Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

All posts for October 2022

conflicted!

I finally saw a rheumatologist on September 10th. She advised I continue to reduce and for the last 3 weeks I have been on 7mg of prednisone.The blood tests...

I finally saw a rheumatologist on September 10th. She advised I continue to redu...

AnniesRyder5

•2 years ago

30 Replies

Vitamin K

With the risks of osteoporosis in your bones when using prednisolone, does anyone know what role Vitamin K can play in improving bone health?

With the risks of osteoporosis in your bones when using prednisolone, does anyon...

Bignorhill

•2 years ago

22 Replies

Can GCA come back after 18 months?

My GCA was treated with prednisolone for 3 years and I tapered off in May 2021. Over the past few weeks I have had intermittent right sided temporal / side of...

My GCA was treated with prednisolone for 3 years and I tapered off in May 2021. ...

sagegreen

•2 years ago

19 Replies

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MPR flare-up or Aclasta reaction?

Went off prednisone early in July 2022. Was fine till 10 days ago. Started with pain in my legs and with 5 days spread through my whole body - same as I had...

Went off prednisone early in July 2022. Was fine till 10 days ago. Started with ...

DeWet

•2 years ago

4 Replies

Asking GP for a referral

Hi, hoping someone can give some advice? I have PMR, currently managing at 4mg Prednisolone and recently had an Xray on my thoracic and lumbar spine, which...

Hi, hoping someone can give some advice? I have PMR, currently managing at 4m...

Songbird6

•2 years ago

26 Replies

1st consultant appointment query PMR! not sure next step?

I know Ive read similar stories so many times on here but Im so unsure what to do next! Had my 1st consultant (emergency - referred July as doctor wanted to...

I know Ive read similar stories so many times on here but Im so unsure what to d...

toniaell

•2 years ago

7 Replies

soreness on right side of head GCA

good morning from the US. Well, my saga continues to trying to find out if I have GCA or not. Very frustrating working with what is tiring out to be an...

good morning from the US. Well, my saga continues to trying to find out if I hav...

Plains

•2 years ago

25 Replies

Sick Day Rules?

Everyone seems to know what 'Sick Day Rules' are - except me. I have been trying to find out what they are, but links given here only lead to people talking...

Everyone seems to know what 'Sick Day Rules' are - except me. I have been trying...

Purple-Owl

•2 years ago

12 Replies

GCA steroid update and travel

We made our trips to Portugal and the family UK weekend, which was more challenging as I faced extended family for the first time and realised how limited I am...

We made our trips to Portugal and the family UK weekend, which was more challeng...

Bluey-1

•2 years ago

7 Replies

cortisol level (again)

Good morning all. Having had a cortisol test 2 days ago my levels have dropped from 30 to 22 within two weeks despite bumping up my steroids to 7.5mg from...

Good morning all. Having had a cortisol test 2 days ago my levels have dropped ...

Pangolin43

•2 years ago

2 Replies

In response to PMRCanada

I have now had PMR for 2 years and have tapered from 25mg to 4.5 hope to drop to 4 this month. My only problem at the moment apart from intermittent stiffness,...

I have now had PMR for 2 years and have tapered from 25mg to 4.5 hope to drop to...

GrannyJane

•2 years ago

1 Reply

Adrenals possibly?

So, a few weeks ago I stayed at my sons and ate some foods I wouldn't usually eat (more sugary and spicy/fatty foods) and I also had a couple of large glasses...

So, a few weeks ago I stayed at my sons and ate some foods I wouldn't usually e...

Kendrew

•2 years ago

53 Replies

Prednisone and sulfasalazine at the same time

Prednisone and sulfasalazine at the same time. I was diagnosed with PMR by my Doctor he prescribed prednisone which did the trick Started at 20 reduced to...

Prednisone and sulfasalazine at the same time. I was diagnosed with PMR by my D...

Finaltribute

•2 years ago

1 Reply

Different tapering protocol

A friend who was diagnosed with GCA in February and PMR about the same time was given a tapering protocol by his rheumatologist that after 3 months involves...

A friend who was diagnosed with GCA in February and PMR about the same time was ...

Donna5658

•2 years ago

12 Replies

A new drug for shoulder pain

An article in the Telegraph on PMR. At least he recognises that reducing can cause problems....

An article in the Telegraph on PMR. At least he recognises that reducing can cau...

piglette

•2 years ago

14 Replies

Advice needed before Covid booster on Saturday 8 October

I am due another booster jab on Saturday. I was fine on previous Covid jabs but when I actually got Covid in April it threw me abut good and proper (not the...

I am due another booster jab on Saturday. I was fine on previous Covid jabs but ...

marionofnorwich

•2 years ago

16 Replies

low sodium rate

another worry has set in today after getting my last blood results! My sodium level is still low (128). Only one digit higher than 3 months ago. My GP says...

another worry has set in today after getting my last blood results! My sodium l...

Doraflora

•2 years ago

5 Replies

Covid Vaccine trigger flares?

Hi there, I'm 53 and was 52 when I was diagnosed with PMR. It seemed to come on after my 2nd Vaccine but it took a while for my Dr diagnose me. I got the 3rd...

Hi there, I'm 53 and was 52 when I was diagnosed with PMR. It seemed to come on...

Newbs29

•2 years ago

21 Replies

Prednisone or prednisolone

As I understand it, these drugs are basically the same, though they act a little differently in the body. I have tried so hard to decrease the prednisone...

As I understand it, these drugs are basically the same, though they act a little...

Linny3

•2 years ago

5 Replies

sick day rules

hi Iv just looked at sick day rules and I’m thinking to up steroids, I know feel worse with sweats no temp headache tiredness muscle aches. Iv been in bed...

hi Iv just looked at sick day rules and I’m thinking to up steroids, I know feel...

Uglow

•2 years ago

7 Replies

Changes in posting a reply - PMRpro's problems ...

I wondered if anyone else has had the problem I have recently. Whereas previously if I clicked on the blue box with Reply to reply to a comment on the forum...

I wondered if anyone else has had the problem I have recently. Whereas previou...

PMRpro

Ambassador•2 years ago

60 Replies

polymyalgia and brachytherapy

I am 63 diabetic and recently diagnosed with pmr and prostate cancer. I am waiting for brachytherapy treatment for the cancer but the doc is uncertain about...

I am 63 diabetic and recently diagnosed with pmr and prostate cancer. I am waiti...

Limes123

•2 years ago

2 Replies

ATRIAL FIBRILLATION & PMR

After a long, uncomfortable night in the assessment dept of my local hospital I've been diagnosed with atrial fibrillation, essentially an irregular heart...

After a long, uncomfortable night in the assessment dept of my local hospital I'...

Sanekate

•2 years ago

11 Replies

Research programme

Hi all, Just wanted to mention something that may be of interest. My rheumatologist asked recently if I’d be interested in being part of a research programme...

Hi all, Just wanted to mention something that may be of interest. My rheumatolo...

Lyndaki

•2 years ago

2 Replies

Oh dear!

After gastroscopy I have been sticking to a dairy and gluten free diet, managed to get down to 3.5mg Prednisolone and was doing really well but with...

After gastroscopy I have been sticking to a dairy and gluten free diet, managed...

Allcraft

•2 years ago

10 Replies

GCA diagnosis last Thursday

new diagnosis….specialist appointment thus Thursday Any advice and meds experience appreciated

new diagnosis….specialist appointment thus Thursday Any advice and meds exper...

Beaminster1

•2 years ago

7 Replies

Help to try and reduce prednisolone again after 5 months stuck at 15mg

After a bumpy few months with difficulty controlling my symptoms of PMR, due to a return to work in July and Covid infection in August, I have been feeling...

After a bumpy few months with difficulty controlling my symptoms of PMR, due to ...

PPop

•2 years ago

4 Replies

GCA has it gone on from PMR

PAinful eyes. I have had an headache for several months now, sore eyes and aching shoulders I have had PMR for 3 years now has this now progressed to GCA? I...

PAinful eyes. I have had an headache for several months now, sore eyes and achin...

sweathead

•2 years ago

7 Replies

Should I insist on cortisol test or am I a steroid 'junky '?

Feeling very low at the moment. Hopefully on my final leg of the PMR journey and have been on less than 5mgs for nearly a year. First of all, my GP tells me...

Feeling very low at the moment. Hopefully on my final leg of the PMR journey an...

larkthebark

•2 years ago

67 Replies

Email about Covad study

I received this email. I have Googled Covad study and there does seem to be such a thing, but I'm reluctant to click on the link till I know its a genuine...

I received this email. I have Googled Covad study and there does seem to be such...

Broseley

•2 years ago

44 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for October 2022

conflicted!

Vitamin K

Can GCA come back after 18 months?

MPR flare-up or Aclasta reaction?

Asking GP for a referral

1st consultant appointment query PMR! not sure next step?

soreness on right side of head GCA

Sick Day Rules?

GCA steroid update and travel

cortisol level (again)

In response to PMRCanada

Adrenals possibly?

Prednisone and sulfasalazine at the same time

Different tapering protocol

A new drug for shoulder pain

Advice needed before Covid booster on Saturday 8 October

low sodium rate

Covid Vaccine trigger flares?

Prednisone or prednisolone

sick day rules

Changes in posting a reply - PMRpro's problems ...

polymyalgia and brachytherapy

ATRIAL FIBRILLATION & PMR

Research programme

Oh dear!

GCA diagnosis last Thursday

Help to try and reduce prednisolone again after 5 months stuck at 15mg

GCA has it gone on from PMR

Should I insist on cortisol test or am I a steroid 'junky '?

Email about Covad study

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