Email about Covad study : I received this email. I... - PMRGCAuk

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Email about Covad study

Broseley profile image
44 Replies

I received this email. I have Googled Covad study and there does seem to be such a thing, but I'm reluctant to click on the link till I know its a genuine email.

What do people think?

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Broseley profile image
Broseley
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44 Replies
HeronNS profile image
HeronNS

When in doubt, don't click on it. Does the originating e-mail look authentic? Look up the source of the e-mail.

(Also, Covid is spelled with an I not an A)

Jigsawlass profile image
Jigsawlass in reply to HeronNS

COVAD stands for Covid vaccination and auto immune disease

Broseley profile image
Broseley in reply to HeronNS

Thanks, if it's genuine they should know by now that people wont trust it, and give us more information!

Jigsawlass profile image
Jigsawlass

I had the same email, seems genuine so I've completed it

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Unless you have already agreed under another study - like Zoe, CSS Biobank or CovidenceUK, I would want to know who Covadstudy are before I linked …..

Broseley profile image
Broseley in reply to DorsetLady

This is what i found about it:

ncbi.nlm.nih.gov/pmc/articl...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Broseley

okay, well maybe your personal circumstances triggered the email, but it would have been useful and maybe less confusing if that was outlined in the introductory email.

I would have thought in the light of so much spam surrounding Covid, those conducting study would be better at explaining why they wanted you to complete…that all.

Broseley profile image
Broseley in reply to DorsetLady

My reply to you didn't post. I said that there may be a legitimate study, but there are people out there who copy these emails for phishing purposes. They should provide a way of finding out if they are genuine. May be I'll try to contact them.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Broseley

If I doubt, yes…..

PMRpro profile image
PMRproAmbassador in reply to Broseley

ncsc.gov.uk/collection/phis...

One too many reports is better than one too few

piglette profile image
piglette

There is this research called COV-AD which is about immuno-deficiency:

immunodeficiencyuk.org/what...

HeronNS profile image
HeronNS in reply to piglette

Interesting. That name is a way to confuse people though! :D

piglette profile image
piglette in reply to HeronNS

I totally agree.

HeronNS profile image
HeronNS in reply to piglette

One thing I always look for in potential spam/scam is misspellings, hence my suspicion here, but it does look like a real thing.

piglette profile image
piglette in reply to HeronNS

Most scams are looking for money in one way or another and I cannot see they would gain much from this email.

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to piglette

Agree, but if it is legit then could be better worded with an intro as to why the reciver has been selected.. just seems a bit slapdash.

piglette profile image
piglette in reply to DorsetLady

I have noticed that is true of a lot of things nowadays. Prices left off, you can’t find how to contact people …….

Broseley profile image
Broseley in reply to piglette

I agree. I'll let you all know if I get anything back.

kalgoorlie profile image
kalgoorlie

I received the email too. They obviously got my email address from this site, as that is the one I use for healthunlocked/PCRGCA. The email (correctly) said that I had received it as I had reported a possible link between the covid vaccine and an autoimmune disease. The sender is a Dr. Latika Gupta. This could either be genuine or a group looking to discredit the vaccine.

in reply to kalgoorlie

I’ve googled that Dr and she ‘appears’ to be a rheumatologist at Wolverhampton hospital but Google is not a source or reliable info either.

Jigsawlass profile image
Jigsawlass in reply to

She is on LinkedIn, so I would say she is reputable

PMRpro profile image
PMRproAmbassador in reply to Jigsawlass

Not sure I'd take being on LinkedIn as a mark of reputation!! The Lancet might be a better bio:

thelancet.com/journals/lanr...

in reply to PMRpro

ha ha that made me laugh, yes linked in is simply a marketing tool IMHO

PMRpro profile image
PMRproAmbassador in reply to

Self-aggrandisment too

Jigsawlass profile image
Jigsawlass in reply to

Tbf LinkedIn is a standard way of making connections across the jobs market and also used by recruiters, a very useful tool

PMRpro profile image
PMRproAmbassador in reply to kalgoorlie

Did you or your doctor submit a yellow card report for adverse effects to a vaccine? They can't (shouldn't) have obtained your email address from HU as that comes under data protection. However - we have mentioned a couple of studies that are patient reported and they also included the option to participate in other research if desired.

This is an article in the Lancet about the various studies, including COVAD

thelancet.com/pdfs/journals...

Broseley profile image
Broseley in reply to PMRpro

Hi PMRPro I have never filled in a yellow card. I had no reaction to any of my covid vaccinations and I have never had covid either!

PMRpro profile image
PMRproAmbassador in reply to Broseley

I can't see your screenshot in detail - but the claim the link is individual to you seems strange since that means the responses are not fully anonymised which, without your signed agreement, is not in line with any study I've come across.

PMRpro profile image
PMRproAmbassador in reply to Broseley

Here are the instructions for scam reporting

ncsc.gov.uk/collection/phis...

Bcol profile image
Bcol

It certainly looks, at first sight, to be genuine but I'm surprised that if they obtained your email address from this site/forum then why haven't the rest of us also had the same email as I would have thought that pretty much everyone on this site would be relevant for their study.

Suziib profile image
Suziib

I am on a genuine Vovid study group run by the ONS but the initial contact was via the post, I have been on this study for 2 years. I definitely would want to find out more before supplying more information about myself.

personally I feel if it’s a genuine contact intended directly for YOU they would also have another way of getting in touch with you directly to avoid any risk of damage to their quest by people thinking it’s spam.

also see my reply to kalgoorli with these responses

LBM1953 profile image
LBM1953

I started competing the survey last night but got locked out because I tried to navigate back and it won't allow it. HOWEVER I did the survey just now and it is a completely different set of questions to the ones I started (but did not complete) yesterday. Todays were much simpler. Odd.....

PMRpro profile image
PMRproAmbassador in reply to LBM1953

ncsc.gov.uk/collection/phis...

One repot too many is better than one too few

rudyard21 profile image
rudyard21

Well , they can't spell Covid so I would definitely say Scam!

PMRpro profile image
PMRproAmbassador in reply to rudyard21

The STUDY is called COVAD - that bit is genuine. Whether this email is genuine is another matter

pubmed.ncbi.nlm.nih.gov/358...

Sanekate profile image
Sanekate

Any approved research from a genuinne centre must have a desriptor and outline of what connsent entails, even if its an undergraduate project. Thats a generic email account too. Might be genuine interest but I'd like to know more about the project

AyJayBass profile image
AyJayBass

It is genuine. I was invited to take part in the COVAD study last year by the Dept of Immunology at the Royal Free Hospital (London) who have been treating me for an immune deficiency for the past six years. I had previously reported to them that my PMR appeared following my first dose of Covid vaccine. I received the email and I have completed in the survey today.

Broseley profile image
Broseley

Thanks. I have messaged the study and await their reply.

bussell profile image
bussell

How naive am I! It did not occur to me that this might be a scam and I have duly filled it in.

I did develop PMR after the first vaccination and reported it to the yellow card system.

To be fair, I don't quite see what would be in it for a scammer.

PMRpro profile image
PMRproAmbassador in reply to bussell

You don't know what is at the end of the link

bussell profile image
bussell in reply to PMRpro

true

Broseley profile image
Broseley

I have had no luck finding a source for this email. Yes there is a published study called COVAD but that doesn't mean the email is genuine. The fact that it does not address me by name and gives no introduction or information leads me to think it is a phishing scam so I have reported it. In doing this it was deleted from my inbox.

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