on Pred for a number of years and coped with the highs and lows of i...

Viv54

•2 years ago

4 Replies

puffy face

I’ve been on Pred for three years in March. I’ve been extremely fortunate not to have put on any weight whatsoever. However, my face has gradually got fuller...

I’ve been on Pred for three years in March. I’ve been extremely fortunate not t...

Doraflora

•2 years ago

14 Replies

Prednisolone

Hi.just a question.i am on 1mg.and cause it it won't cut into 2 half's,drs.has said to take 1mgs.every other day.what does anyone think about it.advice would...

Hi.just a question.i am on 1mg.and cause it it won't cut into 2 half's,drs.has s...

Flosy

•2 years ago

9 Replies

reducing predisolone

I just wanted to ask… when I’m reducing .. slowly.. half a mg every 3 weeks.. I never have what is described as a flare! I can still lift my arms above my...

I just wanted to ask… when I’m reducing .. slowly.. half a mg every 3 weeks.. ...

Bedwell

•2 years ago

18 Replies

Outcome of Telephone Appointment with Rheumy Nurse re Methotrexate

My 6 month Rheumatology review appointment due on Thursday this week has been moved to 27 January. No reason for the change of date was given and as I had...

My 6 month Rheumatology review appointment due on Thursday this week has been mo...

Baner

•2 years ago

5 Replies

Muscle Loss

Hi, Having been housebound with this for several months now and bed bound for allot of time also, I have lost allot of muscle mass, particularly in my legs...

Hi, Having been housebound with this for several months now and bed bound for a...

Bramble2000

•2 years ago

55 Replies

methotrexate by injection - side effects better or worse?

After 5 months on oral methotrexate with failure to reduce below 20mg prednisolone for very long my rheumy suggests methotrexate by injection. The last week of...

After 5 months on oral methotrexate with failure to reduce below 20mg prednisolo...

Japsquar

•2 years ago

36 Replies

Cortisol test for Adrenals

Hi there I have had PMR since 2016 and have gradually decreased my prednisone to 4.5 mgs. I have been on that for about 2 months. Dr has agreed to order a 9...

Hi there I have had PMR since 2016 and have gradually decreased my prednisone t...

Jane185

•2 years ago

5 Replies

liver enzymes

sorry GGT is gamma glutamic transferease

bBarnabus

•2 years ago

1 Reply

elevated liver enzymes

Does anyone else have experience of raised liver enzymes whilst takin steroids? My recent blood test showed a GGT ( gamma gluts ultrasound transferease)...

Does anyone else have experience of raised liver enzymes whilst takin steroids? ...

bBarnabus

•2 years ago

15 Replies

heavy cold. Extra pred?

Hi. I have a heavy cold and feeling rather drained. Should I take extra pred or just see how it goes? Thanks

Hi. I have a heavy cold and feeling rather drained. Should I take extra pred or...

Rosina1871

•2 years ago

5 Replies

Nudging Adrenals back to life

I have been taking steroids for at least 12 years for PMR and am currently on 8 mg prednisolone. If I go below this pain is bad. My endocrinologist says...

I have been taking steroids for at least 12 years for PMR and am currently on 8 ...

Mike364

•2 years ago

18 Replies

Flare after positive Covid test

If PMR flares up after a positive Covid test followed by bad cold or flu and waking feeling achy and wretched what increase in dosage from 14mg a day should I...

If PMR flares up after a positive Covid test followed by bad cold or flu and wak...

craighead72

•2 years ago

3 Replies

Flare question

Didn't see this covered elsewhere. I had a post-Covid flare, so bumped my pred from 6 to 11. So far, that hasn't had much effect. It's been almost a week...

Didn't see this covered elsewhere. I had a post-Covid flare, so bumped my pred ...

winfong

•2 years ago

18 Replies

Flair of PMR

First diagnosed August 2010.Ups and downs. Last saw rheumatologist July 2021.now on 2.5mg prednisolone after Methatrxate not helpful. Due to adrenaline...

First diagnosed August 2010.Ups and downs. Last saw rheumatologist July 2021.n...

Rene20

•2 years ago

8 Replies

Covid returns

2nd bout of Covid in 5 months! Completely different and worse symptoms this time around, feel rubbish but at least fingers crossed it will be over by...

2nd bout of Covid in 5 months! Completely different and worse symptoms this time...

Abbey17

•2 years ago

6 Replies

Cutting Prednisilone in half

Hi, i will ask at the chemist/ rheumatologist however does any one know if you cut 1mg Prednisilone tablets in half can the other half be taken the next day...

Hi, i will ask at the chemist/ rheumatologist however does any one know if you ...

Animalover65

•2 years ago

40 Replies

New to polymyalgia rhumatica

Started treatment prednisolone Dec 22..Last few days been having a heart flutters/like a feeling something is going happen... Before I found out I has...

Started treatment prednisolone Dec 22..Last few days been having a heart flutter...

Newbypoly

•2 years ago

40 Replies

Advice needed ref statins

Hello all I have had PMR since May 2020, initially on 15mg pred and tapered down to 4mg by April 2022. Then got Covid and everything went a bit scatty....

Hello all I have had PMR since May 2020, initially on 15mg pred and tapered dow...

marionofnorwich

•2 years ago

18 Replies

Is it PMR?

Hi My symptoms started in May with suspected carpal tunnel in both hands, fingers swollen, wrists sore, feels like I’ve broken my fingers some mornings ,...

Hi My symptoms started in May with suspected carpal tunnel in both hands, finge...

Mercat

•2 years ago

11 Replies

Looks like I’m facing back surgery again should I hold at 9mg of prednisone?

Good morning, Yesterday I received my report and X-rays of my lower spine. It shows that one of the Coflex devices has dislodged in my back. I’ve had pain for...

Good morning, Yesterday I received my report and X-rays of my lower spine. It s...

singingloud

•2 years ago

13 Replies

How do you tell: physical and mental stress, PMR flare or AI?

Hi all. I am in need of your wisdom and experience again please: I have slowly(Dorset Lady way 🙏) been reducing pred for some months now 0.5 at a time from...

Hi all. I am in need of your wisdom and experience again please: I have slowly...

Grannyasbo

•2 years ago

32 Replies

dry mouth

hi,just wondering if anyone else suffers with a dry mouth when taking pred .

Shaza123

•2 years ago

45 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for December 2022

First blood test

I have a cold. Increase preds, pause TCZ?

Leflunomide - in hind sight

nausea - related to adrenal insufficiency?

Nausea and diarrhoea

Parkinson's

Finally…..

Looks awful !

puffy face

Prednisolone

reducing predisolone

Outcome of Telephone Appointment with Rheumy Nurse re Methotrexate

Muscle Loss

methotrexate by injection - side effects better or worse?

Cortisol test for Adrenals

liver enzymes

elevated liver enzymes

heavy cold. Extra pred?

Nudging Adrenals back to life

Flare after positive Covid test

Flare question

Flair of PMR

Covid returns

Cutting Prednisilone in half

New to polymyalgia rhumatica

Advice needed ref statins

Is it PMR?

Looks like I’m facing back surgery again should I hold at 9mg of prednisone?

How do you tell: physical and mental stress, PMR flare or AI?

dry mouth

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive