My PMR started with strange stiffness, as if I'd been riding a horse, around the hips and buttocks in April/May 2022. I ignored it as far as possible, trying physio with no success. It was when I did the Dales Way in Yorkshire in June/July that I realised my fatigue, slowness and trouble getting over styles wasn't just ageing! By this time my arms and shoulders were seizing up and my whole body couldn't do what it used to (walking uphill, running, yoga, gym, cleaning the shower, picking things off the floor!)
Around the same time, some dental treatment requiring 2 days of steroids resulted in an immediate 'cure'. Finally when I saw a rheumatologist in September and told him this, he diagnosed PMR - I'd never heard of it! Had no signs of inflammation from the blood test and was started on 15mg for 2 weeks, 12mg for 2 weeks and I'm now tapering down 1mg a month.
The posts I've read have been so reassuring and useful - rheumatologist and GP have given slightly varying advice so it's good to have this source of experience to come to for specific issues. I did wonder if stress and cold had an impact - and it sounds as if they do. I'll be less inclined to rush the tapering as a result of what I've read too.
Thanks to everyone who contributes - I wish you all well!
Hi, and welcome
Stress most definitely, most on here would agree it was part of their life pre diagnosis…..not so sure about cold per se…alough it does have a detrimental impact on people with or without PMR.
Maybe have a read through this - and remember tapering is apt to get more difficult the lower you get, so don’t just plough on through ignoring any return of symptoms etc -
Thank you! That's really appreciated.
You’re very welcome…