Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,085 members • 39,885 posts

All posts for June 2022

Update on my GCA journey

Hello good folks...well, I had my second rheumy appt after last month to find out she's leaving practise. I start w/ new unknown rheumy next month. When I...

Hello good folks...well, I had my second rheumy appt after last month to find ou...

Cobalt2sister

•2 years ago

17 Replies

Hashimoto's

Hello, I was just diagnosed with Hashimoto's. Has anyone else been diagnosed with this? Thank you

Hello, I was just diagnosed with Hashimoto's. Has anyone else been diagnosed wit...

Plains

•2 years ago

8 Replies

Heat intolerance

I live in a very hot and humid region of the US. It didn't used to bother me, but I've found in the last few years (i.e., since I was diagnosed with...

I live in a very hot and humid region of the US. It didn't used to bother me, b...

winfong

•2 years ago

20 Replies

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Disability payments

Can you claim disability payments with PMR

BabiBach

•2 years ago

4 Replies

Withdrawal

Has anyone withdrawn from Hydroxychloroquine?

Sandrakee

•2 years ago

4 Replies

Tapering

I would just like to say thank you for all your kind replies. I will update in a month to let you know how l am getting on.

I would just like to say thank you for all your kind replies. I will update in ...

Fifelassieo

•2 years ago

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Update on Non Temporal GCA

Just back from my doctor. The email from the hospital had not yet arrived despite the hospital consultant carefully explaining to me yesterday like I was an...

Just back from my doctor. The email from the hospital had not yet arrived despit...

Shiv14

•2 years ago

1 Reply

Adrenaline

Hi friends, trying slowly to taper again by 0.5 mg increments. Currently at 7mg , feel dreadful with Pred reduction symptoms rather than PMR. Fatigue, sweats ,...

Hi friends, trying slowly to taper again by 0.5 mg increments. Currently at 7mg ...

Greensleeves

•2 years ago

27 Replies

Patience

PMR provides an excellent opportunity to learn patience. PMR will not be rushed. It is on its own schedule and ridding yourself of it requires respect for its...

PMR provides an excellent opportunity to learn patience. PMR will not be rushed...

WeAreAllMutants

•2 years ago

28 Replies

Immunocompromised at work

For those of us who are still working. It doesn't really say that much, but at least it's in the headlines....

For those of us who are still working. It doesn't really say that much, but at ...

winfong

•2 years ago

2 Replies

Swelling in legs

Hi everyone, does anyone have any advice as to how to relieve swelling in lower legs and feet. My feet, ankles and legs get very swollen during the day and...

Hi everyone, does anyone have any advice as to how to relieve swelling in lower ...

Charkha

•2 years ago

26 Replies

An idea to get GCA/PMR more visibility (but only if there are Archers fans among us)!

Remember Nic Grundy and sepsis, or Helen and coercive control? Why not an Archers storyline featuring GCA and/or PMR? There are lots of age appropriate...

Remember Nic Grundy and sepsis, or Helen and coercive control? Why not an Archer...

Dochaz

•2 years ago

19 Replies

A flare without a dosage reduction

I have been taking 8.5 mg of prednisone for 30 days with no stiffness or discomfort. I have been reducing at .5 mg since 10 mg I had a flare at 8 mg in...

I have been taking 8.5 mg of prednisone for 30 days with no stiffness or discomf...

Skier321

•2 years ago

5 Replies

Non temporal GCA

Hi, has anyone experience of GCA which did not invole the temporal artery. I had what i though was a bad ear infection but could only get video doctor who...

Hi, has anyone experience of GCA which did not invole the temporal artery. I ha...

Shiv14

•2 years ago

36 Replies

Ache and pains

Hi.am on 5mgs at moment,would it that is making feel really tired and exhausted.pains in arms,shoulders,legs and in my back down my hip.i am working 16 hrs a...

Hi.am on 5mgs at moment,would it that is making feel really tired and exhausted....

Flosy

•2 years ago

22 Replies

Rheumatologist’s advice query

I had an appointment with a rheumatologist today. I am currently on 1.75mg of prednisolone & he said he wanted to get me off quickly, so to go down to 1mg for...

I had an appointment with a rheumatologist today. I am currently on 1.75mg of p...

Hidden

•2 years ago

10 Replies

Bad idea!

Since recent flare, going back up to 15mg initially for 4 weeks then down to 10 mg for 6 weeks and 9 mg as from yesterday, thought I could cope with 10 minute...

Since recent flare, going back up to 15mg initially for 4 weeks then down to 10...

granofthewest

•2 years ago

23 Replies

Quote that made me think of this forum we all appreciate so much.

I had an email this morning with this quote at the end of it and I immediately thought how very apt it was for this lovely forum. Friendship is born at the...

I had an email this morning with this quote at the end of it and I immediately t...

HappyDiamonds

•2 years ago

12 Replies

Itchy Scalp

For the past three summers that I've had pmr the back of my scalp gets really itchy when i get hot and sweaty . Don't know if its related to pmr or prednisone....

For the past three summers that I've had pmr the back of my scalp gets really it...

Paperroses

•2 years ago

4 Replies

Methotrexate - go cold turkey or what?

Bonjour! Long time no post. Was going to write, "Hope you are all well" but, you wouldn't be here if that were the case! So, hope you're all having a better...

Bonjour! Long time no post. Was going to write, "Hope you are all well" but, y...

IdasMum

•2 years ago

10 Replies

GP telephone chat

Hi, diagnosed Dec 21 started on 15mg pred. Worked well . Got down to 8 mg in standards nhs gp taper. Started feeling rotten again sore etc…… persuaded gp to go...

Hi, diagnosed Dec 21 started on 15mg pred. Worked well . Got down to 8 mg in sta...

Fiddlemum

•2 years ago

9 Replies

Dumb question of the day

Good morning everyone from sunny London, If you get down to 1 or 1/2 mg pred when can you take ibuprofen? Thank you. Whitefish x

Good morning everyone from sunny London, If you get down to 1 or 1/2 mg pred whe...

whitefishbay

•2 years ago

11 Replies

GCA and PMR, chickens and eggs

I'm wondering whether PMR is a complication of GCA or if it's the other way round. I was diagnosed with both simultaneously, but looking back to when I first...

I'm wondering whether PMR is a complication of GCA or if it's the other way roun...

Dochaz

•2 years ago

13 Replies

Don’t underestimate your strength and ability to cope

I was diagnosed with PMR about 7 years ago and most of us who have PMR and are on prednisone have “full plates” and feel overwhelmed. This last year has been...

I was diagnosed with PMR about 7 years ago and most of us who have PMR and are o...

rocketman42

•2 years ago

23 Replies

Interesting aches

I've been on pred since March 5th , on 11mg currently and moving to 10 mid-week , hopefully. For the last few days I've had aches across my shoulders, no...

I've been on pred since March 5th , on 11mg currently and moving to 10 mid-week ...

Jigsawlass

•2 years ago

13 Replies

Leflunomide and alcohol

I'm in a transitioning stage between Tociluzumab and Leflunomide to help with PMR and GCA while very gradually tapering my Pred and trying to avoid any more...

I'm in a transitioning stage between Tociluzumab and Leflunomide to help with PM...

PastelsinArt

•2 years ago

12 Replies

Question? Methotrexate and Actemra

Love the information found here! Grateful to all of you🙏 Currently doctor has me on prednisone(slowly tapering currently at 8mg, next week will begin taper to...

Love the information found here! Grateful to all of you🙏 Currently doctor has m...

Elephants2019

•2 years ago

12 Replies

PMR and Vasculitis

Diagnosed with PMR 4 years ago (at 60) , I have been off prednisolone for about a year now but had to go onto Methotrexate for a diagnosis of Vasculitis a year...

Diagnosed with PMR 4 years ago (at 60) , I have been off prednisolone for about ...

Bignorhill

•2 years ago

5 Replies

Steroid Reduction - Planning and Patience.

Like many of you I struggled to reduce steroid medication. I was on steroids for 14yrs from 2006 - 2020. I found it most helpful to listen to my own body and...

Like many of you I struggled to reduce steroid medication. I was on steroids fo...

Avrael

•2 years ago

24 Replies

Last pred today (I hope)

You’ll see in my profile that I was diagnosed with GCA in the middle of the first lockdown. My treatment was steroid infusion over three days and then high...

You’ll see in my profile that I was diagnosed with GCA in the middle of the firs...

Agavegirl

•2 years ago

18 Replies

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All posts for June 2022

Update on my GCA journey

Hashimoto's

Heat intolerance

Disability payments

Withdrawal

Tapering

Update on Non Temporal GCA

Adrenaline

Patience

Immunocompromised at work

Swelling in legs

An idea to get GCA/PMR more visibility (but only if there are Archers fans among us)!

A flare without a dosage reduction

Non temporal GCA

Ache and pains

Rheumatologist’s advice query

Bad idea!

Quote that made me think of this forum we all appreciate so much.

Itchy Scalp

Methotrexate - go cold turkey or what?

GP telephone chat

Dumb question of the day

GCA and PMR, chickens and eggs

Don’t underestimate your strength and ability to cope

Interesting aches

Leflunomide and alcohol

Question? Methotrexate and Actemra

PMR and Vasculitis

Steroid Reduction - Planning and Patience.

Last pred today (I hope)

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