Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,086 members • 39,888 posts

All posts for June 2022

Cramps with GCA?

Apologies if this is in FAQs, I did search but got tangled in IVF threads! I have been troubled by foot and leg cramps alot since GCA diagnosis, helped by...

Apologies if this is in FAQs, I did search but got tangled in IVF threads! I ha...

Happyexplorer

•2 years ago

32 Replies

Amitriptyline withdrawals

It is a long time since I have written a post here, mainly because I have been struggling with all sorts of problems! To re cap - I have had PMR for 10 years...

It is a long time since I have written a post here, mainly because I have been s...

suzy1959

•2 years ago

37 Replies

GCA steady

After being diagnosed with GCA due to partial sight loss in right eye I started on 50 mg prednisone. Seven days later back to ophthalmologist to check swelling...

After being diagnosed with GCA due to partial sight loss in right eye I started ...

Triumph650

•2 years ago

8 Replies

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Terrible Pain and Aches

Hi everyone :) I've had terrible aches and pains lately. Mainly in my lower body hips and down. I'm at 7mg of Pred these days. Yesterday I had to take...

Hi everyone :) I've had terrible aches and pains lately. Mainly in my lower body...

Hidden

•2 years ago

27 Replies

Fighting inflammation with diet

I know many of us follow Zoe with its podcasts on food and health and I thought I knew most of what they were going to say in this podcast but still learnt a...

I know many of us follow Zoe with its podcasts on food and health and I thought...

Seekingasolution

•2 years ago

7 Replies

Newbie

This is my first post! It’s so good that I have found you All at long last Thank You. Diagnosed with PMR September 2021. Struggling on 7 mgs prednisone. (For...

This is my first post! It’s so good that I have found you All at long last Thank...

WarmVelvet

•2 years ago

25 Replies

Positive vibes!

I just wanted to give hope to all of you. I started my PMR/GCA journey back in 2018 on 60mg prednisolone. It was a gradual taper down to 5 then a bit slower...

I just wanted to give hope to all of you. I started my PMR/GCA journey back in 2...

Lyndaki

•2 years ago

16 Replies

New hippie

Hi I've been on here some time, bt not in this group. Can someone give me the basics. My wife has just been diagnosed as needing a new hip. She's already in...

Hi I've been on here some time, bt not in this group. Can someone give me the b...

Spurdog1

•2 years ago

10 Replies

Had to go to emergency

I started to get a fever and more signs of a UTI.My Dr was so negligent and even aft the hospital released me Iam leery with Drs now.I thought I should have...

I started to get a fever and more signs of a UTI.My Dr was so negligent and even...

Hunter134

•2 years ago

15 Replies

GCA

I understand that PMR can return, but what about GCA? If you started with both and the PMR returns, does the GCA automatically return too? Thank you for any...

I understand that PMR can return, but what about GCA? If you started with both a...

Strelitzia

•2 years ago

2 Replies

Info on Covid vaccines

Just been seen by my brilliant Rheumy who thinks my PMR has taken longer to get better because of the 3 Covid vaccines Yet another flare so am on 10 mg Pred...

Just been seen by my brilliant Rheumy who thinks my PMR has taken longer to get ...

bakingD

•2 years ago

63 Replies

Methotrexate

Has anyone taken methotrexate to reduce or become completely off prednisone and then stop taking methotrexate for PMR? Or did you need to stay on MTX to...

Has anyone taken methotrexate to reduce or become completely off prednisone and ...

Macadoo

•2 years ago

16 Replies

oral NSAIDs vs topical NSAIDs

I always wondered if topical NSAIDs were gentler on the body than oral NSAIDs. This is an interesting article:...

I always wondered if topical NSAIDs were gentler on the body than oral NSAIDs. T...

kulina

•2 years ago

7 Replies

Low temperature

Hello All, On pred. 5mgs for over 12months. As I am over 90, I am steady and not reducing. Some of us suffer from 'steroid night sweats'. I just wondered if...

Hello All, On pred. 5mgs for over 12months. As I am over 90, I am steady and n...

petros31

•2 years ago

27 Replies

Update

So 8 years in and still struggling to get anywhere on steroid reduction. I’ve been at 11mg for a couple of months or more and enduring pain and fatigue and...

So 8 years in and still struggling to get anywhere on steroid reduction. I’ve be...

Griggser

•2 years ago

48 Replies

Yesterday I had wings, today I'm grounded. Adrenals?

Yesterday I felt the nearest to 'normal' I have felt for a very long time, even my legs felt like my own but I didn't overdo things at all. Today I can barely...

Yesterday I felt the nearest to 'normal' I have felt for a very long time, even ...

HappyDiamonds

•2 years ago

74 Replies

Covid infection

Well I guess it was bound to happen. Despite getting 4 shots, wearing my mask, staying away from public and endlessly washing my hands I got Covid. And while...

Well I guess it was bound to happen. Despite getting 4 shots, wearing my mask, s...

Amkoffee

•2 years ago

30 Replies

First consultation with GP after starting with Prednisolone.

I have been treated for PMR for the first time since May 2022 (I'm a PMR novice at the moment). My GP put me on a plan to taper down the Pred. Unfortunately...

I have been treated for PMR for the first time since May 2022 (I'm a PMR novice...

Washingup

•2 years ago

23 Replies

cataract surgery and floaters

I had cataract surgery January, last week I had a black floater in my left eye which seemed to fade away after two days , yesterday I had several black...

I had cataract surgery January, last week I had a black floater in my left eye w...

cool4bob

•2 years ago

10 Replies

Covid, Paxlovid and Tocilizumab

I am two months away from tapering my fortnightly injections of Tocilizumab for GCA, diagnosed in April 2020. I have been taking it for nearly two years. The...

I am two months away from tapering my fortnightly injections of Tocilizumab for ...

Frenchduck

•2 years ago

4 Replies

Cocktail a cause perhaps?

I’ve been on Prednisolone for 2 years this month starting at 15mg steadily going down until January when I stopped at 1mg . It wasn’t long before I had to...

I’ve been on Prednisolone for 2 years this month starting at 15mg steadily going...

Loveopera

•2 years ago

3 Replies

Low oxygen with pmr

Wounded if this changes the game a little Regarding prednisolon etc. 🥹

Ronzy

•2 years ago

11 Replies

Thanks for all responses

Grateful for the quick responses. I take from them that we’re all different and no point worrying in advance. It’s really day by day. Many thanks

Grateful for the quick responses. I take from them that we’re all different and ...

Honeydog1

•2 years ago

1 Reply

Two Year Update/Reflections on my PMR Journey

Two Year update on my PMR Journey - couple of weeks early. Sorry it's a tad long. Hi all, I can’t believe that it is yet another year since I wrote my one-year...

Two Year update on my PMR Journey - couple of weeks early. Sorry it's a tad long...

Bcol

•2 years ago

33 Replies

Does anyone take Boron for their bones

I am having some fancy scan in Dec for Osteoporosis (my friend who also has the same persuaded me to go too) and on the form it asks what dose of supplements...

I am having some fancy scan in Dec for Osteoporosis (my friend who also has the ...

Sophiestree

•2 years ago

50 Replies

Inflammation, Ageing & Disease.

Just listened to a really interesting podcast from the 'ZOE Science & Nutrition' app discussing inflammation in the body and the role diet and nutrition may...

Just listened to a really interesting podcast from the 'ZOE Science & Nutrition'...

Kendrew

•2 years ago

28 Replies

Anyone any experience of PMR,and radiotherapy for breast cancer

Hi, Following diagnosis of PMR in February 2022, I now require radiotherapy after lumpectomy for lobular cancer. I am especially interested in the level of...

Hi, Following diagnosis of PMR in February 2022, I now require radiotherapy afte...

Honeydog1

•2 years ago

9 Replies

After the Wedding trip to USA I am now in hospital!

After a wonderful trip , feeling really good, I gradually felt tired and “strange “ over the next 2 days . I took my blood pressure and found it was much...

After a wonderful trip , feeling really good, I gradually felt tired and “strang...

KerryIreland

•2 years ago

8 Replies

Panic stations re Prednisolone

We arrived in Cyprus very early hours yesterday and it was only later when I went to take my usual dose of 5mg that I realised (with horror) that I’d...

We arrived in Cyprus very early hours yesterday and it was only later when I wen...

Doraflora

•2 years ago

9 Replies

Is it or is it not PMR

My PMR may have returned for the 4th time in 6 years in my shoulders and iliac crest/hip area. I have increased my steroids steadily from 1mg to 15mg over past...

My PMR may have returned for the 4th time in 6 years in my shoulders and iliac c...

Langer46

•2 years ago

22 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2022

Cramps with GCA?

Amitriptyline withdrawals

GCA steady

Terrible Pain and Aches

Fighting inflammation with diet

Newbie

Positive vibes!

New hippie

Had to go to emergency

GCA

Info on Covid vaccines

Methotrexate

oral NSAIDs vs topical NSAIDs

Low temperature

Update

Yesterday I had wings, today I'm grounded. Adrenals?

Covid infection

First consultation with GP after starting with Prednisolone.

cataract surgery and floaters

Covid, Paxlovid and Tocilizumab

Cocktail a cause perhaps?

Low oxygen with pmr

Thanks for all responses

Two Year Update/Reflections on my PMR Journey

Does anyone take Boron for their bones

Inflammation, Ageing & Disease.

Anyone any experience of PMR,and radiotherapy for breast cancer

After the Wedding trip to USA I am now in hospital!

Panic stations re Prednisolone

Is it or is it not PMR

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